??

January 8, 2003

Hi to all,

I haven't posted in ages but need to get some perspective with the

help of others in the group.

I have recently had more and more difficulty with new symptoms not

before noticed. Here they are:

1) Loss of most of sense of taste

2) Increased trouble breathing (feels like I can't get enough air...)

3) Trouble with swollowing. Things go down a ways and then just get

stuck... hurts like the dickens. Sometimes standing up and walking

around helps some, but most often I just have to wait until the

swollow mechanism kicks back in.

4) Much more pain with very little relief from narcotics.

I have not had surgery, and now cannot afford the cost of the

procedure. I am enrolled in a local 'free' pain clinic, but will

have medicare starting in March.

I need a good local neurologist who will work with me for all of my

new and old issues. I live north of chicago and can't drive for long

periods. Anyone out there know of anyone good?

Finally, after 11 months I still haven't been paid back money owed to

me by SSDI. Has anyone else waited that long?

Thanks in advance, hope everyone is doing as well as possible.

Send answers to above email address so we don't waste the group's

time.

Sue in IL

ACM no surgery

RDS, FMS etc. etc.

Bye!!

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