Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 How did you get in????? I'd like and I to go there too! You can reply off list. We are going to NIH! Thanks to a sweet heart of a CEDA sister, Dylan is going to be seen Aug 17 and 18 at NIH. They said they can't make any promises of help, but he is in the EDS study! Cindylouwho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 That's fantastic, Cindy!!!!!!! I hope Dylan can get alot of help from them -- will be thinking of both of you those days. Love, Patti We are going to NIH! Thanks to a sweet heart of a CEDA sister, Dylan is going to be seen Aug 17 and 18 at NIH. They said they can't make any promises of help, but he is in the EDS study! Cindylouwho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 I'm so glad, Cindy! I certainly hope they can offer him something that helps! I know you're talking about Sis, and yes, she's a Sweetie, alright! Love Lana 0:-) Re: We are going to NIH! That's fantastic, Cindy!!!!!!! I hope Dylan can get alot of help from them -- will be thinking of both of you those days. Love, Patti We are going to NIH! Thanks to a sweet heart of a CEDA sister, Dylan is going to be seen Aug 17 and 18 at NIH. They said they can't make any promises of help, but he is in the EDS study! Cindylouwho Quote Link to comment Share on other sites More sharing options...
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