Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 , Don't ever give up please? may have EDS, did she see Dr. Beyers? Your son does sound like he has Mono too! Since he is tired and sleepy. It is contagious. You do belong here! You don't always have a high fever with Mono. Sorry about and her ribs still hurting. We all get in this mode! So many Dr.'s, so many different explanations and wrong diagnosis's. Ya gotta hang in there with the rest of us. Please stay on Ceda. Hugs, S. Hugs, S. Re: Where's ? > I'm here. Just kinda " stepping back " from everything. > had her appt. at Seattle Children's Hospital Rheumatology last week. They say she doesn't have EDS. > They say she has no rheumatological disorder. > They say she has this amplified pain thing. They want her to go to their program for teens with this problem. Apparently, kids from all over the US come to Seattle for this program. Some, they hospitalize for a couple weeks, some do the outpatient program. > Whatever. I'm done with doctors. She may do the program. We haven't decided yet. She will go in for an eval with them soon. Just waiting for the call. > > is still suffering with her ribs. They were getting better, then she re-injured them again. > > I'm worried my son may have mono now. He comes home from school and sleeps every day now. It may just be his age - he's 13. I know he's in a growth spurt. He's never slept in the day, since he was a baby. > It's probably his age. I don't think he had a high fever. > > Anyway, I don't even know if I belong here. I have gotten conflicting dx's from so many doctors. > The latest, is that we just amplify our pain, and nothing is wrong. > How can you amplify the pain of a back muscle spasm? > You can actually see the muscles in her back constricting when she has one. Like her left side is just shrinking. > How can they say it's all in her head, when she cries almost every day because she can't play soccer, or even get through a day at school? > Everything that my kids and I had had go wrong with our bodies over the last 2 years, cannot be caused by our thinking. > Whatever. I give up. > Screw it. > > > > Quote Link to comment Share on other sites More sharing options...
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