new to diet- day 4 with 5 yr old child with autism

[Guest guest]

Hi-

We're new to the list- and to the diet. I could really use some input. I've got

a almost 5 yr old boy- diagnosed with regressive autism at age 2. He's been GFCF

and soy free for the past 2.5 years......with pretty impressive initial

improvements......then we started seeing regressions across the

board........We've been doing DAN (supplements/chelations.....for 2 years also.)

has had long long term chronic yeast problems......since infancy.( 5 ear

infections before 18 months old.....always followed with antibiotics......always

followed with thrush.....try nystantin....wouldn't work....then we'd give liquid

diflucan. Of course with DAN.....we've done many stool tests......all coming up

with yeast sky high. has had between 3-6 loose nasty stools a day as far

back as I can remember. He's very self limited too with his diet. He has some

major visual and /SI problems with food.....

's diet up till 4 days ago:

Lots of raw fruit......banana,grapes,apples,pears....oranges.....mango....no

berries

Nutbutter /preserve sandwiches on rice breads

ANDI bars(rice protein)

pancakes/french toast

fries

chips

cereal

rice cakes etc. You get the idea. All feeding the problem.

Since we started the diet 4 days ago....

Day 1:

he got a hold of some grape nuts cereal- he was so desperate for carbs I

think.....he scaled the kitchen counters to reach my cereal that he never looked

at before.

And he got a hold of a raw apple and had a few bites......Other than that.- no

food.....only

water and dilluted welches grape juice. He had a nasty greenish bowel movement

on day one.very angry asking for food all day.

DAy 2:

He ate eggs! Just over 2 eggs.....I was floored.....joey doesn't normally even

look at eggs.!

No poops. Very aggressive with me ......did get a hold of a raw pear......again

a few bites.....drinking the same as above.

Day 3

No poops. Refusing all food. Drinking same as above. very lethargic....stayed

mostly on the sofa(very unlike him.....he's usually a tornado.)slight

temperature

Day 4 - today.

Threw up some water when I presented eggs to him in the morning.

slight temperature-ate a tiny bit of applesauce...(willingly)....refused all

other foods.....presented eggs and carrots. very

lethargic.....sleepy......whiney.....drinking same as above.no poops.

Did try 250 mg activated charcoal cap today......not sure if it helped or not.

My child is pretty much non verbal. Functionally non verbal is a better

description actually.

Obviously- it would seem he's going through detox- but without bowel

movements....or vomiting.....where are all these dead/dying microbes/yeast

going?

Also- how can I get my child to eat? He's so picky ...not " typical " picky but

autism picky. Any parents of autistic children out there that could help??I'd

appreciate any and all input from anyone......but children with autism have some

special issues with food so if there are mom's out there ....would love to hear

from you asap. I hate to see my child not eating for 4 days now......

Thanks in advance-

Beth Acree

joey scd day 4

Acree

6416 Sunset Ct.

Tucson, Az. 85708

(520)745-9985 / cell(520)245-9543

[Guest guest]

You may want to try packaged pork rinds (pork and salt). This has

helped my SI son's chewing/eating problem. It's very crunchy so

maybe that will help a little. good luck.

, mom to broderick, 20 months old, ASD, scd 4 months,

>

> Hi-

> We're new to the list- and to the diet. I could really use some

input. I've got a almost 5 yr old boy- diagnosed with regressive

autism at age 2. He's been GFCF and soy free for the past 2.5

years......with pretty impressive initial improvements......then we

started seeing regressions across the board........We've been doing

DAN (supplements/chelations.....for 2 years also.) has had long

long term chronic yeast problems......since infancy.( 5 ear

infections before 18 months old.....always followed with

antibiotics......always followed with thrush.....try

nystantin....wouldn't work....then we'd give liquid diflucan. Of

course with DAN.....we've done many stool tests......all coming up

with yeast sky high. has had between 3-6 loose nasty stools a

day as far back as I can remember. He's very self limited too with

his diet. He has some major visual and /SI problems with food.....

> 's diet up till 4 days ago:

> Lots of raw

fruit......banana,grapes,apples,pears....oranges.....mango....no

berries

> Nutbutter /preserve sandwiches on rice breads

> ANDI bars(rice protein)

> pancakes/french toast

> fries

> chips

> cereal

> rice cakes etc. You get the idea. All feeding the problem.

> Since we started the diet 4 days ago....

> Day 1:

> he got a hold of some grape nuts cereal- he was so desperate for

carbs I think.....he scaled the kitchen counters to reach my cereal

that he never looked at before.

> And he got a hold of a raw apple and had a few bites......Other

than that.- no food.....only

> water and dilluted welches grape juice. He had a nasty greenish

bowel movement on day one.very angry asking for food all day.

> DAy 2:

> He ate eggs! Just over 2 eggs.....I was floored.....joey doesn't

normally even look at eggs.!

> No poops. Very aggressive with me ......did get a hold of a raw

pear......again a few bites.....drinking the same as above.

> Day 3

> No poops. Refusing all food. Drinking same as above. very

lethargic....stayed mostly on the sofa(very unlike him.....he's

usually a tornado.)slight temperature

> Day 4 - today.

> Threw up some water when I presented eggs to him in the morning.

> slight temperature-ate a tiny bit of applesauce...

(willingly)....refused all other foods.....presented eggs and

carrots. very lethargic.....sleepy......whiney.....drinking same as

above.no poops.

> Did try 250 mg activated charcoal cap today......not sure if it

helped or not. My child is pretty much non verbal. Functionally non

verbal is a better description actually.

> Obviously- it would seem he's going through detox- but without

bowel movements....or vomiting.....where are all these dead/dying

microbes/yeast going?

> Also- how can I get my child to eat? He's so

picky ...not " typical " picky but autism picky. Any parents of

autistic children out there that could help??I'd appreciate any and

all input from anyone......but children with autism have some

special issues with food so if there are mom's out there ....would

love to hear from you asap. I hate to see my child not eating for 4

days now......

> Thanks in advance-

> Beth Acree

> joey scd day 4

>

> Acree

> 6416 Sunset Ct.

> Tucson, Az. 85708

> (520)745-9985 / cell(520)245-9543

>

>

>

[Guest guest]

Hi ,

I'm not an expert on SCD, but my son has been on it since Aug. I've been

through some of what you are going through.

Don't give up!!!!

JOSEPH ACREE acree603@...> wrote:

Hi-

We're new to the list- and to the diet. I could really use some input. I've got

a almost 5 yr old boy- diagnosed with regressive autism at age 2. He's been GFCF

and soy free for the past 2.5 years......with pretty impressive initial

improvements......then we started seeing regressions across the

board........We've been doing DAN (supplements/chelations.....for 2 years also.)

has had long long term chronic yeast problems......since infancy.( 5 ear

infections before 18 months old.....always followed with antibiotics......always

followed with thrush.....try nystantin....wouldn't work....then we'd give liquid

diflucan. Of course with DAN.....we've done many stool tests......all coming up

with yeast sky high. has had between 3-6 loose nasty stools a day as far

back as I can remember. He's very self limited too with his diet. He has some

major visual and /SI problems with food.....

's diet up till 4 days ago:

Lots of raw fruit......banana,grapes,apples,pears....oranges.....mango....no

berries

Nutbutter /preserve sandwiches on rice breads

ANDI bars(rice protein)

pancakes/french toast

fries

chips

cereal

rice cakes etc. You get the idea. All feeding the problem.

Since we started the diet 4 days ago....

Day 1:

he got a hold of some grape nuts cereal- he was so desperate for carbs I

think.....he scaled the kitchen counters to reach my cereal that he never looked

at before.

And he got a hold of a raw apple and had a few bites......Other than that.- no

food.....only

water and dilluted welches grape juice. He had a nasty greenish bowel movement

on day one.very angry asking for food all day.

DAy 2:

He ate eggs! Just over 2 eggs.....I was floored.....joey doesn't normally even

look at eggs.!

No poops. Very aggressive with me ......did get a hold of a raw pear......again

a few bites.....drinking the same as above.

Day 3

No poops. Refusing all food. Drinking same as above. very lethargic....stayed

mostly on the sofa(very unlike him.....he's usually a tornado.)slight

temperature

Day 4 - today.

Threw up some water when I presented eggs to him in the morning.

slight temperature-ate a tiny bit of applesauce...(willingly)....refused all

other foods.....presented eggs and carrots. very

lethargic.....sleepy......whiney.....drinking same as above.no poops.

Did try 250 mg activated charcoal cap today......not sure if it helped or not.

My child is pretty much non verbal. Functionally non verbal is a better

description actually.

Obviously- it would seem he's going through detox- but without bowel

movements....or vomiting.....where are all these dead/dying microbes/yeast

going?

Also- how can I get my child to eat? He's so picky ...not " typical " picky but

autism picky. Any parents of autistic children out there that could help??I'd

appreciate any and all input from anyone......but children with autism have some

special issues with food so if there are mom's out there ....would love to hear

from you asap. I hate to see my child not eating for 4 days now......

Thanks in advance-

Beth Acree

joey scd day 4

Acree

6416 Sunset Ct.

Tucson, Az. 85708

(520)745-9985 / cell(520)245-9543

[Guest guest]

Hi ,

I'm not an expert on SCD, but my son has been on it since Aug. I've been

through some of what you are going through.

Don't give up!!!!

JOSEPH ACREE acree603@...> wrote:

Hi-

We're new to the list- and to the diet. I could really use some input. I've got

a almost 5 yr old boy- diagnosed with regressive autism at age 2. He's been GFCF

and soy free for the past 2.5 years......with pretty impressive initial

improvements......then we started seeing regressions across the

board........We've been doing DAN (supplements/chelations.....for 2 years also.)

has had long long term chronic yeast problems......since infancy.( 5 ear

infections before 18 months old.....always followed with antibiotics......always

followed with thrush.....try nystantin....wouldn't work....then we'd give liquid

diflucan. Of course with DAN.....we've done many stool tests......all coming up

with yeast sky high. has had between 3-6 loose nasty stools a day as far

back as I can remember. He's very self limited too with his diet. He has some

major visual and /SI problems with food.....

's diet up till 4 days ago:

Lots of raw fruit......banana,grapes,apples,pears....oranges.....mango....no

berries

Nutbutter /preserve sandwiches on rice breads

ANDI bars(rice protein)

pancakes/french toast

fries

chips

cereal

rice cakes etc. You get the idea. All feeding the problem.

Since we started the diet 4 days ago....

Day 1:

he got a hold of some grape nuts cereal- he was so desperate for carbs I

think.....he scaled the kitchen counters to reach my cereal that he never looked

at before.

And he got a hold of a raw apple and had a few bites......Other than that.- no

food.....only

water and dilluted welches grape juice. He had a nasty greenish bowel movement

on day one.very angry asking for food all day.

DAy 2:

He ate eggs! Just over 2 eggs.....I was floored.....joey doesn't normally even

look at eggs.!

No poops. Very aggressive with me ......did get a hold of a raw pear......again

a few bites.....drinking the same as above.

Day 3

No poops. Refusing all food. Drinking same as above. very lethargic....stayed

mostly on the sofa(very unlike him.....he's usually a tornado.)slight

temperature

Day 4 - today.

Threw up some water when I presented eggs to him in the morning.

slight temperature-ate a tiny bit of applesauce...(willingly)....refused all

other foods.....presented eggs and carrots. very

lethargic.....sleepy......whiney.....drinking same as above.no poops.

Did try 250 mg activated charcoal cap today......not sure if it helped or not.

My child is pretty much non verbal. Functionally non verbal is a better

description actually.

Obviously- it would seem he's going through detox- but without bowel

movements....or vomiting.....where are all these dead/dying microbes/yeast

going?

Also- how can I get my child to eat? He's so picky ...not " typical " picky but

autism picky. Any parents of autistic children out there that could help??I'd

appreciate any and all input from anyone......but children with autism have some

special issues with food so if there are mom's out there ....would love to hear

from you asap. I hate to see my child not eating for 4 days now......

Thanks in advance-

Beth Acree

joey scd day 4

Acree

6416 Sunset Ct.

Tucson, Az. 85708

(520)745-9985 / cell(520)245-9543

[Guest guest]

Hi and welcome.

I am pretty knew to all this also but I am going to share what we

have done so far with our family.

For us this had to be a family thing. We all are following SCD. I

have cleaned out my house of any infringements that I can find.

Our 6 yr old daughter has mouth sensory issues. I have had to make

sure that anything I baked the flour is extreemly fine. This has

helped. She won't eat any fruit or veggies but I do get by with

sneeking them in once in a while.

The one thing that our Neurodevelopementalist who recommended this

to us told us was to make sure they stay hydrated. Now my children

are not autistic but do have sensory issues.

I also let them eat to start with what they wanted that was SCD

legal. We are into it now 2 wks and have gained many dishes that

they both like.

Sandy M.

Whole family on SCD for 13 days in support of our youngest son who

rages. We think we are gaining.

>

> Hi-

> We're new to the list- and to the diet. I could really use some

input. I've got a almost 5 yr old boy- diagnosed with regressive

autism at age 2. He's been GFCF and soy free for the past 2.5

years......with pretty impressive initial improvements......then we

started seeing regressions across the board........We've been doing

DAN (supplements/chelations.....for 2 years also.) has had long

long term chronic yeast problems......since infancy.( 5 ear

infections before 18 months old.....always followed with

antibiotics......always followed with thrush.....try

nystantin....wouldn't work....then we'd give liquid diflucan. Of

course with DAN.....we've done many stool tests......all coming up

with yeast sky high. has had between 3-6 loose nasty stools a

day as far back as I can remember. He's very self limited too with

his diet. He has some major visual and /SI problems with food.....

> 's diet up till 4 days ago:

> Lots of raw

fruit......banana,grapes,apples,pears....oranges.....mango....no

berries

> Nutbutter /preserve sandwiches on rice breads

> ANDI bars(rice protein)

> pancakes/french toast

> fries

> chips

> cereal

> rice cakes etc. You get the idea. All feeding the problem.

> Since we started the diet 4 days ago....

> Day 1:

> he got a hold of some grape nuts cereal- he was so desperate for

carbs I think.....he scaled the kitchen counters to reach my cereal

that he never looked at before.

> And he got a hold of a raw apple and had a few bites......Other

than that.- no food.....only

> water and dilluted welches grape juice. He had a nasty greenish

bowel movement on day one.very angry asking for food all day.

> DAy 2:

> He ate eggs! Just over 2 eggs.....I was floored.....joey doesn't

normally even look at eggs.!

> No poops. Very aggressive with me ......did get a hold of a raw

pear......again a few bites.....drinking the same as above.

> Day 3

> No poops. Refusing all food. Drinking same as above. very

lethargic....stayed mostly on the sofa(very unlike him.....he's

usually a tornado.)slight temperature

> Day 4 - today.

> Threw up some water when I presented eggs to him in the morning.

> slight temperature-ate a tiny bit of applesauce...

(willingly)....refused all other foods.....presented eggs and

carrots. very lethargic.....sleepy......whiney.....drinking same as

above.no poops.

> Did try 250 mg activated charcoal cap today......not sure if it

helped or not. My child is pretty much non verbal. Functionally non

verbal is a better description actually.

> Obviously- it would seem he's going through detox- but without

bowel movements....or vomiting.....where are all these dead/dying

microbes/yeast going?

> Also- how can I get my child to eat? He's so

picky ...not " typical " picky but autism picky. Any parents of

autistic children out there that could help??I'd appreciate any and

all input from anyone......but children with autism have some

special issues with food so if there are mom's out there ....would

love to hear from you asap. I hate to see my child not eating for 4

days now......

> Thanks in advance-

> Beth Acree

> joey scd day 4

>

> Acree

> 6416 Sunset Ct.

> Tucson, Az. 85708

> (520)745-9985 / cell(520)245-9543

>

>

>