Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Hi! I just heard about the enzymes a few weeks ago, and ordered them right away. I have 5 children: #1 NT, #2 age13- some autistic traits, #3 age10 Asperger's syndrome, #4 age7 ADHD, and #5 age2.5 no diagnosis yet, but language delay, and some autistic behaviour. Yes, you can believe we live in a madhouse some days! Today was our third day on enzymes, and I really can see a difference already! My children have been peaceful and quiet, usually they scream and fight. My Aspie son seems so much more lucid, and even when he has gotten upset, he has not had a meltdown, but has recovered very quickly. His voice is a little less high-pitched, and he actually smiled at me when I just randomly caught his eye (very unusual for him). My ADHD daughter is actually sitting still without wiggling all over the place. This is miraculous! I am giving #2 & 3 1 zyme with each meal, and I am giving #4 a no- fenol with each meal. I plan to start the pep in a few days. We are not on any special diet, although we do not eat a lot of gluten, because my husband has celiacs. I have a lot of questions, but I'll just start with a few: 1. Can it be possible that the enzymes are really causing such good results already, even though we have not started the pep yet? 2. My children are complaining that their eyes sting. Could this be a possible side effect? 3. Child #3 has a bad reaction to raw pineapple and kiwi, in that they irritate his lips, and make the area around his mouth red and bleed. Should this be any cause for concern with giving him the Peptizyde? 4. Child #2 is very sensitive to sugar. When she was little, if she had any sugar at all, it would cause her to wet the bed, and the urine would have a very strong, unpleasant odor. She can now eat sugar without wetting the bed, but it makes her extremely grouchy and aggressive. Which enzyme might help with this problem? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 HI and welcome! 5 kids with a variety of " symptoms " ! You are in the right place. Another mom here has 4. I feel so lazy now with just 2 plus myself. >>> 1. Can it be possible that the enzymes are really causing such good results already, even though we have not started the pep yet? Yes. This is the really exciting part. People think we are making this up until it happens in their own house! >>> 2. My children are complaining that their eyes sting. Could this be a possible side effect? I will send you the file on possible side effects. This may be to the No-Fenol. You may want to reduce the dose on that a little while they adjust...and give more liquids to drink. >>> 3. Child #3 has a bad reaction to raw pineapple and kiwi, in that they irritate his lips, and make the area around his mouth red and bleed. Should this be any cause for concern with giving him the > Peptizyde? WOW. Based on other results, this is a toss a coin question. Some do and some don't. The " safest " thing would be to use the AFP Peptizyde which was developed for this reason and contains no fruit-derived enzymes at all. However, it could also be the the protease enzymes in raw pineapple and kiwi are irritating his lips and mouth because they settle on the skin, and because he is very sensitive. If this is the case, swallowing the enzymes so they do not settle on the skin will likely be okay. Does this child swallow capsules, or would he take them opened in food or drink? >>> 4. Child #2 is very sensitive to sugar. When she was little, if she had any sugar at all, it would cause her to wet the bed, and the > urine would have a very strong, unpleasant odor. She can now eat > sugar without wetting the bed, but it makes her extremely grouchy and aggressive. Which enzyme might help with this problem? Do you think she has a yeast problem? How is she reacting to the No- Fenol? If she has " autistic traits, " a yeast problem can cause that. The Zyme Prime does not seem to impact a yeast condition much, but the Peptizyde (protease) and No-Fenol (cellulase) do. Glad you are seeing some good stuff right off! . So glad you are Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Umm.. I have 8 children BUT not all have symptoms Michele > HI and welcome! > 5 kids with a variety of " symptoms " ! You are in the right place. > Another mom here has 4. I feel so lazy now with just 2 plus myself. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 > Hi! I just heard about the enzymes a few weeks ago, and ordered them > right away. > I have 5 children: #1 NT, #2 age13- some autistic traits, #3 age10 > Asperger's syndrome, #4 age7 ADHD, and #5 age2.5 no diagnosis yet, > but language delay, and some autistic behaviour. > Yes, you can believe we live in a madhouse some days! I have four children and I use numbers when referring to them also LOLOLOLOL All of my children are metal toxic from vaccinations. You can read their story here, if you are interested http://www.autismchannel.net/dana/myson.htm > because my husband has celiacs. My kids appear to be metal-induced celiac, because the enzymes do not help them eat gluten, altho this is improving with chelation. > I have a lot of questions, but I'll just start with a few: > 1. Can it be possible that the enzymes are really causing such good > results already, even though we have not started the pep yet? Yes absolutely. > 2. My children are complaining that their eyes sting. Could this be a > possible side effect? Yes, this is interesting, I have an unformed thought on this and if it ever solidifies for me, I will post it for you. > 3. Child #3 has a bad reaction to raw pineapple and kiwi, in that > they irritate his lips, and make the area around his mouth red and > bleed. Should this be any cause for concern with giving him the > Peptizyde? I would try the AFP Peptizyde instead of regular. > 4. Child #2 is very sensitive to sugar. When she was little, if she > had any sugar at all, it would cause her to wet the bed, and the > urine would have a very strong, unpleasant odor. She can now eat > sugar without wetting the bed, but it makes her extremely grouchy and > aggressive. Which enzyme might help with this problem? This sounds like a yeast issue, consider using the No-Fenol http://www.autismchannel.net/dana/yeast.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Tina In order to get to the online BOOKMARKS section of this group you need to have a ID and then link your !ID to your own email address you used to subscribe to this group. Good luck mjh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Tina, Welcome to the group. My name is Lamar. I suffered with gran mals for 34 years before I finally got the help I really needed. Today, I am drug-free and nearly seizure-free. One of the things I found in my long journey toward victory over my epileptic disorder is that it is easy to be misdiagnosed. For most of my life I did not know why I was epileptic. I did not know what it was that triggered my seizures. If your husband does not know why he is epileptic and what it is that triggers his seizures, you need to take steps to find out. We have a lot of resources here in our Bookmarks section which may prove helpful. If you go to the Bookmarks section you will find a wide range of website links - including neurologist offices, epilepsy clinics and hospitals. My personal favorite is s-Rieter . You can go to this website and leave e-mail questions about your husband's condition and the head of the clinic's therapy research department will give you a personal response. But, that is not all. If you send a copy of your husband's medical record, the clinic will evaluate it for you for FREE. Why would a clinic bother to do that? Because they only treat people whose epileptic condition falls within their treatment parameters. s-Reiter specializes in treating only epilepsy - but within certain limitations. For example, the clinic rarely treats children under 8 years of age or people who have had brain surgery. Not all links in the Bookmarks section are epilepsy-specific. Consider the website called The Mind Spa . They do neurophyisical assessments. This is a precursor to EEG Biofeedback. If you ever wondered how well your brain functions, this examination can reveal a great deal. I speak from experience because I had this test done. Not only did I witness my brainwave patterns in real time on a computer screen, but I saw light patterns and sound rhythms change them for the better as well. You need not be epileptic to benefit from this examination. Athletes use it to enhance their athletic performance. College students use it to improve their academic performance - including boosting their IQ 3-4%. Business people use it to reduce stress. If your husband is serious about getting his seizure disorder under control, I believe we have resources - through our members and our Bookmark section - which can give provide him with the guidance and direction he needs. It simply takes a little time and effort to get acquainted. Good luck. Lamar tina wrote: > Hello everyone, > My name is Tina and i just joined your little group. I have been > married to my wonderful husband for 5 years now and he has recently > started having grand mal then small seizures right behind that. He is > 27 and as young teenager had one or 2 seizures then didn't have any > until right after we were married. He and his Dr. decided when he > was 18 that after 2 years of no seizures it was safe to take him off > his meds. (grrrrr!). So after the one he had when we got married i > tried to get him to go to the dr, but he is a trypical man and > wouldn't go. Now after 2 daughters later and small seizures he > decided not to tell me about, He had 2 grand mal and 2 small seizures > in less than a 8 hour period. But now he is on 500mg of Dilantin, > 1500mg of Kepra, and 60mg of Phenobarbotol(?). We have had a mri, > eeg, and cat done but it says that there isn't anything there. Can > anyone please help me. We are both at wits ends with this. Every > week the dr just increases one of his meds. No other blood work other > than med levels has been performed. But he now realizes that he has > to take his meds or else. Also the meds make him feel " doped up " . > But he constantly has severe dizzy spells and is always sleepy. Since > 3 weeks ago he has had 1 small grand mal seizure and a small one. So > the medicine is holding the seizures at bay but these slipped in on > him last week. I hope this made sense. Any help would be greatly > appreciated. thanks, tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 thanks haven't heard of this i will tell my hubby and try to get this scheduled. What exactly is this test and how is it done. tina Re: [ ] new member and a few questions Tina - My daughter's MRI was normal. We had a test called MRS. It showed damage to the corpus closum, this didn't show up on the MRI. Hope this helps, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Dear Lamar, God bless you, seizure free, my husband would love to be drug and seizure free. He feels so dependant on everyone but knows the consequences if he doesn't take his meds. When i found out he had been having small seizures and not telling me i was so furious. Concerned mad and just plain ole mad. And the only reason he could give me that he didn't tell me was he didn't want to worry me. But after calming down i told him that i loved him and wanted to spend the rest my life with him and not a memory. And to think if he had a seizure while driving and had the children with him what could have happened. I believe made the difference. I am going to check out those bookmarks tomorrow. It is late now and i have to go to bed. thanks for this info. tina Re: [ ] new member and a few questions Tina, Welcome to the group. My name is Lamar. I suffered with gran mals for 34 years before I finally got the help I really needed. Today, I am drug-free and nearly seizure-free. One of the things I found in my long journey toward victory over my epileptic disorder is that it is easy to be misdiagnosed. For most of my life I did not know why I was epileptic. I did not know what it was that triggered my seizures. If your husband does not know why he is epileptic and what it is that triggers his seizures, you need to take steps to find out. We have a lot of resources here in our Bookmarks section which may prove helpful. If you go to the Bookmarks section you will find a wide range of website links - including neurologist offices, epilepsy clinics and hospitals. My personal favorite is s-Rieter . You can go to this website and leave e-mail questions about your husband's condition and the head of the clinic's therapy research department will give you a personal response. But, that is not all. If you send a copy of your husband's medical record, the clinic will evaluate it for you for FREE. Why would a clinic bother to do that? Because they only treat people whose epileptic condition falls within their treatment parameters. s-Reiter specializes in treating only epilepsy - but within certain limitations. For example, the clinic rarely treats children under 8 years of age or people who have had brain surgery. Not all links in the Bookmarks section are epilepsy-specific. Consider the website called The Mind Spa . They do neurophyisical assessments. This is a precursor to EEG Biofeedback. If you ever wondered how well your brain functions, this examination can reveal a great deal. I speak from experience because I had this test done. Not only did I witness my brainwave patterns in real time on a computer screen, but I saw light patterns and sound rhythms change them for the better as well. You need not be epileptic to benefit from this examination. Athletes use it to enhance their athletic performance. College students use it to improve their academic performance - including boosting their IQ 3-4%. Business people use it to reduce stress. If your husband is serious about getting his seizure disorder under control, I believe we have resources - through our members and our Bookmark section - which can give provide him with the guidance and direction he needs. It simply takes a little time and effort to get acquainted. Good luck. Lamar tina wrote: > Hello everyone, > My name is Tina and i just joined your little group. I have been > married to my wonderful husband for 5 years now and he has recently > started having grand mal then small seizures right behind that. He is > 27 and as young teenager had one or 2 seizures then didn't have any > until right after we were married. He and his Dr. decided when he > was 18 that after 2 years of no seizures it was safe to take him off > his meds. (grrrrr!). So after the one he had when we got married i > tried to get him to go to the dr, but he is a trypical man and > wouldn't go. Now after 2 daughters later and small seizures he > decided not to tell me about, He had 2 grand mal and 2 small seizures > in less than a 8 hour period. But now he is on 500mg of Dilantin, > 1500mg of Kepra, and 60mg of Phenobarbotol(?). We have had a mri, > eeg, and cat done but it says that there isn't anything there. Can > anyone please help me. We are both at wits ends with this. Every > week the dr just increases one of his meds. No other blood work other > than med levels has been performed. But he now realizes that he has > to take his meds or else. Also the meds make him feel " doped up " . > But he constantly has severe dizzy spells and is always sleepy. Since > 3 weeks ago he has had 1 small grand mal seizure and a small one. So > the medicine is holding the seizures at bay but these slipped in on > him last week. I hope this made sense. Any help would be greatly > appreciated. thanks, tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Also, go for the obvius things 1. Are you in a new home? (believe it or not riply, air tight doesn't always mean healthy) 2. Dental work with amalgams 3. Recent vaccinations 4. Gut problems/too much gluten and cassein (milk and wheat) 5. Prepensity to have mold or fungas in the house? 6. Stress, loss of sleep? 7. Viral process (stealth?) www.ccid.org , CMV? Herpes 6? 8. Hows the digestive juices? 9. Drink water, what kind? 10. Flouride in your water, your use on teeth? 11. How many black fillings do you have? 12. rid the house of all organophosphates, cleaners, volitile chemicals, green lawn person, work environment? etc 13. Any other health problems in the family? 14. Any thing wrong with the immune system? 15. Accident? Blow to head? Menengitis? Encephalitis? (as a child too?) 16. Vaccine injury as a child? Dpt or MMR? Are you mercury poisined? 17. What are your copper levels? 18. Zinc levels or other deficiencies? 19. Relaxation excercises, no tv watching (really-it outgasses) 20. What natural things do you take? 21. Diet too much carbos? Diet drinks? 22. Intake of protein, what kind? 23. Any fatty acid problems? 24. Coffee drinker? Answer some of these things and see a connection? Kathy (mom of four kids, two autistic children, one with seizures or lets say, much better controlled by answering the above questions ) Re: [ ] new member and a few questions > > > Tina - > > My daughter's MRI was normal. We had a test called MRS. It showed damage to > the corpus closum, this didn't show up on the MRI. Hope this helps, > > Quote Link to comment Share on other sites More sharing options...
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