Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Stacey, The NIH is the National Institute of Health in the U.S. They are doing a study involving people with EDS. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 From: Stacey To: ceda Sent: Thursday, August 05, 2004 7:33 PM Subject: NIH Hi everyone. I think I have missed something. What is the NIH and why are so many EDSer's going there? Stacey ******************************* Hi , I see Jill answered your question. If you want to know more, just ask. Cindylouwho To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 From: Stacey To: ceda Sent: Thursday, August 05, 2004 7:33 PM Subject: NIH Hi everyone. I think I have missed something. What is the NIH and why are so many EDSer's going there? Stacey ******************************* Hi , I see Jill answered your question. If you want to know more, just ask. Cindylouwho To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 That's the only thing that worries me, actually -- I mean, personally. I hope they don't run out of spaces... > Unfortunately, they are also getting FAR more EDS participants than > Marfans > and Sticklers. They really need about 100 for each of the different > disorders Quote Link to comment Share on other sites More sharing options...
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