Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 In a message dated 6/15/2004 1:22:53 PM Eastern Standard Time, stacey8127@... writes: Hi Everyone I was wondering if any one has ever heard of this and / or does it have a connection with EDS? My cousin is suspected of having this. She does not have EDS (at least not diagnosed or show symptoms) but is on the side of the famliy that I got the EDS genes from. Any information would be greatly appreciated. Stacey Hi Stacey Yes, I researched it up to the hilt. My son, who is now almost 21 had it @ 2 years ago. It was only brought to our attention by coincidence, because he had a knee X-Ray because he's a hockey player (and yes, by some grace of God, neither of my kids have EDS) & during a game, he went knee first into the boards. They saw this " thing " . It was Osteochondritis dissecans. It was unrelated to the hockey injury, but we were told & really, I read every article I think that was ever written on it & it's something that many kids have, but it usually heels on it's own. It should surely heal by puberty & since his was rather large & he was 19, he had day surgery, by the team MD at the U of Conn. We wanted it done by my Docs in NYC, but with the teams, especially their famous basketball teams there, once we met the surgeon, we were totally fine with it. It was a day surgery & he was in an immobilize for a while & this really shocked me. We are really getting our money's worth at UConn. They shuttled him around from class to class, wherever he needed to go, on campus. Blew my mind. The surgery was on a Friday, he was back in class on Monday. After PT & all he was perfectly fine & it, so I was told & from my research, is not related to EDS. It happens in kids all the time. And doesn't have EDS anyway. And though technically we can't prove it, because I'm hypermobile, my 2 kids have been seen 3 times by Dr. Petros Tsipouras & at Hopkins. If I ask Petros one more time, he's gonna shoot me. They don't have it. But as far as the surgery, they said they did it, somewhat because he was a bit older & it should have been gone & they wanted, as did he, back onto the hockey rink. And now, you'd never know anything happened. Anyway, that's my 2 cents. I wish you all well & if I can do anything else, please feel free to contact me. Schoenberg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 In a message dated 6/15/2004 1:22:53 PM Eastern Standard Time, stacey8127@... writes: Hi Everyone I was wondering if any one has ever heard of this and / or does it have a connection with EDS? My cousin is suspected of having this. She does not have EDS (at least not diagnosed or show symptoms) but is on the side of the famliy that I got the EDS genes from. Any information would be greatly appreciated. Stacey Hi Stacey Yes, I researched it up to the hilt. My son, who is now almost 21 had it @ 2 years ago. It was only brought to our attention by coincidence, because he had a knee X-Ray because he's a hockey player (and yes, by some grace of God, neither of my kids have EDS) & during a game, he went knee first into the boards. They saw this " thing " . It was Osteochondritis dissecans. It was unrelated to the hockey injury, but we were told & really, I read every article I think that was ever written on it & it's something that many kids have, but it usually heels on it's own. It should surely heal by puberty & since his was rather large & he was 19, he had day surgery, by the team MD at the U of Conn. We wanted it done by my Docs in NYC, but with the teams, especially their famous basketball teams there, once we met the surgeon, we were totally fine with it. It was a day surgery & he was in an immobilize for a while & this really shocked me. We are really getting our money's worth at UConn. They shuttled him around from class to class, wherever he needed to go, on campus. Blew my mind. The surgery was on a Friday, he was back in class on Monday. After PT & all he was perfectly fine & it, so I was told & from my research, is not related to EDS. It happens in kids all the time. And doesn't have EDS anyway. And though technically we can't prove it, because I'm hypermobile, my 2 kids have been seen 3 times by Dr. Petros Tsipouras & at Hopkins. If I ask Petros one more time, he's gonna shoot me. They don't have it. But as far as the surgery, they said they did it, somewhat because he was a bit older & it should have been gone & they wanted, as did he, back onto the hockey rink. And now, you'd never know anything happened. Anyway, that's my 2 cents. I wish you all well & if I can do anything else, please feel free to contact me. Schoenberg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 In a message dated 6/15/2004 1:22:53 PM Eastern Standard Time, stacey8127@... writes: Hi Everyone I was wondering if any one has ever heard of this and / or does it have a connection with EDS? My cousin is suspected of having this. She does not have EDS (at least not diagnosed or show symptoms) but is on the side of the famliy that I got the EDS genes from. Any information would be greatly appreciated. Stacey Hi Stacey Yes, I researched it up to the hilt. My son, who is now almost 21 had it @ 2 years ago. It was only brought to our attention by coincidence, because he had a knee X-Ray because he's a hockey player (and yes, by some grace of God, neither of my kids have EDS) & during a game, he went knee first into the boards. They saw this " thing " . It was Osteochondritis dissecans. It was unrelated to the hockey injury, but we were told & really, I read every article I think that was ever written on it & it's something that many kids have, but it usually heels on it's own. It should surely heal by puberty & since his was rather large & he was 19, he had day surgery, by the team MD at the U of Conn. We wanted it done by my Docs in NYC, but with the teams, especially their famous basketball teams there, once we met the surgeon, we were totally fine with it. It was a day surgery & he was in an immobilize for a while & this really shocked me. We are really getting our money's worth at UConn. They shuttled him around from class to class, wherever he needed to go, on campus. Blew my mind. The surgery was on a Friday, he was back in class on Monday. After PT & all he was perfectly fine & it, so I was told & from my research, is not related to EDS. It happens in kids all the time. And doesn't have EDS anyway. And though technically we can't prove it, because I'm hypermobile, my 2 kids have been seen 3 times by Dr. Petros Tsipouras & at Hopkins. If I ask Petros one more time, he's gonna shoot me. They don't have it. But as far as the surgery, they said they did it, somewhat because he was a bit older & it should have been gone & they wanted, as did he, back onto the hockey rink. And now, you'd never know anything happened. Anyway, that's my 2 cents. I wish you all well & if I can do anything else, please feel free to contact me. Schoenberg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 > Hi Everyone > > I was wondering if any one has ever heard of this and / or does it > have a connection with EDS? Hi Stacey, This is wierd that you should ask this right now. My niece called last night, and her daughter has something just like this - I can't remember if this is what she called it or not, but it is the same description of symptoms. The doctor told her to curtain her activities for a week, and gave her some type of braces for her shoes, like orthotics I guess, and prescribed physical therapy. That's all I know about it though. I suspect her Mom, my niece, has EDS, but has never been diagnosed with it - she has Lupus very badly, and that also has hypermobility as a symptom. I AM sure, though that HER Mom, my sister, had EDS (though never diagnosed either) and Rheumatoid Arthritis. She passed from a brain tumor several years ago. Let me know when you find out anything about it. Love Lana p.s. Hope things are getting better/easier for you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Stacey, I did find this: Also, I didn't read far enough, I know my great niece didn't have any lesions, so it's probably different than this. Hope this helps a bit. Love Lana Unclear Cause Although OCD has been well described, the cause of the disorder remains uncertain. Many etiologies have been proposed, including trauma, ischemia, and additional factors that might predispose patients to the disorder (1-4,6-9). A traumatic origin is supported by multiple studies (1,3,5,6,9). Approximately 40% of patients presenting with OCD of the knee have a history of major or repetitive knee trauma, and 60% of patients presenting with OCD participate in a high level of athletic activity (3). Certain aspects of normal knee anatomy may be a causal factor in OCD. The medial femoral condyle lies close to the medial tibial spine, and bears a broad attachment of the posterior cruciate ligament. Repetitive shear stresses from the tibial spine during activity and traction from the posterior cruciate ligament may account for the frequency of lesions over the lateral aspect of the medial femoral condyle (1,2,4,6,9). Trauma may also be exacerbated by underlying knee abnormalities, including biomechanical malalignment and internal derangement. For example, OCD has been associated with genu valgum, genu varum, and meniscus tears (3,4,8,9). Discoid menisci have been noted in 20% of patients with OCD of the lateral femoral condyle. Many patients who have OCD of the patella have a history of patella subluxation, suggesting an association with ligament laxity and trauma (4). While trauma may be the starting point for the development of OCD, it is likely that vascular insufficiency ultimately leads to fragment separation. In rapidly growing bone, the blood supply to the epiphysis and secondary centers of ossification can be tenuous (1,6), and a single traumatic event or repetitive microtrauma may interrupt the vascular supply. The high incidence of multiple and bilateral lesions is difficult to explain by trauma and ischemia alone, and suggests that there are additional factors that predispose some persons to develop OCD (1,5,9). Various theories have been proposed, including genetic or endocrine factors, generalized ligamentous laxity, and abnormalities of secondary ossification centers (1,2,3,9). It is likely that the etiology of OCD is multifactorial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Stacey, I did find this: Also, I didn't read far enough, I know my great niece didn't have any lesions, so it's probably different than this. Hope this helps a bit. Love Lana Unclear Cause Although OCD has been well described, the cause of the disorder remains uncertain. Many etiologies have been proposed, including trauma, ischemia, and additional factors that might predispose patients to the disorder (1-4,6-9). A traumatic origin is supported by multiple studies (1,3,5,6,9). Approximately 40% of patients presenting with OCD of the knee have a history of major or repetitive knee trauma, and 60% of patients presenting with OCD participate in a high level of athletic activity (3). Certain aspects of normal knee anatomy may be a causal factor in OCD. The medial femoral condyle lies close to the medial tibial spine, and bears a broad attachment of the posterior cruciate ligament. Repetitive shear stresses from the tibial spine during activity and traction from the posterior cruciate ligament may account for the frequency of lesions over the lateral aspect of the medial femoral condyle (1,2,4,6,9). Trauma may also be exacerbated by underlying knee abnormalities, including biomechanical malalignment and internal derangement. For example, OCD has been associated with genu valgum, genu varum, and meniscus tears (3,4,8,9). Discoid menisci have been noted in 20% of patients with OCD of the lateral femoral condyle. Many patients who have OCD of the patella have a history of patella subluxation, suggesting an association with ligament laxity and trauma (4). While trauma may be the starting point for the development of OCD, it is likely that vascular insufficiency ultimately leads to fragment separation. In rapidly growing bone, the blood supply to the epiphysis and secondary centers of ossification can be tenuous (1,6), and a single traumatic event or repetitive microtrauma may interrupt the vascular supply. The high incidence of multiple and bilateral lesions is difficult to explain by trauma and ischemia alone, and suggests that there are additional factors that predispose some persons to develop OCD (1,5,9). Various theories have been proposed, including genetic or endocrine factors, generalized ligamentous laxity, and abnormalities of secondary ossification centers (1,2,3,9). It is likely that the etiology of OCD is multifactorial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Stacey, I did find this: Also, I didn't read far enough, I know my great niece didn't have any lesions, so it's probably different than this. Hope this helps a bit. Love Lana Unclear Cause Although OCD has been well described, the cause of the disorder remains uncertain. Many etiologies have been proposed, including trauma, ischemia, and additional factors that might predispose patients to the disorder (1-4,6-9). A traumatic origin is supported by multiple studies (1,3,5,6,9). Approximately 40% of patients presenting with OCD of the knee have a history of major or repetitive knee trauma, and 60% of patients presenting with OCD participate in a high level of athletic activity (3). Certain aspects of normal knee anatomy may be a causal factor in OCD. The medial femoral condyle lies close to the medial tibial spine, and bears a broad attachment of the posterior cruciate ligament. Repetitive shear stresses from the tibial spine during activity and traction from the posterior cruciate ligament may account for the frequency of lesions over the lateral aspect of the medial femoral condyle (1,2,4,6,9). Trauma may also be exacerbated by underlying knee abnormalities, including biomechanical malalignment and internal derangement. For example, OCD has been associated with genu valgum, genu varum, and meniscus tears (3,4,8,9). Discoid menisci have been noted in 20% of patients with OCD of the lateral femoral condyle. Many patients who have OCD of the patella have a history of patella subluxation, suggesting an association with ligament laxity and trauma (4). While trauma may be the starting point for the development of OCD, it is likely that vascular insufficiency ultimately leads to fragment separation. In rapidly growing bone, the blood supply to the epiphysis and secondary centers of ossification can be tenuous (1,6), and a single traumatic event or repetitive microtrauma may interrupt the vascular supply. The high incidence of multiple and bilateral lesions is difficult to explain by trauma and ischemia alone, and suggests that there are additional factors that predispose some persons to develop OCD (1,5,9). Various theories have been proposed, including genetic or endocrine factors, generalized ligamentous laxity, and abnormalities of secondary ossification centers (1,2,3,9). It is likely that the etiology of OCD is multifactorial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hey Stacey I looked up OCD and found out the other name ofr it is Osteochondral fracture and this I have had so I guess I have had OCD. when I originally injured my knee in 1993 (tore my ACL, MCL and MORE) I was also diagnosed with an osteochondral fracture about 8mm across on the left Medial Femoral Condyle. This has coused hassles over time and is from the intial trauma that caused me to tear the ligaments and things (I stepped in a hole with my lower leg staying still and my body rotating through my knee ). Sharon > Hi Everyone > > I was wondering if any one has ever heard of this and / or does it > have a connection with EDS? My cousin is suspected of having this. > She does not have EDS (at least not diagnosed or show symptoms) but is > on the side of the famliy that I got the EDS genes from. Any > information would be greatly appreciated. > > Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hey Stacey I looked up OCD and found out the other name ofr it is Osteochondral fracture and this I have had so I guess I have had OCD. when I originally injured my knee in 1993 (tore my ACL, MCL and MORE) I was also diagnosed with an osteochondral fracture about 8mm across on the left Medial Femoral Condyle. This has coused hassles over time and is from the intial trauma that caused me to tear the ligaments and things (I stepped in a hole with my lower leg staying still and my body rotating through my knee ). Sharon > Hi Everyone > > I was wondering if any one has ever heard of this and / or does it > have a connection with EDS? My cousin is suspected of having this. > She does not have EDS (at least not diagnosed or show symptoms) but is > on the side of the famliy that I got the EDS genes from. Any > information would be greatly appreciated. > > Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hey Stacey I looked up OCD and found out the other name ofr it is Osteochondral fracture and this I have had so I guess I have had OCD. when I originally injured my knee in 1993 (tore my ACL, MCL and MORE) I was also diagnosed with an osteochondral fracture about 8mm across on the left Medial Femoral Condyle. This has coused hassles over time and is from the intial trauma that caused me to tear the ligaments and things (I stepped in a hole with my lower leg staying still and my body rotating through my knee ). Sharon > Hi Everyone > > I was wondering if any one has ever heard of this and / or does it > have a connection with EDS? My cousin is suspected of having this. > She does not have EDS (at least not diagnosed or show symptoms) but is > on the side of the famliy that I got the EDS genes from. Any > information would be greatly appreciated. > > Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 What Should I Know About Osteochondritis Dissecans? What is OCD? In osteochondritis dissecans (OCD for short), a loose piece of bone and cartilage separates from the end of the bone. The loose piece may stay in place or fall into the joint space, making the joint unstable. This causes pain and feelings that the joint is " catching " or " giving way. " These loose pieces are sometimes called " joint mice. " OCD usually affects the knees and elbows. Who gets OCD? Anyone can get OCD, but it happens more often in boys and young men 10 to 20 years of age, while they are still growing. OCD is being diagnosed more often in girls as they become more active in sports. It affects athletes, especially gymnasts and baseball players.The adult form occurs in mature bone, and the juvenile form occurs in growing bone. How do I know my joint pain is OCD? If you have a sore joint (especially your knee or elbow), see your doctor. You might have swelling. You might not be able to extend your arm or leg fully. Your pain may or may not be related to an injury. You may have pain during activity and feel stiff after resting. These are all clues to your doctor that you may have OCD. Your doctor will check you to be sure the joint is stable and check for extra fluid in the joint. Your doctor will consider the possible causes of joint pain, such as fractures, sprains and OCD. If OCD is suspected, your doctor will order x-rays to check all sides of the joint. What tests should I have? If signs of OCD are seen on x-ray of one joint, you'll have x-rays of both joints to compare them. After this, you may have MRI (magnetic resonance imaging). MRI can show if the loose piece is still in place or if it has moved into the joint space. If the loose piece is unstable, you might need surgery to remove it or secure it. If the loose piece is stable you may not need surgery, but you may need other kinds of treatment. Do I have to stop sports activities? If a nonsurgical treatment is recommended, you should avoid activities that cause discomfort. You should avoid competitive sports for six to eight weeks. Your doctor may suggest stretching exercises or swimming instead. Can OCD be cured? Young people have the best chance of returning to their usual activity level, although they might not be able to keep playing sports with repetitive motions, such as baseball pitching. Adults are more likely to need surgery and are less likely to be completely cured. They may get arthritis in the joint later on. This handout provides a general overview on this topic and may not apply to everyone. To find out if this handout applies to you and to get more information on this subject, talk to your family doctor. Visit familydoctor.org for information on this and many other health-related topics. Copyright © 2000 by the American Academy of Family Physicians. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 What Should I Know About Osteochondritis Dissecans? What is OCD? In osteochondritis dissecans (OCD for short), a loose piece of bone and cartilage separates from the end of the bone. The loose piece may stay in place or fall into the joint space, making the joint unstable. This causes pain and feelings that the joint is " catching " or " giving way. " These loose pieces are sometimes called " joint mice. " OCD usually affects the knees and elbows. Who gets OCD? Anyone can get OCD, but it happens more often in boys and young men 10 to 20 years of age, while they are still growing. OCD is being diagnosed more often in girls as they become more active in sports. It affects athletes, especially gymnasts and baseball players.The adult form occurs in mature bone, and the juvenile form occurs in growing bone. How do I know my joint pain is OCD? If you have a sore joint (especially your knee or elbow), see your doctor. You might have swelling. You might not be able to extend your arm or leg fully. Your pain may or may not be related to an injury. You may have pain during activity and feel stiff after resting. These are all clues to your doctor that you may have OCD. Your doctor will check you to be sure the joint is stable and check for extra fluid in the joint. Your doctor will consider the possible causes of joint pain, such as fractures, sprains and OCD. If OCD is suspected, your doctor will order x-rays to check all sides of the joint. What tests should I have? If signs of OCD are seen on x-ray of one joint, you'll have x-rays of both joints to compare them. After this, you may have MRI (magnetic resonance imaging). MRI can show if the loose piece is still in place or if it has moved into the joint space. If the loose piece is unstable, you might need surgery to remove it or secure it. If the loose piece is stable you may not need surgery, but you may need other kinds of treatment. Do I have to stop sports activities? If a nonsurgical treatment is recommended, you should avoid activities that cause discomfort. You should avoid competitive sports for six to eight weeks. Your doctor may suggest stretching exercises or swimming instead. Can OCD be cured? Young people have the best chance of returning to their usual activity level, although they might not be able to keep playing sports with repetitive motions, such as baseball pitching. Adults are more likely to need surgery and are less likely to be completely cured. They may get arthritis in the joint later on. This handout provides a general overview on this topic and may not apply to everyone. To find out if this handout applies to you and to get more information on this subject, talk to your family doctor. Visit familydoctor.org for information on this and many other health-related topics. Copyright © 2000 by the American Academy of Family Physicians. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 What Should I Know About Osteochondritis Dissecans? What is OCD? In osteochondritis dissecans (OCD for short), a loose piece of bone and cartilage separates from the end of the bone. The loose piece may stay in place or fall into the joint space, making the joint unstable. This causes pain and feelings that the joint is " catching " or " giving way. " These loose pieces are sometimes called " joint mice. " OCD usually affects the knees and elbows. Who gets OCD? Anyone can get OCD, but it happens more often in boys and young men 10 to 20 years of age, while they are still growing. OCD is being diagnosed more often in girls as they become more active in sports. It affects athletes, especially gymnasts and baseball players.The adult form occurs in mature bone, and the juvenile form occurs in growing bone. How do I know my joint pain is OCD? If you have a sore joint (especially your knee or elbow), see your doctor. You might have swelling. You might not be able to extend your arm or leg fully. Your pain may or may not be related to an injury. You may have pain during activity and feel stiff after resting. These are all clues to your doctor that you may have OCD. Your doctor will check you to be sure the joint is stable and check for extra fluid in the joint. Your doctor will consider the possible causes of joint pain, such as fractures, sprains and OCD. If OCD is suspected, your doctor will order x-rays to check all sides of the joint. What tests should I have? If signs of OCD are seen on x-ray of one joint, you'll have x-rays of both joints to compare them. After this, you may have MRI (magnetic resonance imaging). MRI can show if the loose piece is still in place or if it has moved into the joint space. If the loose piece is unstable, you might need surgery to remove it or secure it. If the loose piece is stable you may not need surgery, but you may need other kinds of treatment. Do I have to stop sports activities? If a nonsurgical treatment is recommended, you should avoid activities that cause discomfort. You should avoid competitive sports for six to eight weeks. Your doctor may suggest stretching exercises or swimming instead. Can OCD be cured? Young people have the best chance of returning to their usual activity level, although they might not be able to keep playing sports with repetitive motions, such as baseball pitching. Adults are more likely to need surgery and are less likely to be completely cured. They may get arthritis in the joint later on. This handout provides a general overview on this topic and may not apply to everyone. To find out if this handout applies to you and to get more information on this subject, talk to your family doctor. Visit familydoctor.org for information on this and many other health-related topics. Copyright © 2000 by the American Academy of Family Physicians. Quote Link to comment Share on other sites More sharing options...
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