Day 23 update and seeking advice

[Guest guest]

We are on day 23 of our extremely limited version of SCD. My son is

3 and has autism, lymphoid nodular hyperplasia, gut inflammation and

severe food allergies.

Ou version of the SCD is nut-free, milk-free, egg-free and fruit-

free (except for a few extremely diluted SCD-legal fruit juices for

his probiotics). We eat only a few meats and veggies. We were

actually disaccharide-free for several weeks prior to strictly

starting the intro diet. On the intro diet we restricted him to a

few foods and tried some cooked pear and applesauce, but he didn't

tolerate these.

He is on a rotation diet and only tolerates about 10-12 foods. He

eats a set of 3 foods for 2 days, then doesn't eat those foods again

for 5 days. Here are several of his rotation food sets:

Days 1-2:

elk

spinach

zucchini

Days 3-4:

buffalo

brussels sprouts

zucchini

Days 4-5:

lamb

squash

asparagus

.... and so forth.

My son also is currently being treated for yeast (Nystatin,

following Sporinox, following Diflucan). He's also ending a 10-day

IM course of Bacillin for strep (second round of strep since he

began the SCD). He's on 2 forms of probiotic (Klaire's Rhamnosus and

bifidus); they aren't SCD-legal but since he's on antibiotics and

antifungals it doesn't seem prudent to stop them. He's got D-lactate

so we are reluctant to start acidophilus, though I've read what

Elaine has to say about this. He also takes glutamine, B12 nasal

spray, and lauricidin.

My son responded extremely well to the combination of Nystatin and

SCD, which we began within a week of one another. His cognition and

language improved immediately. He has made great strides in his ABA

program. Over the past few days we've seen some other changes,

though. He's become fussy and oppositional for no obvious reason,

and has had some sleep problems and stool changes. I'm not sure what

to make of this.

For two weeks we saw no real difference in his stools except for a

few large, grainy die-off stools about a week into the diet. After

that his stools reverted back to the sticky black or pudding texture

that they usually are. But over the weekend, he had three very large

formed hard stools. One was very difficult for him to pass - he

cried and we eventually gave him a suppository, and when he passed

it there was some blood in it. The next stool was also large and

hard, and it floated. His next stool was also large but not so hard,

and easier to pass.

Last night he woke with stonmach pains off and on all night. This

morning he pooped again right after breakfast. He doesn't normally

poop before school. It was also large and formed and very dark

(probably a combination of beets and spinach ... his poops usually

look like whatever food he's been eating).

So, to summarize, he is now pooping a LOT. The stools are large and

formed and sometimes very hard. Is this normal?

How are we doing? Any advice? Is what we're seeing typical after

about 3-4 weeks on the diet?

Thanks in advance!

Suzanne

[Guest guest]

Sheila, thank you!!!!! It is little nuggets of information like this

that keep me coming back here, finding the time to read through

everyone's posts.

> After a long period of diarrhea when my stools started to form

again

> it caused stomach pain.

This makes sense to me. The timeline fits. I think that's what's

going on with him. I was able to get him to point to where the pain

was Saturday night, and he indicated the sides of his belly, just

above his hip bones - sort of where you'd think of with large bowel

pain.

>If they get

> harder or blood appears again let us know.

School just phoned - he passed a blood clot. This makes me nervous,

so we're taking him to the ped today. I'll post separately to get

feedback on this.

>> Will you be continuing on the yeast treatment a while longer?

He has about 15 days of Nystatin left and then the DAN! wants us to

rotate to a different antifungal.

> Have you considered enzymes? Since his diet is so limited they

may help

I am thinking about enzymes. He's not breaking down the fiber in his

food very well yet. I need to find some time to read up on enzymes

to know which one(s) to try. I just can't find the time to do the

reading. I've got an appt. with a DAN! nutritionist Monday who can

hopefully advise on this.

Suzanne

>

> Hi Suzanne,

>

> > We are on day 23 of our extremely limited version of SCD. My son

> is

> > 3 and has autism, lymphoid nodular hyperplasia, gut inflammation

> and

> > severe food allergies.

> >

> > Ou version of the SCD is nut-free, milk-free, egg-free and fruit-

> > free (except for a few extremely diluted SCD-legal fruit juices

> for

> > his probiotics). We eat only a few meats and veggies. We were

> > actually disaccharide-free for several weeks prior to strictly

> > starting the intro diet. On the intro diet we restricted him to

a

> > few foods and tried some cooked pear and applesauce, but he

didn't

> > tolerate these.

> >

> > He is on a rotation diet and only tolerates about 10-12 foods.

He

> > eats a set of 3 foods for 2 days, then doesn't eat those foods

> again

> > for 5 days. Here are several of his rotation food sets:

> >

> > Days 1-2:

> > elk

> > spinach

> > zucchini

> >

> > Days 3-4:

> > buffalo

> > brussels sprouts

> > zucchini

> >

> > Days 4-5:

> > lamb

> > squash

> > asparagus

> >

> > ... and so forth.

> >

> > My son also is currently being treated for yeast (Nystatin,

> > following Sporinox, following Diflucan). He's also ending a 10-

day

> > IM course of Bacillin for strep (second round of strep since he

> > began the SCD). He's on 2 forms of probiotic (Klaire's Rhamnosus

> and

> > bifidus); they aren't SCD-legal but since he's on antibiotics

and

> > antifungals it doesn't seem prudent to stop them. He's got D-

> lactate

> > so we are reluctant to start acidophilus, though I've read what

> > Elaine has to say about this. He also takes glutamine, B12 nasal

> > spray, and lauricidin.

> >

> > My son responded extremely well to the combination of Nystatin

and

> > SCD, which we began within a week of one another. His cognition

> and

> > language improved immediately. He has made great strides in his

> ABA

> > program. Over the past few days we've seen some other changes,

> > though. He's become fussy and oppositional for no obvious

reason,

> > and has had some sleep problems and stool changes. I'm not sure

> what

> > to make of this.

> >

> > For two weeks we saw no real difference in his stools except for

a

> > few large, grainy die-off stools about a week into the diet.

After

> > that his stools reverted back to the sticky black or pudding

> texture

> > that they usually are. But over the weekend, he had three very

> large

> > formed hard stools. One was very difficult for him to pass - he

> > cried and we eventually gave him a suppository, and when he

passed

> > it there was some blood in it. The next stool was also large and

> > hard, and it floated. His next stool was also large but not so

> hard,

> > and easier to pass.

> >

> > Last night he woke with stonmach pains off and on all night.

This

> > morning he pooped again right after breakfast. He doesn't

normally

> > poop before school. It was also large and formed and very dark

> > (probably a combination of beets and spinach ... his poops

usually

> > look like whatever food he's been eating).

> >

> > So, to summarize, he is now pooping a LOT. The stools are large

> and

> > formed and sometimes very hard. Is this normal?

> >

> > How are we doing? Any advice? Is what we're seeing typical after

> > about 3-4 weeks on the diet?

>

> After a long period of diarrhea when my stools started to form

again

> it caused stomach pain. It was transitional and after a few days

it

> lessened and disappeared. It may be an adjustment to the firm

solid

> stool passing through the intestines if it has been a long time

> since he has solid stools (if he ever had solid bm's). If they

get

> harder or blood appears again let us know. If the pains worsen or

> don't dissapate also let us know.

>

> He has a lot of changes going on in his little body.

>

> Will you be continuing on the yeast treatment a while longer?

>

> Have you considered enzymes? Since his diet is so limited they

may

> help/

>

> Sheila, SCD 61 mos, UC 22 yrs

> mom of and

>

[Guest guest]

Sheila, thank you!!!!! It is little nuggets of information like this

that keep me coming back here, finding the time to read through

everyone's posts.

> After a long period of diarrhea when my stools started to form

again

> it caused stomach pain.

This makes sense to me. The timeline fits. I think that's what's

going on with him. I was able to get him to point to where the pain

was Saturday night, and he indicated the sides of his belly, just

above his hip bones - sort of where you'd think of with large bowel

pain.

>If they get

> harder or blood appears again let us know.

School just phoned - he passed a blood clot. This makes me nervous,

so we're taking him to the ped today. I'll post separately to get

feedback on this.

>> Will you be continuing on the yeast treatment a while longer?

He has about 15 days of Nystatin left and then the DAN! wants us to

rotate to a different antifungal.

> Have you considered enzymes? Since his diet is so limited they

may help

I am thinking about enzymes. He's not breaking down the fiber in his

food very well yet. I need to find some time to read up on enzymes

to know which one(s) to try. I just can't find the time to do the

reading. I've got an appt. with a DAN! nutritionist Monday who can

hopefully advise on this.

Suzanne

>

> Hi Suzanne,

>

> > We are on day 23 of our extremely limited version of SCD. My son

> is

> > 3 and has autism, lymphoid nodular hyperplasia, gut inflammation

> and

> > severe food allergies.

> >

> > Ou version of the SCD is nut-free, milk-free, egg-free and fruit-

> > free (except for a few extremely diluted SCD-legal fruit juices

> for

> > his probiotics). We eat only a few meats and veggies. We were

> > actually disaccharide-free for several weeks prior to strictly

> > starting the intro diet. On the intro diet we restricted him to

a

> > few foods and tried some cooked pear and applesauce, but he

didn't

> > tolerate these.

> >

> > He is on a rotation diet and only tolerates about 10-12 foods.

He

> > eats a set of 3 foods for 2 days, then doesn't eat those foods

> again

> > for 5 days. Here are several of his rotation food sets:

> >

> > Days 1-2:

> > elk

> > spinach

> > zucchini

> >

> > Days 3-4:

> > buffalo

> > brussels sprouts

> > zucchini

> >

> > Days 4-5:

> > lamb

> > squash

> > asparagus

> >

> > ... and so forth.

> >

> > My son also is currently being treated for yeast (Nystatin,

> > following Sporinox, following Diflucan). He's also ending a 10-

day

> > IM course of Bacillin for strep (second round of strep since he

> > began the SCD). He's on 2 forms of probiotic (Klaire's Rhamnosus

> and

> > bifidus); they aren't SCD-legal but since he's on antibiotics

and

> > antifungals it doesn't seem prudent to stop them. He's got D-

> lactate

> > so we are reluctant to start acidophilus, though I've read what

> > Elaine has to say about this. He also takes glutamine, B12 nasal

> > spray, and lauricidin.

> >

> > My son responded extremely well to the combination of Nystatin

and

> > SCD, which we began within a week of one another. His cognition

> and

> > language improved immediately. He has made great strides in his

> ABA

> > program. Over the past few days we've seen some other changes,

> > though. He's become fussy and oppositional for no obvious

reason,

> > and has had some sleep problems and stool changes. I'm not sure

> what

> > to make of this.

> >

> > For two weeks we saw no real difference in his stools except for

a

> > few large, grainy die-off stools about a week into the diet.

After

> > that his stools reverted back to the sticky black or pudding

> texture

> > that they usually are. But over the weekend, he had three very

> large

> > formed hard stools. One was very difficult for him to pass - he

> > cried and we eventually gave him a suppository, and when he

passed

> > it there was some blood in it. The next stool was also large and

> > hard, and it floated. His next stool was also large but not so

> hard,

> > and easier to pass.

> >

> > Last night he woke with stonmach pains off and on all night.

This

> > morning he pooped again right after breakfast. He doesn't

normally

> > poop before school. It was also large and formed and very dark

> > (probably a combination of beets and spinach ... his poops

usually

> > look like whatever food he's been eating).

> >

> > So, to summarize, he is now pooping a LOT. The stools are large

> and

> > formed and sometimes very hard. Is this normal?

> >

> > How are we doing? Any advice? Is what we're seeing typical after

> > about 3-4 weeks on the diet?

>

> After a long period of diarrhea when my stools started to form

again

> it caused stomach pain. It was transitional and after a few days

it

> lessened and disappeared. It may be an adjustment to the firm

solid

> stool passing through the intestines if it has been a long time

> since he has solid stools (if he ever had solid bm's). If they

get

> harder or blood appears again let us know. If the pains worsen or

> don't dissapate also let us know.

>

> He has a lot of changes going on in his little body.

>

> Will you be continuing on the yeast treatment a while longer?

>

> Have you considered enzymes? Since his diet is so limited they

may

> help/

>

> Sheila, SCD 61 mos, UC 22 yrs

> mom of and

>

[Guest guest]

Sheila, thank you!!!!! It is little nuggets of information like this

that keep me coming back here, finding the time to read through

everyone's posts.

> After a long period of diarrhea when my stools started to form

again

> it caused stomach pain.

This makes sense to me. The timeline fits. I think that's what's

going on with him. I was able to get him to point to where the pain

was Saturday night, and he indicated the sides of his belly, just

above his hip bones - sort of where you'd think of with large bowel

pain.

>If they get

> harder or blood appears again let us know.

School just phoned - he passed a blood clot. This makes me nervous,

so we're taking him to the ped today. I'll post separately to get

feedback on this.

>> Will you be continuing on the yeast treatment a while longer?

He has about 15 days of Nystatin left and then the DAN! wants us to

rotate to a different antifungal.

> Have you considered enzymes? Since his diet is so limited they

may help

I am thinking about enzymes. He's not breaking down the fiber in his

food very well yet. I need to find some time to read up on enzymes

to know which one(s) to try. I just can't find the time to do the

reading. I've got an appt. with a DAN! nutritionist Monday who can

hopefully advise on this.

Suzanne

>

> Hi Suzanne,

>

> > We are on day 23 of our extremely limited version of SCD. My son

> is

> > 3 and has autism, lymphoid nodular hyperplasia, gut inflammation

> and

> > severe food allergies.

> >

> > Ou version of the SCD is nut-free, milk-free, egg-free and fruit-

> > free (except for a few extremely diluted SCD-legal fruit juices

> for

> > his probiotics). We eat only a few meats and veggies. We were

> > actually disaccharide-free for several weeks prior to strictly

> > starting the intro diet. On the intro diet we restricted him to

a

> > few foods and tried some cooked pear and applesauce, but he

didn't

> > tolerate these.

> >

> > He is on a rotation diet and only tolerates about 10-12 foods.

He

> > eats a set of 3 foods for 2 days, then doesn't eat those foods

> again

> > for 5 days. Here are several of his rotation food sets:

> >

> > Days 1-2:

> > elk

> > spinach

> > zucchini

> >

> > Days 3-4:

> > buffalo

> > brussels sprouts

> > zucchini

> >

> > Days 4-5:

> > lamb

> > squash

> > asparagus

> >

> > ... and so forth.

> >

> > My son also is currently being treated for yeast (Nystatin,

> > following Sporinox, following Diflucan). He's also ending a 10-

day

> > IM course of Bacillin for strep (second round of strep since he

> > began the SCD). He's on 2 forms of probiotic (Klaire's Rhamnosus

> and

> > bifidus); they aren't SCD-legal but since he's on antibiotics

and

> > antifungals it doesn't seem prudent to stop them. He's got D-

> lactate

> > so we are reluctant to start acidophilus, though I've read what

> > Elaine has to say about this. He also takes glutamine, B12 nasal

> > spray, and lauricidin.

> >

> > My son responded extremely well to the combination of Nystatin

and

> > SCD, which we began within a week of one another. His cognition

> and

> > language improved immediately. He has made great strides in his

> ABA

> > program. Over the past few days we've seen some other changes,

> > though. He's become fussy and oppositional for no obvious

reason,

> > and has had some sleep problems and stool changes. I'm not sure

> what

> > to make of this.

> >

> > For two weeks we saw no real difference in his stools except for

a

> > few large, grainy die-off stools about a week into the diet.

After

> > that his stools reverted back to the sticky black or pudding

> texture

> > that they usually are. But over the weekend, he had three very

> large

> > formed hard stools. One was very difficult for him to pass - he

> > cried and we eventually gave him a suppository, and when he

passed

> > it there was some blood in it. The next stool was also large and

> > hard, and it floated. His next stool was also large but not so

> hard,

> > and easier to pass.

> >

> > Last night he woke with stonmach pains off and on all night.

This

> > morning he pooped again right after breakfast. He doesn't

normally

> > poop before school. It was also large and formed and very dark

> > (probably a combination of beets and spinach ... his poops

usually

> > look like whatever food he's been eating).

> >

> > So, to summarize, he is now pooping a LOT. The stools are large

> and

> > formed and sometimes very hard. Is this normal?

> >

> > How are we doing? Any advice? Is what we're seeing typical after

> > about 3-4 weeks on the diet?

>

> After a long period of diarrhea when my stools started to form

again

> it caused stomach pain. It was transitional and after a few days

it

> lessened and disappeared. It may be an adjustment to the firm

solid

> stool passing through the intestines if it has been a long time

> since he has solid stools (if he ever had solid bm's). If they

get

> harder or blood appears again let us know. If the pains worsen or

> don't dissapate also let us know.

>

> He has a lot of changes going on in his little body.

>

> Will you be continuing on the yeast treatment a while longer?

>

> Have you considered enzymes? Since his diet is so limited they

may

> help/

>

> Sheila, SCD 61 mos, UC 22 yrs

> mom of and

>