Re: Another bowel obstruction ....

[Guest guest]

Oh, the joyful topics we CF parents discuss!

Sian has at least 2-3 obstructions a year, and they are always in the cecum.

It's one of my questions for God when I get upstairs - Why in the name of

all that's holy is the cecum hook shaped? Bloody stupid piece of

designing!!

Anyway, because everything is supposed to be liquid at that stage of the

bowel, things slide past it. When it gets too big, the doctors tell her to

drink 2L of Golyteley a day until the blockage is gone. We take Agarol on a

regular basis to keep things soft & mobile after each flush out. We did our

last flush out during last term last year. I have to make an appointment,

'cause the blockage can now be seen through the skin again.

CF sucks!

Much love to all,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

[Guest guest]

Oh, the joyful topics we CF parents discuss!

Sian has at least 2-3 obstructions a year, and they are always in the cecum.

It's one of my questions for God when I get upstairs - Why in the name of

all that's holy is the cecum hook shaped? Bloody stupid piece of

designing!!

Anyway, because everything is supposed to be liquid at that stage of the

bowel, things slide past it. When it gets too big, the doctors tell her to

drink 2L of Golyteley a day until the blockage is gone. We take Agarol on a

regular basis to keep things soft & mobile after each flush out. We did our

last flush out during last term last year. I have to make an appointment,

'cause the blockage can now be seen through the skin again.

CF sucks!

Much love to all,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

[Guest guest]

Oh, the joyful topics we CF parents discuss!

Sian has at least 2-3 obstructions a year, and they are always in the cecum.

It's one of my questions for God when I get upstairs - Why in the name of

all that's holy is the cecum hook shaped? Bloody stupid piece of

designing!!

Anyway, because everything is supposed to be liquid at that stage of the

bowel, things slide past it. When it gets too big, the doctors tell her to

drink 2L of Golyteley a day until the blockage is gone. We take Agarol on a

regular basis to keep things soft & mobile after each flush out. We did our

last flush out during last term last year. I have to make an appointment,

'cause the blockage can now be seen through the skin again.

CF sucks!

Much love to all,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

[Guest guest]

lol!! Yes, I remember thinking something like that when Ellie had her

first obstruction - it looks just like a problem waiting to happen.

Its a wonder we all don't have to be " flushed out " from time to time!

> Oh, the joyful topics we CF parents discuss!

>

> Sian has at least 2-3 obstructions a year, and they are always in

the cecum.

> It's one of my questions for God when I get upstairs - Why in the

name of

> all that's holy is the cecum hook shaped? Bloody stupid piece of

> designing!!

>

> Anyway, because everything is supposed to be liquid at that stage

of the

> bowel, things slide past it. When it gets too big, the doctors

tell her to

> drink 2L of Golyteley a day until the blockage is gone. We take

Agarol on a

> regular basis to keep things soft & mobile after each flush out.

We did our

> last flush out during last term last year. I have to make an

appointment,

> 'cause the blockage can now be seen through the skin again.

>

> CF sucks!

>

> Much love to all,

>

>

> -

> Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

> Canberra Australia-

[Guest guest]

So sorry, to hear about Ellie, I hope she is doing well. My son Jack, who is

now 4 1/2 was born with meconium peritonitis, had surgery at 4 hours old,

removed part of his intestines and a colostomy for the first 4 months of his

life. We were told he is at higher risk for the bowel obstruction because of

that history and the subsequent scar tissue. He has been hospitalized for bowel

obstructions 3 times so far. I feel we are constantly on the " poop patrol " .

But, it hasn't affected his absorbtion at all, he weighs 43 lbs. We do keep his

diet high fiber and he is on Reglan.

Kim

Another bowel obstruction ....

My daughter Ellie just turned one, and recently underwent surgery for

her second bowel obstruction (she was born with a strangulated

perforated bowel).

This time they were able to manipulate the mass out to her colon, and

they removed some adhesions that contributed to the problem.

Fortunately she did not lose any more of her small intestine. It was

very, very, very scary for a while because her original surgery

(thought to be the likely site for the second obstruction) was at the

ileus and the fluoroscope showed this blockage began toward the

beginning of the small intestine, so until they opened her up it

looked like her whole intestine was up for grabs.... and believe me

she looked toxic enough.....

I remember when she was born they told me there was 1/20 chance of

another obstruction - is this stat just for persons w/o cf? Does

anyone out there have experience with multiple bowel obstructions?

We are scared to death that this will happen again without such good

results. I want to make sure we are doing everything that can be

done to prevent it.

Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

[Guest guest]

So sorry, to hear about Ellie, I hope she is doing well. My son Jack, who is

now 4 1/2 was born with meconium peritonitis, had surgery at 4 hours old,

removed part of his intestines and a colostomy for the first 4 months of his

life. We were told he is at higher risk for the bowel obstruction because of

that history and the subsequent scar tissue. He has been hospitalized for bowel

obstructions 3 times so far. I feel we are constantly on the " poop patrol " .

But, it hasn't affected his absorbtion at all, he weighs 43 lbs. We do keep his

diet high fiber and he is on Reglan.

Kim

Another bowel obstruction ....

My daughter Ellie just turned one, and recently underwent surgery for

her second bowel obstruction (she was born with a strangulated

perforated bowel).

This time they were able to manipulate the mass out to her colon, and

they removed some adhesions that contributed to the problem.

Fortunately she did not lose any more of her small intestine. It was

very, very, very scary for a while because her original surgery

(thought to be the likely site for the second obstruction) was at the

ileus and the fluoroscope showed this blockage began toward the

beginning of the small intestine, so until they opened her up it

looked like her whole intestine was up for grabs.... and believe me

she looked toxic enough.....

I remember when she was born they told me there was 1/20 chance of

another obstruction - is this stat just for persons w/o cf? Does

anyone out there have experience with multiple bowel obstructions?

We are scared to death that this will happen again without such good

results. I want to make sure we are doing everything that can be

done to prevent it.

Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

[Guest guest]

So sorry, to hear about Ellie, I hope she is doing well. My son Jack, who is

now 4 1/2 was born with meconium peritonitis, had surgery at 4 hours old,

removed part of his intestines and a colostomy for the first 4 months of his

life. We were told he is at higher risk for the bowel obstruction because of

that history and the subsequent scar tissue. He has been hospitalized for bowel

obstructions 3 times so far. I feel we are constantly on the " poop patrol " .

But, it hasn't affected his absorbtion at all, he weighs 43 lbs. We do keep his

diet high fiber and he is on Reglan.

Kim

Another bowel obstruction ....

My daughter Ellie just turned one, and recently underwent surgery for

her second bowel obstruction (she was born with a strangulated

perforated bowel).

This time they were able to manipulate the mass out to her colon, and

they removed some adhesions that contributed to the problem.

Fortunately she did not lose any more of her small intestine. It was

very, very, very scary for a while because her original surgery

(thought to be the likely site for the second obstruction) was at the

ileus and the fluoroscope showed this blockage began toward the

beginning of the small intestine, so until they opened her up it

looked like her whole intestine was up for grabs.... and believe me

she looked toxic enough.....

I remember when she was born they told me there was 1/20 chance of

another obstruction - is this stat just for persons w/o cf? Does

anyone out there have experience with multiple bowel obstructions?

We are scared to death that this will happen again without such good

results. I want to make sure we are doing everything that can be

done to prevent it.

Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

[Guest guest]

--

I'm glad to hear your Jack is doing well, despite the frequent

obstructions. 43 lbs is great!! I have a 4 1/2 year old also named

Jack w/o cf, and I'm not sure he weighs that much!! What is Reglan?

We have been so focussed on a high fat high protein diet, we haven't

been concerned about fiber because so much of it is low cal. Maybe

we need to change our strategy a little?

- In cfparents , " " wrote:

> So sorry, to hear about Ellie, I hope she is doing well. My son

Jack, who is now 4 1/2 was born with meconium peritonitis, had

surgery at 4 hours old, removed part of his intestines and a

colostomy for the first 4 months of his life. We were told he is at

higher risk for the bowel obstruction because of that history and the

subsequent scar tissue. He has been hospitalized for bowel

obstructions 3 times so far. I feel we are constantly on the " poop

patrol " . But, it hasn't affected his absorbtion at all, he weighs 43

lbs. We do keep his diet high fiber and he is on Reglan.

>

> Kim

> Another bowel obstruction ....

>

>

> My daughter Ellie just turned one, and recently underwent surgery

for

> her second bowel obstruction (she was born with a strangulated

> perforated bowel).

>

> This time they were able to manipulate the mass out to her colon,

and

> they removed some adhesions that contributed to the problem.

> Fortunately she did not lose any more of her small intestine. It

was

> very, very, very scary for a while because her original surgery

> (thought to be the likely site for the second obstruction) was at

the

> ileus and the fluoroscope showed this blockage began toward the

> beginning of the small intestine, so until they opened her up it

> looked like her whole intestine was up for grabs.... and believe

me

> she looked toxic enough.....

>

> I remember when she was born they told me there was 1/20 chance

of

> another obstruction - is this stat just for persons w/o cf? Does

> anyone out there have experience with multiple bowel obstructions?

>

> We are scared to death that this will happen again without such

good

> results. I want to make sure we are doing everything that can be

> done to prevent it.

>

>

> Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

>

>

>

>

[Guest guest]

--

I'm glad to hear your Jack is doing well, despite the frequent

obstructions. 43 lbs is great!! I have a 4 1/2 year old also named

Jack w/o cf, and I'm not sure he weighs that much!! What is Reglan?

We have been so focussed on a high fat high protein diet, we haven't

been concerned about fiber because so much of it is low cal. Maybe

we need to change our strategy a little?

- In cfparents , " " wrote:

> So sorry, to hear about Ellie, I hope she is doing well. My son

Jack, who is now 4 1/2 was born with meconium peritonitis, had

surgery at 4 hours old, removed part of his intestines and a

colostomy for the first 4 months of his life. We were told he is at

higher risk for the bowel obstruction because of that history and the

subsequent scar tissue. He has been hospitalized for bowel

obstructions 3 times so far. I feel we are constantly on the " poop

patrol " . But, it hasn't affected his absorbtion at all, he weighs 43

lbs. We do keep his diet high fiber and he is on Reglan.

>

> Kim

> Another bowel obstruction ....

>

>

> My daughter Ellie just turned one, and recently underwent surgery

for

> her second bowel obstruction (she was born with a strangulated

> perforated bowel).

>

> This time they were able to manipulate the mass out to her colon,

and

> they removed some adhesions that contributed to the problem.

> Fortunately she did not lose any more of her small intestine. It

was

> very, very, very scary for a while because her original surgery

> (thought to be the likely site for the second obstruction) was at

the

> ileus and the fluoroscope showed this blockage began toward the

> beginning of the small intestine, so until they opened her up it

> looked like her whole intestine was up for grabs.... and believe

me

> she looked toxic enough.....

>

> I remember when she was born they told me there was 1/20 chance

of

> another obstruction - is this stat just for persons w/o cf? Does

> anyone out there have experience with multiple bowel obstructions?

>

> We are scared to death that this will happen again without such

good

> results. I want to make sure we are doing everything that can be

> done to prevent it.

>

>

> Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

>

>

>

>

[Guest guest]

We try to do a lot of fresh fruit and high fiber bread and lots of fluid.

Reglan is used for reflux(I think), we use it because it increases the mobility

in the intestines, so he is less likely for an obstruction. Don't you just love

the name Jack? I think it is such a great boy's name and it is a great adult

name too! Our's is a , nicknamed Jack- is your son a or a Jack?

Kim

Another bowel obstruction ....

>

>

> My daughter Ellie just turned one, and recently underwent surgery

for

> her second bowel obstruction (she was born with a strangulated

> perforated bowel).

>

> This time they were able to manipulate the mass out to her colon,

and

> they removed some adhesions that contributed to the problem.

> Fortunately she did not lose any more of her small intestine. It

was

> very, very, very scary for a while because her original surgery

> (thought to be the likely site for the second obstruction) was at

the

> ileus and the fluoroscope showed this blockage began toward the

> beginning of the small intestine, so until they opened her up it

> looked like her whole intestine was up for grabs.... and believe

me

> she looked toxic enough.....

>

> I remember when she was born they told me there was 1/20 chance

of

> another obstruction - is this stat just for persons w/o cf? Does

> anyone out there have experience with multiple bowel obstructions?

>

> We are scared to death that this will happen again without such

good

> results. I want to make sure we are doing everything that can be

> done to prevent it.

>

>

> Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

>

>

>

>

[Guest guest]

We try to do a lot of fresh fruit and high fiber bread and lots of fluid.

Reglan is used for reflux(I think), we use it because it increases the mobility

in the intestines, so he is less likely for an obstruction. Don't you just love

the name Jack? I think it is such a great boy's name and it is a great adult

name too! Our's is a , nicknamed Jack- is your son a or a Jack?

Kim

Another bowel obstruction ....

>

>

> My daughter Ellie just turned one, and recently underwent surgery

for

> her second bowel obstruction (she was born with a strangulated

> perforated bowel).

>

> This time they were able to manipulate the mass out to her colon,

and

> they removed some adhesions that contributed to the problem.

> Fortunately she did not lose any more of her small intestine. It

was

> very, very, very scary for a while because her original surgery

> (thought to be the likely site for the second obstruction) was at

the

> ileus and the fluoroscope showed this blockage began toward the

> beginning of the small intestine, so until they opened her up it

> looked like her whole intestine was up for grabs.... and believe

me

> she looked toxic enough.....

>

> I remember when she was born they told me there was 1/20 chance

of

> another obstruction - is this stat just for persons w/o cf? Does

> anyone out there have experience with multiple bowel obstructions?

>

> We are scared to death that this will happen again without such

good

> results. I want to make sure we are doing everything that can be

> done to prevent it.

>

>

> Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

>

>

>

>

[Guest guest]

We try to do a lot of fresh fruit and high fiber bread and lots of fluid.

Reglan is used for reflux(I think), we use it because it increases the mobility

in the intestines, so he is less likely for an obstruction. Don't you just love

the name Jack? I think it is such a great boy's name and it is a great adult

name too! Our's is a , nicknamed Jack- is your son a or a Jack?

Kim

Another bowel obstruction ....

>

>

> My daughter Ellie just turned one, and recently underwent surgery

for

> her second bowel obstruction (she was born with a strangulated

> perforated bowel).

>

> This time they were able to manipulate the mass out to her colon,

and

> they removed some adhesions that contributed to the problem.

> Fortunately she did not lose any more of her small intestine. It

was

> very, very, very scary for a while because her original surgery

> (thought to be the likely site for the second obstruction) was at

the

> ileus and the fluoroscope showed this blockage began toward the

> beginning of the small intestine, so until they opened her up it

> looked like her whole intestine was up for grabs.... and believe

me

> she looked toxic enough.....

>

> I remember when she was born they told me there was 1/20 chance

of

> another obstruction - is this stat just for persons w/o cf? Does

> anyone out there have experience with multiple bowel obstructions?

>

> We are scared to death that this will happen again without such

good

> results. I want to make sure we are doing everything that can be

> done to prevent it.

>

>

> Mom to , 6 w/o cf, Jack, 4 w/o cf and Eleanor, 1 w/cf

>

>

>

>