Hi all, and Thanks

[Guest guest]

Hi all! Especially to Cindy C., Cindy H, Patti, TJ, Crystal, Joyce

R., , Sue K.,Jill,Betty,Jen, ,Mike U.,Lana, Debbi,

Thankyou all for your kindness and words of support, I do so

appreciate them and need them. I thought I could write you all

individually, but it has become impossible at this point.I'm so far

behind. Mike came to visit me last week, he worked and worked on

everything and I really felt pretty good! But I felt my right

shoulder tear the next night after he left, it popped out of the

socket and back the day before he got here, first time for that. It

happened to each hip once years ago, but not my shoulders. Still no

word from NIH. As for Larry, gees! Some days are ok some days are

still terrible! I totally flunked my Dexa scan two weeks ago, went

from a -2.7 on my spine to a -3.0 on it,hips worse too! I think I

broke my coccyx 3 weeks ago when I forgot to put my, how do you say

it, my plastic toliet seat elevator on the toliet, hit the bottom of

the bowl, how stupid of me yet funny. That's when ya really know you

hit the shit bottom. Well Mike fixed that and it's holding. I do

seem to stand more erect since he worked on my spine, the scoliosis

doesn't seem to be as bad. My knees don't hurt as bad! I love you

Mikey and Darlene, see you all next year! But my lower spine where I

need a fusion is hurting really bad again. The Painter is here and

slowly working on painting my house, the porch replacement will come

in Sept or Oct. I sure wish Mike could have healed my house too !

Welcome to all the newbee's that have joined us. Good night for now.

Love to you all!

S.

P.S. Lana I'll try to call this weekend, OK?

[Guest guest]

Hi !!

So good to see you on list again -- even if only once and awhile. We have all

missed you!!!

Sorry to hear about your shoulder - I hope it's OK and will be sending healing

thoughts your way. It must be so frustrating not hearing anything from the NIH

-- I think I might be tempted to go there and have a little chat with my cells

(start growing or else!!!!! LOL!!).

Take care of yourself and hope to hear from you soon.

Love, Patti

Hi all, and Thanks

Hi all! Especially to Cindy C., Cindy H, Patti, TJ, Crystal, Joyce

R., , Sue K.,Jill,Betty,Jen, ,Mike U.,Lana, Debbi,

Thankyou all for your kindness and words of support, I do so

appreciate them and need them. I thought I could write you all

individually, but it has become impossible at this point.I'm so far

behind. Mike came to visit me last week, he worked and worked on

everything and I really felt pretty good! But I felt my right

shoulder tear the next night after he left, it popped out of the

socket and back the day before he got here, first time for that. It

happened to each hip once years ago, but not my shoulders. Still no

word from NIH. As for Larry, gees! Some days are ok some days are

still terrible! I totally flunked my Dexa scan two weeks ago, went

from a -2.7 on my spine to a -3.0 on it,hips worse too! I think I

broke my coccyx 3 weeks ago when I forgot to put my, how do you say

it, my plastic toliet seat elevator on the toliet, hit the bottom of

the bowl, how stupid of me yet funny. That's when ya really know you

hit the shit bottom. Well Mike fixed that and it's holding. I do

seem to stand more erect since he worked on my spine, the scoliosis

doesn't seem to be as bad. My knees don't hurt as bad! I love you

Mikey and Darlene, see you all next year! But my lower spine where I

need a fusion is hurting really bad again. The Painter is here and

slowly working on painting my house, the porch replacement will come

in Sept or Oct. I sure wish Mike could have healed my house too !

Welcome to all the newbee's that have joined us. Good night for now.

Love to you all!

S.

P.S. Lana I'll try to call this weekend, OK?

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca