Jump to content
RemedySpot.com

Re: New poll for

Rate this topic


Guest guest

Recommended Posts

Hi Barb

Thanks for that, I see it the poll as a sort of a census. That in

the first week of 2009 this is the state of the PSC discussion group,

(wouldn't it be great if all 1,600 were able to respond).

I agree, as you say, that we cannot count on it, as I was diagnosed

3 years ago, the specialist said he would not be surprised if I had PSC

for 15 to 20 years!

>

> I hope no one is planning their future or banking on the results of

any

> of these polls. While they may be somewhat helpful, you can't count

on

> your course following any information found here.

Link to comment
Share on other sites

-----Original

Message-----

I was diagnosed 3 years ago, the specialist said he would not be

surprised if I had PSC for 15 to 20 years!

Hi ,

Was he able to tell

you what stage you were in at diagnosis?

Barb in Texas - Together in the Fight - Whatever it

Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007

@ Baylor/Dallas

Link to comment
Share on other sites

-----Original

Message-----

I was diagnosed 3 years ago, the specialist said he would not be

surprised if I had PSC for 15 to 20 years!

Hi ,

Was he able to tell

you what stage you were in at diagnosis?

Barb in Texas - Together in the Fight - Whatever it

Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007

@ Baylor/Dallas

Link to comment
Share on other sites

Hi Barb.

Best wishes for a great 2009.

No, he didn't say and I didn't ask what stage I was. I feel pretty

healthy and I think if I was told I was stage 3 or 4 it might

negatively affect how I feel about the state of my health. So I am

working on the principle that I am seen every 6 months and they can

do the worrying about how ill (or not) I am and I will do everything

possible to remain up to date with what is happening in the PSC world

and try to remain healthy.

Sounds like a good idea???

Thanks

> Hi ,

> Was he able to tell you what stage you were in at diagnosis?

>

> Barb in Texas - Together in the Fight - Whatever it Takes!

> Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007 @ Baylor/Dallas

>

Link to comment
Share on other sites

The best way to tell your stage of PSC from what I have read is

through a biopsy, but even that is variable because different parts

of the liver can be worse or better then other parts.

I also think but have found nothing to confirm this that there si a

diffence is symptoms between small duct PSC and large Duct PSC.

I cannot figure out how to get the poll section of this group to

allow us to write in answers, which I think would help to clarify

some things. If some one knows how to do that it might be helpful.

Dawn

>

> > Hi Barb.

> > Best wishes for a great 2009.

> >

> > No, he didn't say and I didn't ask what stage I was. I feel pretty

> > healthy and I think if I was told I was stage 3 or 4 it might

> > negatively affect how I feel about the state of my health. So I am

> > working on the principle that I am seen every 6 months and they

can

> > do the worrying about how ill (or not) I am and I will do

everything

> > possible to remain up to date with what is happening in the PSC

world

> > and try to remain healthy.

> > Sounds like a good idea???

> >

>

Link to comment
Share on other sites

The only way to stage PSC is with a biopsy; you

are correct in that it only shows what the biopsy “gets”.

The database function is the one way to get actual text in a

response. An example is the PSC Ethnic Heritage database. There’s

a limit to how many columns you can have.

Arne

From:

[mailto: ] On Behalf

Of mdwblaze

The best way to tell your stage of PSC from what I have read

is

through a biopsy, but even that is variable because different parts

of the liver can be worse or better then other parts…

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...