Re: Mixed results from hospital visit

[Guest guest]

SHOOT, Jo, I know you were hoping for better results than this. If

you did choose to have the wrist fused, could you then use crutches??

I'm so sorry for you. But it could be worse.

To brighten your world, I will tell you about a story I saw on TV the

other night. It was about a boy that was born with just tiny stumps

for legs, and the lower part of his abdomen was " missing " . The

stumps were more in the way than useful, so they amputated them. So,

basically he ended up with a body that was from about and inch or two

below his chest, up. He got around in a wheelchair, of course, but

ALSO, on his hands, kind of like a monkey. He went to prom, even

break danced there! He played basketball. He said the dumbest thing

he ever did, was to tell a friend to spin him while he was sitting on

the wheel of his wheelchair (it was on it's side). The announcer

asked him what happened, and he said he flew off and split his head

open and had to have stitches - and then he laughed about it! He

had the BEST attitude of ANYONE I had EVER seen! He was going to

college. He said you could either sit around and whine and be

miserable all your life, or you could make the best of what you have,

and have as much fun as you can. Oh my, what I could LEARN from that

young man!

Jo, I'm not saying you're whining - far from it! With all that's

happened to you, you have a great uplifting spirit, and I'm so proud

of you! I just told you this so that you remember to always know

there are others that are worse off than ourselves! And knowing you,

I bet you're smiling right now!

The one thing we couldn't figure out, was how he got rid of waste

products. I assume he had a colostomy or something, but you sure

couldn't tell! I guess he had sperm as well, as they said they sure

weren't counting out having children for this young man! He said he

has dated, but does not want anything serious while he's going away

to school. I would give anything just to meet him and hang out with

him! I was thinking earlier, that my neck was bothering me today,

but just remembering this story, has eased the pain!

Good luck, and please keep us informed! Thinking of you!

Love Lana

> So I have been placed back in to a plaster - big bird yellow this

> time! - and handed over to Mac for further treatment and care.

I have to confess that the

> ease and frequency with which my worst is dislocating and the

> severity of the damage being done now is making me wonder whether

> the time has come to just cut my loses and fuse the darned thing. I

> don't really want that but I can't keep going on in the cycle of

> constantly dislocating and weakening the joint. I'm spending more

> time in splints and casts than out and I just have to consider

> whether enough is enough. I think I will talk it over with Mac next

> week in more detail, so that I at least know the full picture and

> can decide whether it's something we should do sooner rather than

> later.

[Guest guest]

SHOOT, Jo, I know you were hoping for better results than this. If

you did choose to have the wrist fused, could you then use crutches??

I'm so sorry for you. But it could be worse.

To brighten your world, I will tell you about a story I saw on TV the

other night. It was about a boy that was born with just tiny stumps

for legs, and the lower part of his abdomen was " missing " . The

stumps were more in the way than useful, so they amputated them. So,

basically he ended up with a body that was from about and inch or two

below his chest, up. He got around in a wheelchair, of course, but

ALSO, on his hands, kind of like a monkey. He went to prom, even

break danced there! He played basketball. He said the dumbest thing

he ever did, was to tell a friend to spin him while he was sitting on

the wheel of his wheelchair (it was on it's side). The announcer

asked him what happened, and he said he flew off and split his head

open and had to have stitches - and then he laughed about it! He

had the BEST attitude of ANYONE I had EVER seen! He was going to

college. He said you could either sit around and whine and be

miserable all your life, or you could make the best of what you have,

and have as much fun as you can. Oh my, what I could LEARN from that

young man!

Jo, I'm not saying you're whining - far from it! With all that's

happened to you, you have a great uplifting spirit, and I'm so proud

of you! I just told you this so that you remember to always know

there are others that are worse off than ourselves! And knowing you,

I bet you're smiling right now!

The one thing we couldn't figure out, was how he got rid of waste

products. I assume he had a colostomy or something, but you sure

couldn't tell! I guess he had sperm as well, as they said they sure

weren't counting out having children for this young man! He said he

has dated, but does not want anything serious while he's going away

to school. I would give anything just to meet him and hang out with

him! I was thinking earlier, that my neck was bothering me today,

but just remembering this story, has eased the pain!

Good luck, and please keep us informed! Thinking of you!

Love Lana

> So I have been placed back in to a plaster - big bird yellow this

> time! - and handed over to Mac for further treatment and care.

I have to confess that the

> ease and frequency with which my worst is dislocating and the

> severity of the damage being done now is making me wonder whether

> the time has come to just cut my loses and fuse the darned thing. I

> don't really want that but I can't keep going on in the cycle of

> constantly dislocating and weakening the joint. I'm spending more

> time in splints and casts than out and I just have to consider

> whether enough is enough. I think I will talk it over with Mac next

> week in more detail, so that I at least know the full picture and

> can decide whether it's something we should do sooner rather than

> later.

[Guest guest]

Jo,

Keeping you in my prayers!!!! Sorry to hear about the wrist!

Hugs,

Sue

[Guest guest]

Well, Jo, I am glad to hear about your shoulder - sounds like it is healing

nicely.

I wish you had gotten better news about your wrist - 6 months in a cast (I can't

even imagine) and possible surgery?? Don't you sorta wonder when enough is

enough? I hope your meeting with Mac goes well next week and, I do hope your

wrist gets better faster than the doctors think!!

Love Patti

Mixed results from hospital visit

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Hi Jo,

I'm so thrilled that your shoulder has come along so well! That's

just fabulous! I know you have really sweated it out with all that

hard PT and surgery rehab and I sure am happy to hear it is all

paying off! That's just wonderful!

I am very, very, sorry to hear of that darn wrist Jo :-( Jeeeezzz

that much time stuck immobilized with the possibility of surgery is

awful! I really hope it doesn't come to that... Let us all know

what Mac says. I sure hope he can help out with your jaw too. You

sure don't need anxiety about eating, yawning, or opening your mouth

on top of things!!!!

I'm very sorry that these darn upper body issues are pushing forward

the need for a wheelchair for your lower body issues. Take things

one day at a time, as they come... I know there are some here using

a wheelchair, and I think most found that while making the transition

to the w/c was upsetting, the new found freedom of being able to be

up longer and do more was very rewarding. I sure hope that when the

day comes that its time for the w/c that it serves as a tool to

reclaim some of your activities.

Hang in there Jo... I'm a bit behind in everything computer related

with tending to Raffi, but I'll get an email off to you soon dear.

Rest up and take things easy...

(((((((((((((((HUGS)))))))))))))))))

-Rhea

[Guest guest]

Hi Jo,

I'm so thrilled that your shoulder has come along so well! That's

just fabulous! I know you have really sweated it out with all that

hard PT and surgery rehab and I sure am happy to hear it is all

paying off! That's just wonderful!

I am very, very, sorry to hear of that darn wrist Jo :-( Jeeeezzz

that much time stuck immobilized with the possibility of surgery is

awful! I really hope it doesn't come to that... Let us all know

what Mac says. I sure hope he can help out with your jaw too. You

sure don't need anxiety about eating, yawning, or opening your mouth

on top of things!!!!

I'm very sorry that these darn upper body issues are pushing forward

the need for a wheelchair for your lower body issues. Take things

one day at a time, as they come... I know there are some here using

a wheelchair, and I think most found that while making the transition

to the w/c was upsetting, the new found freedom of being able to be

up longer and do more was very rewarding. I sure hope that when the

day comes that its time for the w/c that it serves as a tool to

reclaim some of your activities.

Hang in there Jo... I'm a bit behind in everything computer related

with tending to Raffi, but I'll get an email off to you soon dear.

Rest up and take things easy...

(((((((((((((((HUGS)))))))))))))))))

-Rhea