Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Patty, if it was me, I'd go for the pancreatectomy. I know it's a bigger surgery, but it's more likely to give her normalcy in her life. She won't be diabetic, but she will have to take enzymes for the rest of her life, but she also shouldn't be in pain. I don't qualify for it as I'm a diabetic already so I have no islet cells left. Get it done while Cassie still has some islet cells left. Again, this is my personal opinion since Cassie has no anatomical problems to fix in the pancreas, so why do it?. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Patty, if it was me, I'd go for the pancreatectomy. I know it's a bigger surgery, but it's more likely to give her normalcy in her life. She won't be diabetic, but she will have to take enzymes for the rest of her life, but she also shouldn't be in pain. I don't qualify for it as I'm a diabetic already so I have no islet cells left. Get it done while Cassie still has some islet cells left. Again, this is my personal opinion since Cassie has no anatomical problems to fix in the pancreas, so why do it?. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Patty, if it was me, I'd go for the pancreatectomy. I know it's a bigger surgery, but it's more likely to give her normalcy in her life. She won't be diabetic, but she will have to take enzymes for the rest of her life, but she also shouldn't be in pain. I don't qualify for it as I'm a diabetic already so I have no islet cells left. Get it done while Cassie still has some islet cells left. Again, this is my personal opinion since Cassie has no anatomical problems to fix in the pancreas, so why do it?. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 Kimber, Glad your back I missed you! That's were everyone head is right now(the family) But more impartantly it's what Cassie wants - She says after the surgery and recoverey period her pain will be over - so what if I have to take enzymes - at least I won't be in pain without relief, I won't have to stick myself with a needle and maybe people will start treating me like everyone else. Problem we have with thia is when I e-mailed her Dr's about exploring this option neither one of them E-mailed me back at all. This is my second mission for her, the 1st is getting her pain relief now. HAPPY NEW YEAR, hope 2003 is much better for you. Patty in Bangor ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 Kimber, Glad your back I missed you! That's were everyone head is right now(the family) But more impartantly it's what Cassie wants - She says after the surgery and recoverey period her pain will be over - so what if I have to take enzymes - at least I won't be in pain without relief, I won't have to stick myself with a needle and maybe people will start treating me like everyone else. Problem we have with thia is when I e-mailed her Dr's about exploring this option neither one of them E-mailed me back at all. This is my second mission for her, the 1st is getting her pain relief now. HAPPY NEW YEAR, hope 2003 is much better for you. Patty in Bangor ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Patty, you might want to talk to Cassie's doctors about this during an appointment. Not all doctors respond to email (I know my GI doesn't). Don't be discouraged if they don't know what it is or if they say it's experimental. At lot of doctors do. I would recommend contacting Dr. Sutherland and then making a decision on whether or not you intend to pursue this for Cassie. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Patty, you might want to talk to Cassie's doctors about this during an appointment. Not all doctors respond to email (I know my GI doesn't). Don't be discouraged if they don't know what it is or if they say it's experimental. At lot of doctors do. I would recommend contacting Dr. Sutherland and then making a decision on whether or not you intend to pursue this for Cassie. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 , thanks for your input. And info you sent. What does NOLA mean? My husband and I have an appointment with her PCP on Thursday and I am going to broach the subjest with him to start with. I've all ready printed out informationon on it. I'm not sure what procedures I am going to have to go through to get approval from my insurance company and Medicare, especially since I do want Dr Sutherland to do the procedure. After all I hear he is the man. And we live in Maine. My insurance company has been grat so far. Every time I have to notify them of admission to hospital or ER visits they always ask, when are they going to figure out her proble, she's only 12 and should not suffer from thid. Patty in Bangor ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 , thanks for your input. And info you sent. What does NOLA mean? My husband and I have an appointment with her PCP on Thursday and I am going to broach the subjest with him to start with. I've all ready printed out informationon on it. I'm not sure what procedures I am going to have to go through to get approval from my insurance company and Medicare, especially since I do want Dr Sutherland to do the procedure. After all I hear he is the man. And we live in Maine. My insurance company has been grat so far. Every time I have to notify them of admission to hospital or ER visits they always ask, when are they going to figure out her proble, she's only 12 and should not suffer from thid. Patty in Bangor ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Patty, Dr. Sutherland will be glad to answer any questions for you. I had my surgery in October and I am still rexovering and requireing iinsulin. As I probaably will for a few more months... Ii am glad to hear that Cassie is considering this surgery. It is becominb more and more known through out the world should be said as Dr.Sutherland went to china to teach the week after My surgery...the residents are also good about answering questions. If I can find the residents email that she gave me I will send it out to you so you will have that as well also Ann Marie Papas his cordinator will be glad to help... Their website is www,Diabetesinstitute.com there is alot of info on this page about the surgery.... Good Luck snd I hope this will be a very happy new year for you and your faimly... NOLA Quote Link to comment Share on other sites More sharing options...
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