Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Last night I spent 6 hours in the hospital because of a knife stabbing headache, dizzyness,confusion, and blurred vision my most frequent symptoms of my disability from chiari. Anyway, after a cat scan, iv, and a couple of different meds, the resident sent me home with 4 different perscriptions. My regular neurosurgeon surgeon called me this morning and told me that everything was fine with the cat scan and there is no hydrocephilis or any other reason that he can see to have another brain surgery and I " just have to get used to being in pain because some people who have multiple problems like a chiari malformation and a disc injury etc... never get over their pain and will always have it and you seem to be one of them. " Needless to say, I was very upset. Not just upset but angry at him. I thought that if I was his wife or daughter he wouldn't give up so easily. I went to counsel with one of my pastors tonight and I have a different perspective on things now.. IT HELPS ME I HOPE IT WILL HELP YOU TOO!!!!! This doctor is doing everything he humanly knows how. I probably should go to a different specialist for another opinion. ( I already have the apt.) I just have to keep pushing through the trial and wait to see where God brings me. You see I learned that experience is the toughest teacher because you get the test first and the lesson comes afterward.( I wish I could take credit for that, I can't though) Anyway, what my pastor said was to wait and take one day at a time, don't look down the road too far just look to today, otherwise it becomes overwhelming. Try to focus on the positives that are coming out of this whole thing. For Instance: I don't need to feel guilty because my kids have to help me by cooking, cleaning, laundry, etc, I am helping them to become better spouses and helping them to become more independent and they are learning compassion for people with disabilities. & I don't need to feel guilty because I can't play soccer or throw a frisbie or go on a rollercoaster or boat with my kids anymore. I can just replace them with differnt activities that I can do with them like read books, have a family movie night, go have a picnic in the park , things less strenuous. & He also told me that God is using this trial to help draw us closer together as a family. Because we all are working together as a unit. Know what, he's right for the first time in 18 1/2 years of marriage we are working together as a family. I don't have to be supermom or super wife any longer. I handed in my " S " . I could go on and on.... Anyway I wrote all this to say. Look for the rainbow in the clouds and thank God each day that you are alive. Because God will take all the negatives and turn them around and use them for His purpose. I don't know if this has helped anyone but if only one person has gained a different view of their situation it was worth it for me. Thanks for listening. Have a painfree day. Bethfrom long island 22mm herniation decompressed, dura gratf, 1/2 removal of C1 and partial C2, tonsils shrunk, base of skull replaced with titanium plate. September 2002 and lumbar lamenectomy L5-S1 October 2002 Quote Link to comment Share on other sites More sharing options...
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