Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 I have a question. My story is long so I won't go into all of it. When I went for my first mri, they were supposed to get it with and without contrast. Well, they could not get my vein, so they did not do it. I have had two more since and they felt no need to do it with contrast. Is it necessary to have one with contrast? I was just curious. My mris I have had so far were sent to Hopkins to a neurosurgeon. I have not heard from him yet.Not gonna be an easy trip since I live in Alabama. If he can not do anything, I don't know what I will do. Also, does anyone use a wheelchair? I am using one because I kept falling. It has helped but it will not fit in the bathroom so, yes, I fall in there still some. I have also been told that my malformation is not big enough to cause my symptoms....... well, if not that then what?? That is all they can find. This is soooooooooo frustating. I get so depressed I don't know what to do. I have cried soooooooo much, it is unreal. Well, sorry. I went on too much. Thanks ahead of time for your input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 I spent 11 days and a $47,000 hospital bill for them to find my Chiari only to tell me that it wasn't causing my problems, headaches, falling, staggering walk, slurring words, difficulty swallowing, hoarsness, coughing, memory loss, etc. This at one of the best hospitals in the world at the Texas Medical Center. Yet they gave me NO diagnosis! I am only 2-3mm. I then went to another neuro who said, " You have ALL the symptoms! You just got a wimpy nsg. " So he sent me to a nsg who said it can only be Chiari with all those symptoms. And reccommends surgery. Just keep having faith and find a new neurologist who knows the right nsg. Bobbie Texas ? > I have a question. My story is long so I won't go into all of it. > When I went for my first mri, they were supposed to get it with and > without contrast. > Well, they could not get my vein, so they did not do it. > I have had two more since and they felt no need to do it with > contrast. Is it necessary to have one with contrast? I was just > curious. My mris I have had so far were sent to Hopkins to a > neurosurgeon. I have not heard from him yet.Not gonna be an easy > trip since I live in Alabama. If he can not do anything, I don't > know what I will do. Also, does anyone use a wheelchair? I am using > one because I kept falling. It has helped but it will not fit in the > bathroom so, yes, I fall in there still some. > I have also been told that my malformation is not big enough to > cause my symptoms....... well, if not that then what?? That is all > they can find. This is soooooooooo frustating. I get so depressed I > don't know what to do. I have cried soooooooo much, it is unreal. > Well, sorry. I went on too much. Thanks ahead of time for your input. > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 I spent 11 days and a $47,000 hospital bill for them to find my Chiari only to tell me that it wasn't causing my problems, headaches, falling, staggering walk, slurring words, difficulty swallowing, hoarsness, coughing, memory loss, etc. This at one of the best hospitals in the world at the Texas Medical Center. Yet they gave me NO diagnosis! I am only 2-3mm. I then went to another neuro who said, " You have ALL the symptoms! You just got a wimpy nsg. " So he sent me to a nsg who said it can only be Chiari with all those symptoms. And reccommends surgery. Just keep having faith and find a new neurologist who knows the right nsg. Bobbie Texas ? > I have a question. My story is long so I won't go into all of it. > When I went for my first mri, they were supposed to get it with and > without contrast. > Well, they could not get my vein, so they did not do it. > I have had two more since and they felt no need to do it with > contrast. Is it necessary to have one with contrast? I was just > curious. My mris I have had so far were sent to Hopkins to a > neurosurgeon. I have not heard from him yet.Not gonna be an easy > trip since I live in Alabama. If he can not do anything, I don't > know what I will do. Also, does anyone use a wheelchair? I am using > one because I kept falling. It has helped but it will not fit in the > bathroom so, yes, I fall in there still some. > I have also been told that my malformation is not big enough to > cause my symptoms....... well, if not that then what?? That is all > they can find. This is soooooooooo frustating. I get so depressed I > don't know what to do. I have cried soooooooo much, it is unreal. > Well, sorry. I went on too much. Thanks ahead of time for your input. > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 I spent 11 days and a $47,000 hospital bill for them to find my Chiari only to tell me that it wasn't causing my problems, headaches, falling, staggering walk, slurring words, difficulty swallowing, hoarsness, coughing, memory loss, etc. This at one of the best hospitals in the world at the Texas Medical Center. Yet they gave me NO diagnosis! I am only 2-3mm. I then went to another neuro who said, " You have ALL the symptoms! You just got a wimpy nsg. " So he sent me to a nsg who said it can only be Chiari with all those symptoms. And reccommends surgery. Just keep having faith and find a new neurologist who knows the right nsg. Bobbie Texas ? > I have a question. My story is long so I won't go into all of it. > When I went for my first mri, they were supposed to get it with and > without contrast. > Well, they could not get my vein, so they did not do it. > I have had two more since and they felt no need to do it with > contrast. Is it necessary to have one with contrast? I was just > curious. My mris I have had so far were sent to Hopkins to a > neurosurgeon. I have not heard from him yet.Not gonna be an easy > trip since I live in Alabama. If he can not do anything, I don't > know what I will do. Also, does anyone use a wheelchair? I am using > one because I kept falling. It has helped but it will not fit in the > bathroom so, yes, I fall in there still some. > I have also been told that my malformation is not big enough to > cause my symptoms....... well, if not that then what?? That is all > they can find. This is soooooooooo frustating. I get so depressed I > don't know what to do. I have cried soooooooo much, it is unreal. > Well, sorry. I went on too much. Thanks ahead of time for your input. > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.