Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 , (((HUGS))) I'm so sorry you're going through heck right now! That just sounds awful. Are you still experiencing all the nausea and vomiting? :-( I'm afraid I can't offer a whole lot of help ... I really hope things turn around. Perhaps you could ask for something for the nausea. That's just awful. Take care, OK? Hoping you feel much better soon -Rhea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Hi , I have cervical spinal stenosis, and I'm guessing I have cervical instability, but have never had a fluctuation in temps like that - mine is always on the low side. Sorry I can't be of more help to you! I'll be anxious to learn what you find out. Love Lana > Hi all, > > Ever since i had the pacemaker put in my body temperatures have been acting up. That was also when the headaches got unbearable too and the constant vomiting started. I know i still have cervical instability despite the fusion. My incision from my pacemaker opened up shortly after the steri-strips came off, so they had my on Keflex to prevent infection for 10 days. My temperature is usually like 97.2 then it kept on going as high as 99.8 so they had me come in for a wound check and did a culture on it which came back fine. Now at times my temperature will be up to 101, then 20 minutes later down to 97 again. I'm not sure if this could be eds related or maybe a sign of brain stem compression or cervical instability. Has anybody else had problems with this. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 , isn't nausea and vomiting a sign of a spinal fluid leak, as well as headaches???? I'm sure they've check for that, right?? Love Lana > the nausea and vomiting has been going on for well over a month now, I've > lost track. Before it was just when the headache was really bad. Now they > have me on diamox and i haven't worked up to my full dose yet, but with what > I'm on it helps for 2-3 hours but it doesn't help with the nausea or > vomiting. They've had me on Zofran which helped at first but that doesn't > do any good either, neither does phenergan. That's why I'm so concerned it > could be brain stem compression, but i know it could be due to high icp > also. I feel like I'm ona roller coaster that missed my stop and i can't > get off. > > > Re: odd temperatures > > > > , > > > > (((HUGS))) I'm so sorry you're going through heck right now! That > > just sounds awful. Are you still experiencing all the nausea and > > vomiting? :-( > > > > I'm afraid I can't offer a whole lot of help ... I really hope > > things turn around. Perhaps you could ask for something for the > > nausea. That's just awful. > > > > Take care, OK? Hoping you feel much better soon > > > > -Rhea > > > > > > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 , isn't nausea and vomiting a sign of a spinal fluid leak, as well as headaches???? I'm sure they've check for that, right?? Love Lana > the nausea and vomiting has been going on for well over a month now, I've > lost track. Before it was just when the headache was really bad. Now they > have me on diamox and i haven't worked up to my full dose yet, but with what > I'm on it helps for 2-3 hours but it doesn't help with the nausea or > vomiting. They've had me on Zofran which helped at first but that doesn't > do any good either, neither does phenergan. That's why I'm so concerned it > could be brain stem compression, but i know it could be due to high icp > also. I feel like I'm ona roller coaster that missed my stop and i can't > get off. > > > Re: odd temperatures > > > > , > > > > (((HUGS))) I'm so sorry you're going through heck right now! That > > just sounds awful. Are you still experiencing all the nausea and > > vomiting? :-( > > > > I'm afraid I can't offer a whole lot of help ... I really hope > > things turn around. Perhaps you could ask for something for the > > nausea. That's just awful. > > > > Take care, OK? Hoping you feel much better soon > > > > -Rhea > > > > > > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 You're right, , it IS hard when the symptoms can fit so many different things! Sorry I couldn't be of more help, I hope you do get an answer soon and that you begin to feel much better. Please keep us informed. Love Lana > > > the nausea and vomiting has been going on for well over a month > > now, I've > > > lost track. Before it was just when the headache was really bad. > > Now they > > > have me on diamox and i haven't worked up to my full dose yet, but > > with what > > > I'm on it helps for 2-3 hours but it doesn't help with the nausea > > or > > > vomiting. They've had me on Zofran which helped at first but that > > doesn't > > > do any good either, neither does phenergan. That's why I'm so > > concerned it > > > could be brain stem compression, but i know it could be due to > > high icp > > > also. I feel like I'm ona roller coaster that missed my stop and > > i can't > > > get off. > > > > > > > > > Re: odd temperatures > > > > > > > > > > , > > > > > > > > (((HUGS))) I'm so sorry you're going through heck right now! > > That > > > > just sounds awful. Are you still experiencing all the nausea and > > > > vomiting? :-( > > > > > > > > I'm afraid I can't offer a whole lot of help ... I really hope > > > > things turn around. Perhaps you could ask for something for the > > > > nausea. That's just awful. > > > > > > > > Take care, OK? Hoping you feel much better soon > > > > > > > > -Rhea > > > > > > > > > > > > > > > > > > > > To learn more about EDS, visit our website: > > http://www.ehlersdanlos.ca > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 You're right, , it IS hard when the symptoms can fit so many different things! Sorry I couldn't be of more help, I hope you do get an answer soon and that you begin to feel much better. Please keep us informed. Love Lana > > > the nausea and vomiting has been going on for well over a month > > now, I've > > > lost track. Before it was just when the headache was really bad. > > Now they > > > have me on diamox and i haven't worked up to my full dose yet, but > > with what > > > I'm on it helps for 2-3 hours but it doesn't help with the nausea > > or > > > vomiting. They've had me on Zofran which helped at first but that > > doesn't > > > do any good either, neither does phenergan. That's why I'm so > > concerned it > > > could be brain stem compression, but i know it could be due to > > high icp > > > also. I feel like I'm ona roller coaster that missed my stop and > > i can't > > > get off. > > > > > > > > > Re: odd temperatures > > > > > > > > > > , > > > > > > > > (((HUGS))) I'm so sorry you're going through heck right now! > > That > > > > just sounds awful. Are you still experiencing all the nausea and > > > > vomiting? :-( > > > > > > > > I'm afraid I can't offer a whole lot of help ... I really hope > > > > things turn around. Perhaps you could ask for something for the > > > > nausea. That's just awful. > > > > > > > > Take care, OK? Hoping you feel much better soon > > > > > > > > -Rhea > > > > > > > > > > > > > > > > > > > > To learn more about EDS, visit our website: > > http://www.ehlersdanlos.ca > > > > Quote Link to comment Share on other sites More sharing options...
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