- Info on Idebenone (spelled it wrong before)

[Guest guest]

Hi

Thanks for your care and concern. I printed out the information from

the Kirkman website on Idebenone here for you. I give Nick one

capsule a day. He is 3.1 years old and 35 pounds.

Kirkman's Idebenone Hypoallergenic Capsules

$25.00 Form: Capsules

Package Size: 60 ct.

Product Class: Specialty Product

Primary Use: An analog of Coenzyme Q-10 possessing powerful

antioxidant properties

Now Shipping

Description:

Idebenone is an analog (variation) of Coenzyme Q10, a powerful anti-

oxidant biochemical known also as " ubiquinone " and most commonly as

CoQ10. This substance is the energy producing unit of our body

cells. Every process in our bodies requires CoQ10. Without CoQ10

life stops.

Benefits of CoQ10 in autism are:

Supplies energy necessary for proper Immune Response

Strong antioxidant power to help prevent free radical damage

Provides energy for the natural detoxification process in the liver

Helps fight off Candida and bacterial and viral infections

Helps correct immunodeficiencies

Enhanced Focus

Mood Elevation

Desire to engage in more conversation

Idebenone supplies all of the same benefits as CoQ10 plus some

distinct advantages based on its more complex chemical structure.

Though very similar in chemical make-up to CoQ10, its longer chain

organic structure gives it extra powerful anti-oxidant properties

making it a more effective " free radical quencher " resulting in less

cell and tissue damage.

Some leading doctors treating autism believe that Idebenone offers

three very distinct advantages over CoQ10 in supplementing

developmental disorders.

Studies show that Idebenone enhances brain structure and function

Its superior anti-oxidant properties protect body organs more

efficiently

Offers protection against excitatory amino acid neurotoxicity from

ingestion of these ingredients through the diet (Examples: MSG,

artificial sweeteners, canned soups and meats, spices, etc.)

Ingredients:

Each capsule supplies

Idebenone

45 mg

NOTE: Kirkman's Idebenone does not contain any wheat, casein, gluten,

sweeteners, corn, yeast, starch, artificial colors or flavors.

Recommended Usage:

According to age Capsules

Younger Children 1-2 capsules daily*

Older Children 2-4 capsules daily*

Adults 2-4 capsules daily*

*Or as directed by your physician

These statements have not been evaluated by the Food & Drug

Administration. This product is not intended to diagnose, treat, cure

or

> ,

>

> That is really wonderful to hear about your son. You had me worried

there for a time.

>

> I had actually thought about giving Co Q 10 to my daughter but the

pharmacist warned me off it. I should have listened to my instincts.

>

> So let us know how much you gave your child.

>

> I was taking Co Q 10 for a while and felt really good on them.

>

> BTW whats the difference between CO Q 10 and Ibendone?

>

> Again I am thrilled for you. Thank God for small wonders!

>

>

> [ ] Update on and his regression

>

>

> Hi group

> Haven't posted in a while - been really busy around here! For

those

> of you who don't remember, NIcholas was a success story on here

who

> went for a bad regression after a trial of Nystatin went terribly

> wrong.

>

> Nick is 3.1 years old, and has been on many supplements since age

22

> months. We started Houston enzymes at age 2.10 (October 2001)

after

> 10 months of strict GFCF diet. Results were spectactular - even

> after we reintroduced gluten and casein into diet. The only

problem

> was that stools continue to be quite loose with a red ring around

> anus. We convinced our doctor to try Nystatin - we built up

super

> slowly to full dose, and added probiotics (ProbioGold) Die-off

(or

> what we thought was die-off) was severe, although we stuck it out

for

> 6 looonnng weeks. Nick was fading on us into severe autism

(where he

> never was before), and we finally jumped ship and stopped the

> Nystatin - no improvement. Stopped the probiotics - no

improvement.

> We stopped all new supplements we had started - no improvement.

I

> have never been so scared in my life. To have a child regress

like

> that with no apparent cause. He was stimming out of control. I

was

> worried it was a late reaction to the gluten and casein, but the

> thought of going back to the diet was horrendous to me. (but we

would

> have if we had to) Nick was eating healthier than he ever had

before,

> largely because I would use one Breton wheat cracker in small

pieces

> each meal as reinforcers, and he would eat ANYTHING for a little

> piece. This regression lasted for about a month after

discontinuing

> the Nystatin and everything else new.

>

> Anyway, to make a long story even longer - we have great news.

Nick

> is back, and he is BETTER than he was before. Everyone involved

in

> his therapy is just amazed. He is starting to use three and four

> word phrases, is flying through new complicated programs in his

> therapy, has calmed down considerably, socialibility is way up

> there. You name it - he has improved, even beyond what he was at

> before the regression. So what did we do? Well, it was a few

> things - Nick started GSE (grapefruit seed extract) at four drops

> with breakfast plus we started a low dose of really plain

acidolphus

> probiotic at 2 million units(we have built up to 4 million

units).

> This led to immediate improvements in his stools. But I think

the

> biggest puzzle piece was something I had not thought of: Nick

had

> finished off his Ibenedone (Co-Enzyme Q10) from Kirkman Labs back

in

> late November, and I had not ordered more, thinking it was not

really

> mentioned in any key protocols (I started it long ago just from a

> supplement schedule another mom was using), and it was so

expensive.

> It did not seem to be key in his supplement program. I have since

> found out that it DOES play a key part:

> - for one thing, it takes a really long time to build up in the

body

> to full effectiveness (and likewise to come down in levels when

you

> stop) SO stopping in November would not even show the effects for

a

> month or so.(which is when he started regressing)

> -helps to keep YEAST in check

> -helps to stop stimming

> -immune system support and many other things too

> Well, as a last ditch effort, we ordered more, and Nick has been

on

> it again for about 10 days now. Amazingly, his stimming is WAY

down

> just since the start of the Ibenodone- he will actually put

puzzle

> pieces in the puzzle again, instead of staring at them in his

hands.

> He follows his sister around again, doing everything she does.

His

> humor is back. His imaginative play is back. His imitation

skills

> are back. His verbal ability is stronger than it was before -

> picking up words we are not teaching him in therapy. Everyone is

so

> surprised. And I have not stopped thanking God! We have been on

a

> nightmare ride since early January, and I can honestly say we

seem to

> be through the worst of it. We ARE sending in a stool sample and

> urine sample to Great Plains next week to get to the bottom of

his

> issues with yeast and bacteria. They told me the Nystatin might

have

> made a bacteria problem worse if that was the problem and not

yeast.

> But we will not know until the results are in. WE have also sent

in

> hair samples to DDI in the last week.

>

> So anyway, to those who remember " worried mom " a month or so ago -

we

> are doing just awesome. Not to mention the fact that we did not

have

> to go back to GFCF diet. He eats everything in sight, including

> apples and peanut butter. (which are new additions that used to

send

> him stimmy) Yay enzymes! I wanted to make sure that anyone who

read

> our posts last month and thought maybe the effect of the enzymes

was

> wearing off - did not happen. They are working fabulously. The

> problem was elsewhere.

>

> Have a great week

>

>

>

>

>