Thanks for the info

[Guest guest]

Thanks to everyone who responded. I am definately going to pursue

this further. To answer some questions, I recieved an MRI without

contrast and they did not check for a syrinx that I know of. Do they

check for a syrinx automatically on an MRI or only if their looking

for one? My brother did not have one. My brother (Shaun) is doing

better. He had some major complications following his surgery and

had to be hospitalized three times after being released from his

surgery. He developed very severe menengitis and also a CSF leak.

He was leaking out of his incision and when they restitched that, he

started leaking from his eyes, ears, and nose. They decided not to

do further surgery for the leak at the time because he started

feeling better. He is still having problems from the CSF leak and

they are now looking at putting in a permanent shunt that would drain

to somewhere in his abdomen. But a lot of his Chiari symptoms have

improved quite a bit. After watching him, the idea of surgery is not

too appealing, but if it would improve my quality I'll do it. I am a

young mom to two sweet little girls that deserve my full attention

and I am willing to do just about anything to get better. Does

anybody know of any doctors in Utah that are familiar with Chiari?

My brother is only 15 so he had a pediatric neurosurgeon or else I'd

got to the same one.

Thanks again,