Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In the past year I have had 9 CT Scans. I do get ill from them, but it passes. It isn't the most pleasant testing for me, but death is rare they are basically covering their butts. In fact I'm supposed to have another one done before Feb.12th and I will I was just waiting til after the holidays. It is the best way for the doctors to get a real good look at what is going on. Jenise Mansfield, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In the past year I have had 9 CT Scans. I do get ill from them, but it passes. It isn't the most pleasant testing for me, but death is rare they are basically covering their butts. In fact I'm supposed to have another one done before Feb.12th and I will I was just waiting til after the holidays. It is the best way for the doctors to get a real good look at what is going on. Jenise Mansfield, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In the past year I have had 9 CT Scans. I do get ill from them, but it passes. It isn't the most pleasant testing for me, but death is rare they are basically covering their butts. In fact I'm supposed to have another one done before Feb.12th and I will I was just waiting til after the holidays. It is the best way for the doctors to get a real good look at what is going on. Jenise Mansfield, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 CT scan or no CT scan < > Gabe, Sorry to hear of you diagnosis... I've had quite a few CT scans for my pancreas, none caused further complications or attacks. However, some folks are allergic. If you have shown no previous allergies, I wouldn't worry about it. CT scans are quite easy as pancreatitis tests go. An ERCP is almost guaranteed to cause an attack on the other hand. Good luck, Jerry/ NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 CT scan or no CT scan < > Gabe, Sorry to hear of you diagnosis... I've had quite a few CT scans for my pancreas, none caused further complications or attacks. However, some folks are allergic. If you have shown no previous allergies, I wouldn't worry about it. CT scans are quite easy as pancreatitis tests go. An ERCP is almost guaranteed to cause an attack on the other hand. Good luck, Jerry/ NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 CT scan or no CT scan < > Gabe, Sorry to hear of you diagnosis... I've had quite a few CT scans for my pancreas, none caused further complications or attacks. However, some folks are allergic. If you have shown no previous allergies, I wouldn't worry about it. CT scans are quite easy as pancreatitis tests go. An ERCP is almost guaranteed to cause an attack on the other hand. Good luck, Jerry/ NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 They have to say that to cover their butts....I have had tons of them and have never had a problem CT scan or no CT scan > I am 1 31 yr old male, non-smoker, non-drinker. I had an acute panc > attack about three weeks ago. Dx based on elevated amylase & lipase > & ultrasound results. > > Drs. are not sure if it is chronic, acute, or even panc (have > suggested it might be ulcer that mimics results of panc) > > Two drs suggested CT scan, which is scheduled for monday. As I was > filling out the forms re: potential effects (nausea, vomiting as part > of allergic reaction that, in rare instances, can cause death, at > least according to the waiver form) I am no longer sure the CT scan > is sucha good idea. I am feeling better each day. If the reactions > are caused by iodine, would I know by now if I were allergic to > iodine? Does anyone have any ideas or thoughts on this? > > Thanks, > > Gabe > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 They have to say that to cover their butts....I have had tons of them and have never had a problem CT scan or no CT scan > I am 1 31 yr old male, non-smoker, non-drinker. I had an acute panc > attack about three weeks ago. Dx based on elevated amylase & lipase > & ultrasound results. > > Drs. are not sure if it is chronic, acute, or even panc (have > suggested it might be ulcer that mimics results of panc) > > Two drs suggested CT scan, which is scheduled for monday. As I was > filling out the forms re: potential effects (nausea, vomiting as part > of allergic reaction that, in rare instances, can cause death, at > least according to the waiver form) I am no longer sure the CT scan > is sucha good idea. I am feeling better each day. If the reactions > are caused by iodine, would I know by now if I were allergic to > iodine? Does anyone have any ideas or thoughts on this? > > Thanks, > > Gabe > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 They have to say that to cover their butts....I have had tons of them and have never had a problem CT scan or no CT scan > I am 1 31 yr old male, non-smoker, non-drinker. I had an acute panc > attack about three weeks ago. Dx based on elevated amylase & lipase > & ultrasound results. > > Drs. are not sure if it is chronic, acute, or even panc (have > suggested it might be ulcer that mimics results of panc) > > Two drs suggested CT scan, which is scheduled for monday. As I was > filling out the forms re: potential effects (nausea, vomiting as part > of allergic reaction that, in rare instances, can cause death, at > least according to the waiver form) I am no longer sure the CT scan > is sucha good idea. I am feeling better each day. If the reactions > are caused by iodine, would I know by now if I were allergic to > iodine? Does anyone have any ideas or thoughts on this? > > Thanks, > > Gabe > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In a message dated 1/4/03 12:31:13 AM Eastern Standard Time, lither@... writes: > Does anyone have any ideas or thoughts on this? > Hi Gabe, While there is a very slight hazard, I think the " permission " forms are mostly for law suit protection. I would suggest that the information possibly to be gained from a CT could well be worth the slight risk. Gains in Dx and possibly more effective treatment, or even so much as a baseline for future reference. I would suggest going ahead with the scan on Monday Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In a message dated 1/4/03 12:31:13 AM Eastern Standard Time, lither@... writes: > Does anyone have any ideas or thoughts on this? > Hi Gabe, While there is a very slight hazard, I think the " permission " forms are mostly for law suit protection. I would suggest that the information possibly to be gained from a CT could well be worth the slight risk. Gains in Dx and possibly more effective treatment, or even so much as a baseline for future reference. I would suggest going ahead with the scan on Monday Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In a message dated 1/4/03 12:31:13 AM Eastern Standard Time, lither@... writes: > Does anyone have any ideas or thoughts on this? > Hi Gabe, While there is a very slight hazard, I think the " permission " forms are mostly for law suit protection. I would suggest that the information possibly to be gained from a CT could well be worth the slight risk. Gains in Dx and possibly more effective treatment, or even so much as a baseline for future reference. I would suggest going ahead with the scan on Monday Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Hi Gabe, I´m 37 yo female and also non-smoker and non-drinker. I have CP from a genetic disease called Cystic Fibrosis. About CT Scan I´m not prone to do this test again because I had a real nasty side effect from iodate water that I had to drink, a waterly diahrrea, that lasted a week. I had to stay on bed, so much weakness, pain, meds, etc... I also know people that had a allergic reaction on skin, redish eyes, swelling, etc. The people on lab use to ask if you eat fish, if yes, they say that you are not allergic from iode. I really don´t know. In my case, the nurse and my doc said that my reaction was not uncommon, I may drunk so much idotade water that my intestines did not have so much time to absorb it, and all water was passing by... Look, before the CT Scan no one told me nothing about this side effect, only about allergic reaction. By the way, if this test is necessary for your correct dx, you can try. Good Luck, Liane you wrote: I am 1 31 yr old male, non-smoker, non-drinker. I had an acute panc attack about three weeks ago. Dx based on elevated amylase & lipase & ultrasound results. Drs. are not sure if it is chronic, acute, or even panc (have suggested it might be ulcer that mimics results of panc) Two drs suggested CT scan, which is scheduled for monday. As I was filling out the forms re: potential effects (nausea, vomiting as part of allergic reaction that, in rare instances, can cause death, at least according to the waiver form) I am no longer sure the CT scan is sucha good idea. I am feeling better each day. If the reactions are caused by iodine, would I know by now if I were allergic to iodine? Does anyone have any ideas or thoughts on this? Thanks, Gabe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Hi Gabe, I´m 37 yo female and also non-smoker and non-drinker. I have CP from a genetic disease called Cystic Fibrosis. About CT Scan I´m not prone to do this test again because I had a real nasty side effect from iodate water that I had to drink, a waterly diahrrea, that lasted a week. I had to stay on bed, so much weakness, pain, meds, etc... I also know people that had a allergic reaction on skin, redish eyes, swelling, etc. The people on lab use to ask if you eat fish, if yes, they say that you are not allergic from iode. I really don´t know. In my case, the nurse and my doc said that my reaction was not uncommon, I may drunk so much idotade water that my intestines did not have so much time to absorb it, and all water was passing by... Look, before the CT Scan no one told me nothing about this side effect, only about allergic reaction. By the way, if this test is necessary for your correct dx, you can try. Good Luck, Liane you wrote: I am 1 31 yr old male, non-smoker, non-drinker. I had an acute panc attack about three weeks ago. Dx based on elevated amylase & lipase & ultrasound results. Drs. are not sure if it is chronic, acute, or even panc (have suggested it might be ulcer that mimics results of panc) Two drs suggested CT scan, which is scheduled for monday. As I was filling out the forms re: potential effects (nausea, vomiting as part of allergic reaction that, in rare instances, can cause death, at least according to the waiver form) I am no longer sure the CT scan is sucha good idea. I am feeling better each day. If the reactions are caused by iodine, would I know by now if I were allergic to iodine? Does anyone have any ideas or thoughts on this? Thanks, Gabe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Hi Gabe, I´m 37 yo female and also non-smoker and non-drinker. I have CP from a genetic disease called Cystic Fibrosis. About CT Scan I´m not prone to do this test again because I had a real nasty side effect from iodate water that I had to drink, a waterly diahrrea, that lasted a week. I had to stay on bed, so much weakness, pain, meds, etc... I also know people that had a allergic reaction on skin, redish eyes, swelling, etc. The people on lab use to ask if you eat fish, if yes, they say that you are not allergic from iode. I really don´t know. In my case, the nurse and my doc said that my reaction was not uncommon, I may drunk so much idotade water that my intestines did not have so much time to absorb it, and all water was passing by... Look, before the CT Scan no one told me nothing about this side effect, only about allergic reaction. By the way, if this test is necessary for your correct dx, you can try. Good Luck, Liane you wrote: I am 1 31 yr old male, non-smoker, non-drinker. I had an acute panc attack about three weeks ago. Dx based on elevated amylase & lipase & ultrasound results. Drs. are not sure if it is chronic, acute, or even panc (have suggested it might be ulcer that mimics results of panc) Two drs suggested CT scan, which is scheduled for monday. As I was filling out the forms re: potential effects (nausea, vomiting as part of allergic reaction that, in rare instances, can cause death, at least according to the waiver form) I am no longer sure the CT scan is sucha good idea. I am feeling better each day. If the reactions are caused by iodine, would I know by now if I were allergic to iodine? Does anyone have any ideas or thoughts on this? Thanks, Gabe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Hi Gabe! I am allergic to the iodine dye that they inject during a CT scan. This first time I had a reaction wasn't so pleasant, but it wasn't horrible either. Once they started to administer the dye I felt like I couldn't breath and my heart was racing. The not being able to breath subsided and I was able to finish the test. I thought that was how the dye was supposed to make you feel so I didn't say anything to the tech. But as soon as the test was over and the tech came in I had already started to break out in welts. They asked if I felt OK and I told them how it made me feel during the test. They immediately gave me benadryl and made me stay for about an hour to make sure no further complications arose. This happened in 2000 and I have a many CT's since. Now before the procedure they give me a steroid called Prednisone. I take one 13 hours before procedure, 7 hours and 1 hour. And also have to take benadryl 1 hour before. Doing this prevents the allergic reaction. From what I understand they are using a less potent kind of iodine these days that very very few people are allergic to. I am sure that your CT will go very smoothly. Hope this has helped Sending lots of happy thoughts your way..... Marisa San Diego, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Hi Gabe! I am allergic to the iodine dye that they inject during a CT scan. This first time I had a reaction wasn't so pleasant, but it wasn't horrible either. Once they started to administer the dye I felt like I couldn't breath and my heart was racing. The not being able to breath subsided and I was able to finish the test. I thought that was how the dye was supposed to make you feel so I didn't say anything to the tech. But as soon as the test was over and the tech came in I had already started to break out in welts. They asked if I felt OK and I told them how it made me feel during the test. They immediately gave me benadryl and made me stay for about an hour to make sure no further complications arose. This happened in 2000 and I have a many CT's since. Now before the procedure they give me a steroid called Prednisone. I take one 13 hours before procedure, 7 hours and 1 hour. And also have to take benadryl 1 hour before. Doing this prevents the allergic reaction. From what I understand they are using a less potent kind of iodine these days that very very few people are allergic to. I am sure that your CT will go very smoothly. Hope this has helped Sending lots of happy thoughts your way..... Marisa San Diego, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Actually, most places don't use iodine anymore, but some people still have a reaction I hope this finds you and yours well Mark Re: CT scan or no CT scan > > Hi Gabe! > > I am allergic to the iodine dye that they inject during a CT scan. This > first time I had a reaction wasn't so pleasant, but it wasn't horrible > either. Once they started to administer the dye I felt like I couldn't > breath and my heart was racing. The not being able to breath subsided and I > was able to finish the test. I thought that was how the dye was supposed to > make you feel so I didn't say anything to the tech. But as soon as the test > was over and the tech came in I had already started to break out in welts. > They asked if I felt OK and I told them how it made me feel during the test. > They immediately gave me benadryl and made me stay for about an hour to make > sure no further complications arose. This happened in 2000 and I have a many > CT's since. Now before the procedure they give me a steroid called > Prednisone. I take one 13 hours before procedure, 7 hours and 1 hour. And > also have to take benadryl 1 hour before. Doing this prevents the allergic > reaction. From what I understand they are using a less potent kind of iodine > these days that very very few people are allergic to. I am sure that your CT > will go very smoothly. Hope this has helped > > Sending lots of happy thoughts your way..... > > Marisa > San Diego, CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 I want to say, I have really enjoyed the wide array of responses that this topic generated. It definitely would make it difficult to base a decision on, because the CT and dye affect everyone differently. But, maybe, that fact, alone, could help one make a decision. There are risks with every procedure, and there are less risks when it obviously affects so many people with either good or bad reactions and everywhere in between. This is why it is a good idea to maintain a personal medical record that has a record of what tests / procedures have been done, the results, and how you tolerated the procedure. It could speak for you in the event you are unable to. Good luck, Karyn E. , RN Founder / Executive Director Pancreatitis Association International Corp. Office: Indps, IN, USA 1- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 I want to say, I have really enjoyed the wide array of responses that this topic generated. It definitely would make it difficult to base a decision on, because the CT and dye affect everyone differently. But, maybe, that fact, alone, could help one make a decision. There are risks with every procedure, and there are less risks when it obviously affects so many people with either good or bad reactions and everywhere in between. This is why it is a good idea to maintain a personal medical record that has a record of what tests / procedures have been done, the results, and how you tolerated the procedure. It could speak for you in the event you are unable to. Good luck, Karyn E. , RN Founder / Executive Director Pancreatitis Association International Corp. Office: Indps, IN, USA 1- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 I just wanted to thank everyone who responded to my post. Bottom line, after much thoght and consideration I am (nervously) going forward with the test. I wish this thinh was a little easier to diagnose. Four different doctors, four different opinions. Meanwhile, I am actuallly feeling better and am beginning to think it was an acute attack. My current dr. thinks if the ct scan doesnt show anything we should proceed with an EUS. I think I agree, but at this point I dont think I would go to an ERCP unless another attack happens. Lastly, if this was an acute attack, should I remain on a low fat diet for the rest of my life? Or is that only for chronic sufferers? Thanks again, I think this site is a good source of information. Many of you seem to know more than most of my drs. Gabe > Actually, most places don't use iodine anymore, but some people still have a > reaction > > I hope this finds you and yours well > > Mark > Re: CT scan or no CT scan > > > > > > Hi Gabe! > > > > I am allergic to the iodine dye that they inject during a CT scan. This > > first time I had a reaction wasn't so pleasant, but it wasn't horrible > > either. Once they started to administer the dye I felt like I couldn't > > breath and my heart was racing. The not being able to breath subsided and > I > > was able to finish the test. I thought that was how the dye was supposed > to > > make you feel so I didn't say anything to the tech. But as soon as the > test > > was over and the tech came in I had already started to break out in welts. > > They asked if I felt OK and I told them how it made me feel during the > test. > > They immediately gave me benadryl and made me stay for about an hour to > make > > sure no further complications arose. This happened in 2000 and I have a > many > > CT's since. Now before the procedure they give me a steroid called > > Prednisone. I take one 13 hours before procedure, 7 hours and 1 hour. > And > > also have to take benadryl 1 hour before. Doing this prevents the > allergic > > reaction. From what I understand they are using a less potent kind of > iodine > > these days that very very few people are allergic to. I am sure that your > CT > > will go very smoothly. Hope this has helped > > > > Sending lots of happy thoughts your way..... > > > > Marisa > > San Diego, CA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 I just wanted to thank everyone who responded to my post. Bottom line, after much thoght and consideration I am (nervously) going forward with the test. I wish this thinh was a little easier to diagnose. Four different doctors, four different opinions. Meanwhile, I am actuallly feeling better and am beginning to think it was an acute attack. My current dr. thinks if the ct scan doesnt show anything we should proceed with an EUS. I think I agree, but at this point I dont think I would go to an ERCP unless another attack happens. Lastly, if this was an acute attack, should I remain on a low fat diet for the rest of my life? Or is that only for chronic sufferers? Thanks again, I think this site is a good source of information. Many of you seem to know more than most of my drs. Gabe > Actually, most places don't use iodine anymore, but some people still have a > reaction > > I hope this finds you and yours well > > Mark > Re: CT scan or no CT scan > > > > > > Hi Gabe! > > > > I am allergic to the iodine dye that they inject during a CT scan. This > > first time I had a reaction wasn't so pleasant, but it wasn't horrible > > either. Once they started to administer the dye I felt like I couldn't > > breath and my heart was racing. The not being able to breath subsided and > I > > was able to finish the test. I thought that was how the dye was supposed > to > > make you feel so I didn't say anything to the tech. But as soon as the > test > > was over and the tech came in I had already started to break out in welts. > > They asked if I felt OK and I told them how it made me feel during the > test. > > They immediately gave me benadryl and made me stay for about an hour to > make > > sure no further complications arose. This happened in 2000 and I have a > many > > CT's since. Now before the procedure they give me a steroid called > > Prednisone. I take one 13 hours before procedure, 7 hours and 1 hour. > And > > also have to take benadryl 1 hour before. Doing this prevents the > allergic > > reaction. From what I understand they are using a less potent kind of > iodine > > these days that very very few people are allergic to. I am sure that your > CT > > will go very smoothly. Hope this has helped > > > > Sending lots of happy thoughts your way..... > > > > Marisa > > San Diego, CA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Hi Gabe, Good Question. I have Acute Recurrent Pancreatitis. Fat does not effect me at all. Strange but true. However, I stick to a lower fat diet - nothing extreme, but I don't eat things like fried chicken any more. You will have to experiment to see how you tolerate fat in your diet. Be sure you stay away from booze though. It doesn't matter whether you are acute or chronic. Alcohol will trigger an attack most of the time when you drink it. Also ask when eating out whether cooking wine or sherry or liquor was used in the preparation of your food. I know the alcohol is supposed to flash-off at low temps, but it still effects some of us. Best Regards, Jerry/NC ************************************************* Re: CT scan or no CT scan > > Lastly, if this was an acute attack, should I remain on a low fat > diet for the rest of my life? Or is that only for chronic sufferers? > Gabe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Hi Gabe, Good Question. I have Acute Recurrent Pancreatitis. Fat does not effect me at all. Strange but true. However, I stick to a lower fat diet - nothing extreme, but I don't eat things like fried chicken any more. You will have to experiment to see how you tolerate fat in your diet. Be sure you stay away from booze though. It doesn't matter whether you are acute or chronic. Alcohol will trigger an attack most of the time when you drink it. Also ask when eating out whether cooking wine or sherry or liquor was used in the preparation of your food. I know the alcohol is supposed to flash-off at low temps, but it still effects some of us. Best Regards, Jerry/NC ************************************************* Re: CT scan or no CT scan > > Lastly, if this was an acute attack, should I remain on a low fat > diet for the rest of my life? Or is that only for chronic sufferers? > Gabe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Hi Gabe, Good Question. I have Acute Recurrent Pancreatitis. Fat does not effect me at all. Strange but true. However, I stick to a lower fat diet - nothing extreme, but I don't eat things like fried chicken any more. You will have to experiment to see how you tolerate fat in your diet. Be sure you stay away from booze though. It doesn't matter whether you are acute or chronic. Alcohol will trigger an attack most of the time when you drink it. Also ask when eating out whether cooking wine or sherry or liquor was used in the preparation of your food. I know the alcohol is supposed to flash-off at low temps, but it still effects some of us. Best Regards, Jerry/NC ************************************************* Re: CT scan or no CT scan > > Lastly, if this was an acute attack, should I remain on a low fat > diet for the rest of my life? Or is that only for chronic sufferers? > Gabe Quote Link to comment Share on other sites More sharing options...
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