Re: You're not going to believe this.....

July 30, 2004

Meg, I know how you feel, honey. My kids are only worried about what happens to them if I die or

go into medical incarceration...well, I can't really say that about my youngest, but the others it is

so obvious in the way they don't ask how I am, what they can do to help, etc.

I have stopped making excuses for people, since I was there for them when they needed ME, I feel

it's only fair they be there for me when I need THEM. Course, life just ain't fair, is it? LOL

I'm so glad your little girl is ok. What a day you have had. The only good thing you can say about a

day like that is that you survived, your daughter is ok, and you didn't murder anyone. I'll be praying

for you, and for your family to get some smarts going on here. Loving hugs, MM

July 30, 2004

Oh Meg, that is terrible! I am so sorry that all of those people failed you so terribly! Is there any way that maybe your pc or if you have a rhuemy maybe they could give you something better for pain until this goes away? Thank God you have a neighbor that you can count I. I will be praying for you to have a better weekend okay?

a

Subject: You're not going to believe this.....

HI allSo here is my story sorry its going to be long. Last night I began to feel even worse than normal/ Knew I had a fever 101 degrees, had horrible bathroom issues....and had this excruciating pain in my back. I hadnt slept in two nights either. So I wiated and waited ==

July 30, 2004

Oh Meg, that is terrible! I am so sorry that all of those people failed you so terribly! Is there any way that maybe your pc or if you have a rhuemy maybe they could give you something better for pain until this goes away? Thank God you have a neighbor that you can count I. I will be praying for you to have a better weekend okay?

a

Subject: You're not going to believe this.....

HI allSo here is my story sorry its going to be long. Last night I began to feel even worse than normal/ Knew I had a fever 101 degrees, had horrible bathroom issues....and had this excruciating pain in my back. I hadnt slept in two nights either. So I wiated and waited ==

July 30, 2004

Oh Meg, that is terrible! I am so sorry that all of those people failed you so terribly! Is there any way that maybe your pc or if you have a rhuemy maybe they could give you something better for pain until this goes away? Thank God you have a neighbor that you can count I. I will be praying for you to have a better weekend okay?

a

Subject: You're not going to believe this.....

HI allSo here is my story sorry its going to be long. Last night I began to feel even worse than normal/ Knew I had a fever 101 degrees, had horrible bathroom issues....and had this excruciating pain in my back. I hadnt slept in two nights either. So I wiated and waited ==

July 30, 2004

Oh Meg,

When I see things like this, It makes me remember how lucky I am that my children were all grown, and I was already divorced,and used to living alone, and had Never been able to depend on my family of origin....(they all live in a different part of the country anyway) when I was diagnosed with Lupus.

I'm sorry you were treated so badly when you were so sick by your family, and then to add to your frustration and pain.....the hospital staff.and doctors at the ER.

I'm glad is okay, and THANK GOD for your neighbor .

C.

You're not going to believe this.....

HI allSo here is my story sorry its going to be long. Last night I began to feel even worse than normal/ Knew I had a fever 101 degrees, had horrible bathroom issues....and had this excruciating pain in my back. I hadnt slept in two nights either. So I wiated and waited == took a hot shower, put on icy hot, took about 1,000 advil etc... finally at 5 am I oculdnt take it anymore. I woke up my husband to say - honey I am really sick, I think I need to go to the hospital. So he says " I cant miss work today" Not - are you ok or whats wrong? The problem is who will watch our 2 yr old. So I say you will have to call my mom when you get up (nice to know he has no problem sleeping with all of this) and ask her to watch emily. So....he goes back to sleep = d0oesnt say goodbye, good luck feel better -= not even an I love you. He gets mad at me when I get sick becauise it affects his precious day!!!!So even better - I get to the ER - at this point my fevver is even higher, my pulse was 150 and my BP was 144/94. Not good. So they bring me in quickly thank god. I sat there for two hours before i even saw a doctor. Then this jerk comes in for literally two minutes. Presses on my stomach and asks if this has ever happened before. I try to tell him I have lupus and this is what happens when I get reaLLY sick = plus I am majorly infection prone due to meds. Never asked what meds I take!!!!!! Anyway - he leaves and someone takes some blood, they do a chest xray and leave me hanging for another two hours. Meanwhile I am in agony, cant lay down b/c of my back, cant get comfy at all. So finally a nice nurse comes in says - what the hell are they doing to you - they never even gave you a pillow. All along I am begging for something for pain and they say we want to get some test results back before we give you anything. Another hour passed and finally the nurse brought me two percocet. It took the edge off but didnt really help. Then they give me a shot for nausea and a shot for cramping and thats it. Sent me home saying its stomach flu. I wanst there for the flu. I waS THERE for the pain in my back!!!!Throughout all of this - it turns out that my mom said NO she wouldnt watch so she went to my neighbor (thank god for her) My husband calls me in the ER to bitch about my mom (I dont blame him for that), but still never even asks me if I am ok. I hung up. So I finally get home, thank my neighbor profusely and then falls down the front steep wooden steps (shes only 2), I swear I thought I was going to die. Thanks to god, shes ok - just a bit bruised and shaken but now I am feeling totally horrible - guilty, still in pain and miserable with anger at my so called family.'This whole day the phone has not stopped ringing, my mom called left a msg saying sorry I was so tired I went back to bed , couldnt watch . Needless to say I did not call back I am too freakin mad. My husband called about 20 times but I am not picking up teh phone for anyone, I am too aNGRY ANnd afraid of what I might say.Oh yeah - when I was in the ER, I called my mom 5 times and she never once picked up the phone. NIce huh?So now I sit here, still in pain, still fuming mad thinking I need to divorce my husband and forget my family ever existed. I cant believe that the only person to come through for me today was my neighbor who I have only known for 2 years.Ok sorry to go on and on I just haD TO tell you guys, knew I would find soem sympathetic ears and probably soem of you have some similar stories. Thanks for listening.meg"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

July 30, 2004

Man, you have a family like mine. Mine told me if I wasn't soooo tired

and had to sleep that this " situation " with my daughter would have

NEVER happened. Or she says, " You're not THAT sick. " I only talk to

her once a month now because she is not a priority in my life. Hang in

there kiddo and keep coming here to vent.

Blessings,

In Cali

> HI all

>

> So here is my story sorry its going to be long. Last night I began to

> feel even worse than normal/ Knew I had a fever 101 degrees, had

> horrible bathroom issues....and had this excruciating pain in my

> back. I hadnt slept in two nights either. So I wiated and waited ==

> took a hot shower, put on icy hot, took about 1,000 advil etc...

> finally at 5 am I oculdnt take it anymore. I woke up my husband to

> say - honey I am really sick, I think I need to go to the hospital.

> So he says " I cant miss work today " Not - are you ok or whats wrong?

> The problem is who will watch our 2 yr old. So I say you will have to

> call my mom when you get up (nice to know he has no problem sleeping

> with all of this) and ask her to watch emily. So....he goes back to

> sleep = d0oesnt say goodbye, good luck feel better -= not even an I

> love you. He gets mad at me when I get sick becauise it affects his

> precious day!!!!

>

> So even better - I get to the ER - at this point my fevver is even

> higher, my pulse was 150 and my BP was 144/94. Not good. So they

> bring me in quickly thank god. I sat there for two hours before i

> even saw a doctor. Then this jerk comes in for literally two minutes.

> Presses on my stomach and asks if this has ever happened before. I

> try to tell him I have lupus and this is what happens when I get

> reaLLY sick = plus I am majorly infection prone due to meds. Never

> asked what meds I take!!!!!! Anyway - he leaves and someone takes

> some blood, they do a chest xray and leave me hanging for another two

> hours. Meanwhile I am in agony, cant lay down b/c of my back, cant

> get comfy at all. So finally a nice nurse comes in says - what the

> hell are they doing to you - they never even gave you a pillow. All

> along I am begging for something for pain and they say we want to get

> some test results back before we give you anything. Another hour

> passed and finally the nurse brought me two percocet. It took the

> edge off but didnt really help. Then they give me a shot for nausea

> and a shot for cramping and thats it. Sent me home saying its stomach

> flu. I wanst there for the flu. I waS THERE for the pain in my

> back!!!!

>

> Throughout all of this - it turns out that my mom said NO she wouldnt

> watch so she went to my neighbor (thank god for her) My husband

> calls me in the ER to bitch about my mom (I dont blame him for that),

> but still never even asks me if I am ok. I hung up. So I finally get

> home, thank my neighbor profusely and then falls down the front

> steep wooden steps (shes only 2), I swear I thought I was going to

> die. Thanks to god, shes ok - just a bit bruised and shaken but now I

> am feeling totally horrible - guilty, still in pain and miserable

> with anger at my so called family.

> '

> This whole day the phone has not stopped ringing, my mom called left

> a msg saying sorry I was so tired I went back to bed , couldnt watch

> . Needless to say I did not call back I am too freakin mad. My

> husband called about 20 times but I am not picking up teh phone for

> anyone, I am too aNGRY ANnd afraid of what I might say.

>

> Oh yeah - when I was in the ER, I called my mom 5 times and she never

> once picked up the phone. NIce huh?

>

> So now I sit here, still in pain, still fuming mad thinking I need to

> divorce my husband and forget my family ever existed. I cant believe

> that the only person to come through for me today was my neighbor who

> I have only known for 2 years.

>

> Ok sorry to go on and on I just haD TO tell you guys, knew I would

> find soem sympathetic ears and probably soem of you have some similar

> stories. Thanks for listening.

>

> meg

July 30, 2004