night sweats

[Guest guest]

i would like to know if any other chiarians suffer profuse night sweats

please?

[Guest guest]

Yes, my daughter had profuse head sweats during sleep - I think it was

more during the first phase of sleep. She would also be in a very deep

sleep (i.e., yelling wouldn't wake her up). She would sweat sometimes

before eating too and would go pale with dark patches under her eyes.

Decompression surgery alleviated that 4 years ago and hasn't returned.

Eurico

> i would like to know if any other chiarians suffer profuse night

sweats

> please?

[Guest guest]

hi gang,

i have mentioned this topic before but need more help. i have chronic night

sweats, i sweat most nights, ranging from occasional no sweat nights, to 5/10

most nights, then upto 10/10 maybe once a week. i have tried all hrts etc as

i had a hysterectomy (ovaries left in) 6 years ago. then i had 1 ovary

removed a year later (i am 34).the hrts make no difference. occasionally i

have no or very mild sweats for a week or two,the only trigger i can find is

that the sweats, and all muy other chiari symptoms are much much worse if i

overexhert myself or hyperextend my neck, for example i painted and papered a

small ceiling and for 2 weeks my sweats were 10/10 everynight and i was a

total mess chiari wise.

Now for the TECHNICAL bit! the hypothalamus is situated at the base of the

brain, this releases several types of hormones to the nearby pituitary gland,

which then triggers the release of other hormones which determine the amount

of oestrogen and progesterone your body produces. i think you can guess what

i am going to say next........is my chiari malformation squishing the

hypothalamus and messing it all up, is this why it is worse when i do too

much.

if anybody suffers from this problem and feels it may be chiari related

please please contact me as i am at my wits end,the chiari is bad enough

without this on top of it! i havent had an mri for 6 years and my tail was

quite small but big enough to cause the symptoms i was having at the tiem,

those symptoms are so much worse now, i am dizzy, bumped and bruised,

blurry,mindfog,permanant headaches, confusion, brain stem

seizures............etcetc. i am worried it has grown and is doing further

damage...........someone please HELP!

kat

[Guest guest]

hi gang,

i have mentioned this topic before but need more help. i have chronic night

sweats, i sweat most nights, ranging from occasional no sweat nights, to 5/10

most nights, then upto 10/10 maybe once a week. i have tried all hrts etc as

i had a hysterectomy (ovaries left in) 6 years ago. then i had 1 ovary

removed a year later (i am 34).the hrts make no difference. occasionally i

have no or very mild sweats for a week or two,the only trigger i can find is

that the sweats, and all muy other chiari symptoms are much much worse if i

overexhert myself or hyperextend my neck, for example i painted and papered a

small ceiling and for 2 weeks my sweats were 10/10 everynight and i was a

total mess chiari wise.

Now for the TECHNICAL bit! the hypothalamus is situated at the base of the

brain, this releases several types of hormones to the nearby pituitary gland,

which then triggers the release of other hormones which determine the amount

of oestrogen and progesterone your body produces. i think you can guess what

i am going to say next........is my chiari malformation squishing the

hypothalamus and messing it all up, is this why it is worse when i do too

much.

if anybody suffers from this problem and feels it may be chiari related

please please contact me as i am at my wits end,the chiari is bad enough

without this on top of it! i havent had an mri for 6 years and my tail was

quite small but big enough to cause the symptoms i was having at the tiem,

those symptoms are so much worse now, i am dizzy, bumped and bruised,

blurry,mindfog,permanant headaches, confusion, brain stem

seizures............etcetc. i am worried it has grown and is doing further

damage...........someone please HELP!

kat

[Guest guest]

i get them chronically, some nights r better than others but never absent. i

can comiserate because i know how awful it makes u feel, u wake up freezing

and my headache always seems worse the day after, and my laundry bill is

massive. appartently dr bolognaise told 1 lady its the pituitary gland

getting squished by the acm while we sleep as our necks get scrunched. hope

this helps. i c gp wed to get back to neuros to arrange next mri as i think

mine has grown and poss got syrinx(apparently sweats also more prevalent with

a syrinx), and no now is the time to bow down to the decompression and let

them have their wicked way with my brain, the symptins r just too much too

handle now.

kat

[Guest guest]

i get them chronically, some nights r better than others but never absent. i

can comiserate because i know how awful it makes u feel, u wake up freezing

and my headache always seems worse the day after, and my laundry bill is

massive. appartently dr bolognaise told 1 lady its the pituitary gland

getting squished by the acm while we sleep as our necks get scrunched. hope

this helps. i c gp wed to get back to neuros to arrange next mri as i think

mine has grown and poss got syrinx(apparently sweats also more prevalent with

a syrinx), and no now is the time to bow down to the decompression and let

them have their wicked way with my brain, the symptins r just too much too

handle now.

kat

[Guest guest]

i get them chronically, some nights r better than others but never absent. i

can comiserate because i know how awful it makes u feel, u wake up freezing

and my headache always seems worse the day after, and my laundry bill is

massive. appartently dr bolognaise told 1 lady its the pituitary gland

getting squished by the acm while we sleep as our necks get scrunched. hope

this helps. i c gp wed to get back to neuros to arrange next mri as i think

mine has grown and poss got syrinx(apparently sweats also more prevalent with

a syrinx), and no now is the time to bow down to the decompression and let

them have their wicked way with my brain, the symptins r just too much too

handle now.

kat

[Guest guest]

Hi Beth,

I am currently going through night sweats

as well. I have an appointment with a professor in internal medicine about that

tomorrow. I asked a question on this forum about night sweats a few months ago

and there were a few people that were suffering (or used to suffer) from night

sweats like us.

I hope the professor will come up with

something.

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of escharmer@...

Sent: Tuesday, December 30, 2008

06:01

To:

Subject: Night

Sweats

I was diagnosed with PSC 7 years ago and have been a

member of this

group ever since; however I haven't posted anything in many years

since I've been fortunate to have been very healthy and have put PSC

" on the back burner " .

I haven't experienced any of the most common symptoms (bad itching,

etc). But since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats. I don't

have the itching or other normal PSC symptoms.

I was wondering if many PSC'ers experience night sweats as a result of

PSC. It seems getting so many night sweats isn't normal and it would

be good to figure out what's behind them, PSC or something else. I'm

healthy otherwise (eat healthy & exercise every day).

Thanks for any feedback!!

-Beth Scharmer from Milwaukee,

WI

[Guest guest]

Hi Beth,

I am currently going through night sweats

as well. I have an appointment with a professor in internal medicine about that

tomorrow. I asked a question on this forum about night sweats a few months ago

and there were a few people that were suffering (or used to suffer) from night

sweats like us.

I hope the professor will come up with

something.

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of escharmer@...

Sent: Tuesday, December 30, 2008

06:01

To:

Subject: Night

Sweats

I was diagnosed with PSC 7 years ago and have been a

member of this

group ever since; however I haven't posted anything in many years

since I've been fortunate to have been very healthy and have put PSC

" on the back burner " .

I haven't experienced any of the most common symptoms (bad itching,

etc). But since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats. I don't

have the itching or other normal PSC symptoms.

I was wondering if many PSC'ers experience night sweats as a result of

PSC. It seems getting so many night sweats isn't normal and it would

be good to figure out what's behind them, PSC or something else. I'm

healthy otherwise (eat healthy & exercise every day).

Thanks for any feedback!!

-Beth Scharmer from Milwaukee,

WI

[Guest guest]

Hi Beth,

I am currently going through night sweats

as well. I have an appointment with a professor in internal medicine about that

tomorrow. I asked a question on this forum about night sweats a few months ago

and there were a few people that were suffering (or used to suffer) from night

sweats like us.

I hope the professor will come up with

something.

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of escharmer@...

Sent: Tuesday, December 30, 2008

06:01

To:

Subject: Night

Sweats

I was diagnosed with PSC 7 years ago and have been a

member of this

group ever since; however I haven't posted anything in many years

since I've been fortunate to have been very healthy and have put PSC

" on the back burner " .

I haven't experienced any of the most common symptoms (bad itching,

etc). But since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats. I don't

have the itching or other normal PSC symptoms.

I was wondering if many PSC'ers experience night sweats as a result of

PSC. It seems getting so many night sweats isn't normal and it would

be good to figure out what's behind them, PSC or something else. I'm

healthy otherwise (eat healthy & exercise every day).

Thanks for any feedback!!

-Beth Scharmer from Milwaukee,

WI

[Guest guest]

I've had night sweats since I was 36 - (at that time,

no history of PSC)....but tests showed I was in the

early stages of menapause. I am almost 52.

Cindy Baudoux-Northrup

[Guest guest]

I've had night sweats since I was 36 - (at that time,

no history of PSC)....but tests showed I was in the

early stages of menapause. I am almost 52.

Cindy Baudoux-Northrup