Update on Nystatin/probiotics/charcoal for us

December 28, 2001

Hi group

Similar to others here, we have had problems with die-off from the

yeast attack we have waged in the last month. We started the

Nystatin slooooowwwwwwllly, taking about two and a half weeks to hit

the dose of 1ml 4X per day, which we finally reached in the last week

or so. Stimming increased rapidly, and noted increased hyperactivity

throughout the period. We had not seen this kind of regression since

before we started our interventions a year ago. Scary, and we almost

bailed many times in fear of losing the ground we had made.

Especially got worse after we added 1/2 ProBio Gold, but I really

understand Shaw's position in his book that probiotics are needed to

prevent the bacteria from taking over once the yeast is killed. I

agaonized over seeing him regress. Ring around anus appeared and

disappeared many times. Lots of loose stools, very horrible

smelling. As a last ditch effort at hustling along die-off to its

final conclusion, we added activated charcoal last week. Gave Nick a

full capsule (big mistake) for 2 days in a row at night before bed.

Stopped to see if any changes. Improvement was seen on second day.

Nick became much less focused on his visual stimming, and much more

playful and relaxed again. BUT, he became incredibly constipated for

FOUR days. He has never been constipated in his whole life. Tummy

was hard and distended. On the night of the third day, gave him

suppository - no result. Next night, thankfully, the suppository

worked. Scary. If I use the charcoal again, I would use only 1/4 or

1/2 the capsule per day. So anyway, we seem to have reached calmer

seas with this. Even though Shaw's book said die-off should last

only 2-3 days, we are at a month+ Kirkman advised this can happen

with some kids. We will persevere, and things seem to be getting

better (finally)! I think the charcoal really helped clean out his

system. I will use it again for a few days if stimming continues or

increases. I will be adding in Kirkman's yeast control next week at

half dose to see if we can maintain the good flora and hopefully get

rid of Nystatin in a few months. Thanks for the advice and support

from all of you! This die-off thing is horrible, and I can see why

so many parents quit before fixing the problem.

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