Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Probably Guaifenesin. It is a no side effect medication (expectorant) that you can now get otc. Alot of fibromyalgia people are using it. There is a book called " What your doctor may not tell you about fibromyalgia " that explains a theory that some peoples bodys have too much phosphates in them or dont expel them correctly and guaifenesin helps that and alleviates a lot of other things. Do a google search for guaifenesin or fibromyalgia and you might find some interesting reading. I think the authors last name is St. Amand. I take guai. in WI sudafed /narco a no-no for me/OTc perc(something) > Hi everyone! > I can't remember where i had seen that some sinus medications > might help with our pain, but i seen it through this group somewhere. > > I finally tried Sudafed and couldnt believe it helps with headaches > in the back of my head, and maybe the ones in the front too. > > it doesnt completely give me relief, but at least after taking one, I > can manage to care of my family some more than what i have. > > If I remember right, I had read that it thins out not ony our mucous, > or sinus fuid(whatever its called, but that it also may thin out > other bodily fluids. it must be true! > > After going to see an old doctor of mine who tried me on Narco, i > quickly learned narco is a no no for me. it majorly incresed my pain > and headaches. > > i took a sudafed after that, and it helped! > > took another one yesterday, it helped! > > > someone out there told me about another OTC medicine i could get at a > good pharmacy or Walmart. if you happen to be reading this post, and > remember the name of that medicine, could you please tell me again..I > think it started with Perc. > > Wishing you all a nice relaxing, mostly pain free weekend! > > stacy in Ohio approx 8mm > I support our troops(especially > after seeing the Iraqi people rejoicing!) My friend got shot last > night, but it was in the shoulder, thank goodness! > > > > > > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Probably Guaifenesin. It is a no side effect medication (expectorant) that you can now get otc. Alot of fibromyalgia people are using it. There is a book called " What your doctor may not tell you about fibromyalgia " that explains a theory that some peoples bodys have too much phosphates in them or dont expel them correctly and guaifenesin helps that and alleviates a lot of other things. Do a google search for guaifenesin or fibromyalgia and you might find some interesting reading. I think the authors last name is St. Amand. I take guai. in WI sudafed /narco a no-no for me/OTc perc(something) > Hi everyone! > I can't remember where i had seen that some sinus medications > might help with our pain, but i seen it through this group somewhere. > > I finally tried Sudafed and couldnt believe it helps with headaches > in the back of my head, and maybe the ones in the front too. > > it doesnt completely give me relief, but at least after taking one, I > can manage to care of my family some more than what i have. > > If I remember right, I had read that it thins out not ony our mucous, > or sinus fuid(whatever its called, but that it also may thin out > other bodily fluids. it must be true! > > After going to see an old doctor of mine who tried me on Narco, i > quickly learned narco is a no no for me. it majorly incresed my pain > and headaches. > > i took a sudafed after that, and it helped! > > took another one yesterday, it helped! > > > someone out there told me about another OTC medicine i could get at a > good pharmacy or Walmart. if you happen to be reading this post, and > remember the name of that medicine, could you please tell me again..I > think it started with Perc. > > Wishing you all a nice relaxing, mostly pain free weekend! > > stacy in Ohio approx 8mm > I support our troops(especially > after seeing the Iraqi people rejoicing!) My friend got shot last > night, but it was in the shoulder, thank goodness! > > > > > > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Probably Guaifenesin. It is a no side effect medication (expectorant) that you can now get otc. Alot of fibromyalgia people are using it. There is a book called " What your doctor may not tell you about fibromyalgia " that explains a theory that some peoples bodys have too much phosphates in them or dont expel them correctly and guaifenesin helps that and alleviates a lot of other things. Do a google search for guaifenesin or fibromyalgia and you might find some interesting reading. I think the authors last name is St. Amand. I take guai. in WI sudafed /narco a no-no for me/OTc perc(something) > Hi everyone! > I can't remember where i had seen that some sinus medications > might help with our pain, but i seen it through this group somewhere. > > I finally tried Sudafed and couldnt believe it helps with headaches > in the back of my head, and maybe the ones in the front too. > > it doesnt completely give me relief, but at least after taking one, I > can manage to care of my family some more than what i have. > > If I remember right, I had read that it thins out not ony our mucous, > or sinus fuid(whatever its called, but that it also may thin out > other bodily fluids. it must be true! > > After going to see an old doctor of mine who tried me on Narco, i > quickly learned narco is a no no for me. it majorly incresed my pain > and headaches. > > i took a sudafed after that, and it helped! > > took another one yesterday, it helped! > > > someone out there told me about another OTC medicine i could get at a > good pharmacy or Walmart. if you happen to be reading this post, and > remember the name of that medicine, could you please tell me again..I > think it started with Perc. > > Wishing you all a nice relaxing, mostly pain free weekend! > > stacy in Ohio approx 8mm > I support our troops(especially > after seeing the Iraqi people rejoicing!) My friend got shot last > night, but it was in the shoulder, thank goodness! > > > > > > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 With the Chiari, I now suffer with high blood pressure. I have been warned not to take any sudafed,contact, etc...as it could possibly cause a stroke. I had never heard of using a decongestant to combat my fibro and will be asking my PCP about this little tidbit the next visit. Thank you for yet another enlightening piece of information. Jolene WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 With the Chiari, I now suffer with high blood pressure. I have been warned not to take any sudafed,contact, etc...as it could possibly cause a stroke. I had never heard of using a decongestant to combat my fibro and will be asking my PCP about this little tidbit the next visit. Thank you for yet another enlightening piece of information. Jolene WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 With the Chiari, I now suffer with high blood pressure. I have been warned not to take any sudafed,contact, etc...as it could possibly cause a stroke. I had never heard of using a decongestant to combat my fibro and will be asking my PCP about this little tidbit the next visit. Thank you for yet another enlightening piece of information. Jolene WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 I have been diagnosed with fibromyalgia (although not so sure anymore) and guaifenesin didn't help me at all. It was prescribed to me for sinus congestion so I asked my rheumy about it after reading up on it's affects on fibro. He said he'd up it for me if I wanted to try it...although it really wasn't considered a form of therapy for fibro yet. Anyway, it did nothing for me. That doesn't mean it won't work for you. People respond in different ways to different meds. Although I'm glad you found that the sudafed works for you some. Take care, Lori sudafed /narco a no-no for me/OTc perc(something) > > > > Hi everyone! > > I can't remember where i had seen that some sinus medications > > might help with our pain, but i seen it through this group somewhere. > > > > I finally tried Sudafed and couldnt believe it helps with headaches > > in the back of my head, and maybe the ones in the front too. > > > > it doesnt completely give me relief, but at least after taking one, I > > can manage to care of my family some more than what i have. > > > > If I remember right, I had read that it thins out not ony our mucous, > > or sinus fuid(whatever its called, but that it also may thin out > > other bodily fluids. it must be true! > > > > After going to see an old doctor of mine who tried me on Narco, i > > quickly learned narco is a no no for me. it majorly incresed my pain > > and headaches. > > > > i took a sudafed after that, and it helped! > > > > took another one yesterday, it helped! > > > > > > someone out there told me about another OTC medicine i could get at a > > good pharmacy or Walmart. if you happen to be reading this post, and > > remember the name of that medicine, could you please tell me again..I > > think it started with Perc. > > > > Wishing you all a nice relaxing, mostly pain free weekend! > > > > stacy in Ohio approx 8mm > > I support our troops(especially > > after seeing the Iraqi people rejoicing!) My friend got shot last > > night, but it was in the shoulder, thank goodness! > > > > > > > > > > > > > > > > > > Help section: http://www.yahoogroups.com/help/ > > > > NOTE: NCC refers to posts with No Chiari Content > > > > To Unsubscribe Yourself: > > chiari-unsubscribe > > > > WACMA Home: Http://www.wacma.com > > > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 I have been diagnosed with fibromyalgia (although not so sure anymore) and guaifenesin didn't help me at all. It was prescribed to me for sinus congestion so I asked my rheumy about it after reading up on it's affects on fibro. He said he'd up it for me if I wanted to try it...although it really wasn't considered a form of therapy for fibro yet. Anyway, it did nothing for me. That doesn't mean it won't work for you. People respond in different ways to different meds. Although I'm glad you found that the sudafed works for you some. Take care, Lori sudafed /narco a no-no for me/OTc perc(something) > > > > Hi everyone! > > I can't remember where i had seen that some sinus medications > > might help with our pain, but i seen it through this group somewhere. > > > > I finally tried Sudafed and couldnt believe it helps with headaches > > in the back of my head, and maybe the ones in the front too. > > > > it doesnt completely give me relief, but at least after taking one, I > > can manage to care of my family some more than what i have. > > > > If I remember right, I had read that it thins out not ony our mucous, > > or sinus fuid(whatever its called, but that it also may thin out > > other bodily fluids. it must be true! > > > > After going to see an old doctor of mine who tried me on Narco, i > > quickly learned narco is a no no for me. it majorly incresed my pain > > and headaches. > > > > i took a sudafed after that, and it helped! > > > > took another one yesterday, it helped! > > > > > > someone out there told me about another OTC medicine i could get at a > > good pharmacy or Walmart. if you happen to be reading this post, and > > remember the name of that medicine, could you please tell me again..I > > think it started with Perc. > > > > Wishing you all a nice relaxing, mostly pain free weekend! > > > > stacy in Ohio approx 8mm > > I support our troops(especially > > after seeing the Iraqi people rejoicing!) My friend got shot last > > night, but it was in the shoulder, thank goodness! > > > > > > > > > > > > > > > > > > Help section: http://www.yahoogroups.com/help/ > > > > NOTE: NCC refers to posts with No Chiari Content > > > > To Unsubscribe Yourself: > > chiari-unsubscribe > > > > WACMA Home: Http://www.wacma.com > > > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 I have been diagnosed with fibromyalgia (although not so sure anymore) and guaifenesin didn't help me at all. It was prescribed to me for sinus congestion so I asked my rheumy about it after reading up on it's affects on fibro. He said he'd up it for me if I wanted to try it...although it really wasn't considered a form of therapy for fibro yet. Anyway, it did nothing for me. That doesn't mean it won't work for you. People respond in different ways to different meds. Although I'm glad you found that the sudafed works for you some. Take care, Lori sudafed /narco a no-no for me/OTc perc(something) > > > > Hi everyone! > > I can't remember where i had seen that some sinus medications > > might help with our pain, but i seen it through this group somewhere. > > > > I finally tried Sudafed and couldnt believe it helps with headaches > > in the back of my head, and maybe the ones in the front too. > > > > it doesnt completely give me relief, but at least after taking one, I > > can manage to care of my family some more than what i have. > > > > If I remember right, I had read that it thins out not ony our mucous, > > or sinus fuid(whatever its called, but that it also may thin out > > other bodily fluids. it must be true! > > > > After going to see an old doctor of mine who tried me on Narco, i > > quickly learned narco is a no no for me. it majorly incresed my pain > > and headaches. > > > > i took a sudafed after that, and it helped! > > > > took another one yesterday, it helped! > > > > > > someone out there told me about another OTC medicine i could get at a > > good pharmacy or Walmart. if you happen to be reading this post, and > > remember the name of that medicine, could you please tell me again..I > > think it started with Perc. > > > > Wishing you all a nice relaxing, mostly pain free weekend! > > > > stacy in Ohio approx 8mm > > I support our troops(especially > > after seeing the Iraqi people rejoicing!) My friend got shot last > > night, but it was in the shoulder, thank goodness! > > > > > > > > > > > > > > > > > > Help section: http://www.yahoogroups.com/help/ > > > > NOTE: NCC refers to posts with No Chiari Content > > > > To Unsubscribe Yourself: > > chiari-unsubscribe > > > > WACMA Home: Http://www.wacma.com > > > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Hi..Just wanted to briefly comment on this... Although I am not doubting that relief was obtained, Sudafed,etc. are certainly not for everyone with chiari. I can't take then at all! I have heart racing,etc....not a " good thing " One of the things that my surgeon suggested for me when decongestion issues occurred was something as simple as Menthol Eucalyptus Cough drops. I get an impressive amount of relief from them and there is very little potential for problems with them. Menthol inhalants are also a possibility... Nether of these is a dramatic cure, of course but they can certainly help with some symptomatic relief. All best wishes, Sally R ACM..Decompression '91... Hydro..VP shunt..2 revisions Doing GREAT in Bethlehem,Pa with NO medications > Hi everyone! > I can't remember where i had seen that some sinus medications > might help with our pain, but i seen it through this group somewhere. > > I finally tried Sudafed and couldnt believe it helps with headaches > in the back of my head, and maybe the ones in the front too. > > it doesnt completely give me relief, but at least after taking one, I > can manage to care of my family some more than what i have. > > If I remember right, I had read that it thins out not ony our mucous, > or sinus fuid(whatever its called, but that it also may thin out > other bodily fluids. it must be true! > > After going to see an old doctor of mine who tried me on Narco, i > quickly learned narco is a no no for me. it majorly incresed my pain > and headaches. > > i took a sudafed after that, and it helped! > > took another one yesterday, it helped! > > > someone out there told me about another OTC medicine i could get at a > good pharmacy or Walmart. if you happen to be reading this post, and > remember the name of that medicine, could you please tell me again..I > think it started with Perc. > > Wishing you all a nice relaxing, mostly pain free weekend! > > stacy in Ohio approx 8mm > I support our troops(especially > after seeing the Iraqi people rejoicing!) My friend got shot last > night, but it was in the shoulder, thank goodness! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 I'm with Sally on this one. Sudafed and anything with guyfenesen (sorry about the spelling) make my heart race and give me shooting pains all through my body as well. No one's ever been able to tell me why, just that I should avoid these meds. Menthol drops do help a lot. There is also an herbal tea (and I don't remember the brand) that's great for decongestion. The same company makes one called Throat Cote that's great for throat troubles. Re: sudafed /narco a no-no for me/OTc perc(something) Hi..Just wanted to briefly comment on this... Although I am not doubting that relief was obtained, Sudafed,etc. are certainly not for everyone with chiari. I can't take then at all! I have heart racing,etc....not a " good thing " One of the things that my surgeon suggested for me when decongestion issues occurred was something as simple as Menthol Eucalyptus Cough drops. I get an impressive amount of relief from them and there is very little potential for problems with them. Menthol inhalants are also a possibility... Nether of these is a dramatic cure, of course but they can certainly help with some symptomatic relief. All best wishes, Sally R ACM..Decompression '91... Hydro..VP shunt..2 revisions Doing GREAT in Bethlehem,Pa with NO medications > Hi everyone! > I can't remember where i had seen that some sinus medications > might help with our pain, but i seen it through this group somewhere. > > I finally tried Sudafed and couldnt believe it helps with headaches > in the back of my head, and maybe the ones in the front too. > > it doesnt completely give me relief, but at least after taking one, I > can manage to care of my family some more than what i have. > > If I remember right, I had read that it thins out not ony our mucous, > or sinus fuid(whatever its called, but that it also may thin out > other bodily fluids. it must be true! > > After going to see an old doctor of mine who tried me on Narco, i > quickly learned narco is a no no for me. it majorly incresed my pain > and headaches. > > i took a sudafed after that, and it helped! > > took another one yesterday, it helped! > > > someone out there told me about another OTC medicine i could get at a > good pharmacy or Walmart. if you happen to be reading this post, and > remember the name of that medicine, could you please tell me again..I > think it started with Perc. > > Wishing you all a nice relaxing, mostly pain free weekend! > > stacy in Ohio approx 8mm > I support our troops(especially > after seeing the Iraqi people rejoicing!) My friend got shot last > night, but it was in the shoulder, thank goodness! > > Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
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