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[Guest guest]

What is TENS i keep reading about? and Collar braces for the neck, have

most chiari patients been sent home with these? My doctor who performed

my surgery sent me home with a bag of meds really no instructions and

nothing about what to expect in the future. i never even new i had SM

until i requested my hospital reports, and still had no idea what it was

until i began researching it. I was living inCalifornia before surgery

with my daughter(now 11) at the time and had no family around, i am a

single mother, so prior to surgery i moved to Laughlin Nevada and stayed

with my folks for help and support. The surgery was performed in

Sacramento, my mother and i spent 10 days there. After arriving back to

Laughlin i went for my first visit back to Sacramento 1 month later. It

was a ten minute visit as i was rushed in and out the fast, still with

no information on anything. My mother was a wreck when i was discharged

from the hospital as there was so many meds she was scared she would not

get them correct, thank god my sister put together a chart showing the

hours and how much to give me. The day after my surgery i seen my doctor

in the a.m., only to hear i did well but that my brain had been very

compressed (10 years un-diagnosed) I never seen my doctor the rest of my

hospital stay. As we all no the surgery is very painful, i had pain

management teams trying to help, a new MRI etc, but never again seen my

doctor, even when requested!! I am going into my 15th month of

recovery, and back in California in my own apartment!! My belongings are

out of storage, and placed in my home. Thank-god i now have my 21 year

old son residing with me and of course my daughter and dog. I have not

had a MRI in 13 months and should be receiving my first new one this

week. I have a new neuro surgeon im hoping will help improve my life. At

times i really wished i had neve had my decompression, as i was better

before with fewer symptoms then i am now!!! Has anyone else ever been

through this type of situtation?? Maybe i should of been more forward

with my surgeon, i don't know. But i believe when i was diagnosed in

what he said when informed of the surgery. He spoke of the surgery, and

made it out to be a simple procedure, that usually patients go home the

following day!!! I did not become nervous of it and figured i would be

rid of the 10 years of sharp shooting pains in my head. I don't no,

everyday i seem to feel more things happening, and recalling who i was

before the surgery and what the surgery has caused me and my family

now!! and then i look at the whole picture of my surgeon and how

uninformed i was. I guess its just a bad day and or a bad past week!!!!

So sorry to dump!!! But thanks to all that are there to answer and

listen and no we are not alone. take care friends Sheial