Re: Re: recommended tests

[Guest guest]

Thanks for this info. I need the details. My son sounds a little like your

Kiki except that my son, after treatment for anemia, does quite well. He gains

steadily but hasn't jumped back up on the growth chart. Some of this is what is

considered normal and no doc has ever told me that he looks off. He has had

lots of energy since anemia days and poops are just either big and dry or soft

and mushy. He sometimes has undigested foods but not as often as when he was

little and not chewing things well. He never has really had undigested fats in

his bms. He looks thin but super healthy.

This is where I get lost between the cracks because he just seems healthy

though I think no pooping is bad for a person and because the last time we went

on the diet he gained a pound in less than a month!

gwen

Bunce ajbunce@...> wrote:

Thought I would share again.......after spending hundreds of dollar for the

DNA test...KiKi came back negative! At this time she was only gaining 3 ounces

a month (breast feeding 14 time a day and eating non stop!) yet not gaining

weight, had steatorrhea (undigested fat and food in her stools), low albumin

(low protein) and was border line diabetic!.....the pediatrician said that this

was Celiac Disease...that she didn't care what these DNA tests or Celiac Panel

said! That she was to weak/thin/sick to be put through a biopsy and EGD testing

(gold standard) that she was " CONFIRMED " ! That to put her through any more

tests would be " child abuse! " ...her doctor truly said this! Yet again I tell

you guys...the gluten free diet did not work, nor did GF/CF!!!! This is the only

thing that has worked the best...experimented with many ways of

eating.....SCDIET is the only thing that is working the miracle we wanted! For

some of us the confirmation comes when you see the changes to the

better! My husband and I are the only ones that where confirmed with " gold

standard " of testing....and again our celiac panel was negative...and again the

GF die did not work!

Elaine explains everything......in the " Celiac Story " in her BTVC book...I urge

us all to review!

Antoinette (day 28 entire family SCD/Celiac disease/malabsorption/leaky

gut....neurological problems because of it....and healing)

Re: recommended tests

Gwen,

There is a genetic screening for Celiac, but it is not 100% reliable.

Even if it is positive, it doesn't " prove " that someone has Celaic

disease. If it is negative, it doesn't completely rule out the

possibility.

I don't think that a doctor will give a definitive Celiac diagnosis

without the biopsy.

And to do that, I am pretty certain that the person will have to go

back to eating a regular diet for an extended period of time (6 weeks

I think).

Jody

mom to -7 and -9

SCD 1/03

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.infohttp://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.comhttp://www.pecanbread.com/>