Re: Vitamin/supplement/Diets

[Guest guest]

In a message dated 4/27/03 6:53:33 PM Eastern Daylight Time,

jbsmom@... writes:

> What types of vitamins/supplements/diets are your children on and have you

> found that these things have helped your children? I have been reading and

> reading and there is just so many different things to try that I don't know

> where to start, what to try etc.

Cod liver oil, Vitamin C, Magnesium and Zinc and Selenium (only twice a week)

I've also taken off milk.

Just try to write down when you start trying something new and make notes to

yourself on comments people make (ST OT etc) don't tell anyone what you're

doing unless you think there might be a reason for them to know.

[Guest guest]

> I am not sure if this topic is appropriate for this list and I am NOT

trying to start a debate. I have found this group so support and fun so if

these questions are inappropriate, someone please tell me

>

Nope, not inappropriate! No one around here will DARE tell you what is

" best " , so there's no problem! LOL.

> What types of vitamins/supplements/diets are your children on and have you

found that these things have helped your children? I have been reading and

reading and there is just so many different things to try that I don't know

where to start, what to try etc.

>

I tried SuperNuThera from Kirkman's Lab, a blend of B-something and

something else...I have no idea how it affected because I could never

get it into him!!!

We used DMG (dimethylglicene, available at any health food store) and that

really sped up his speech progress, then after a year lost its effect. This

was the BEST supplement we used with him; while it was effective it seemed

to perform miracles on the kid.

We used TMG (trimethylglycine, from Kirkman's), and it made him very hyper,

so we didn'd use it for very long.

We don't use any supplements now, just clonidine (now called Dixoret here in

ONtario or maybe Canada) for his hyperactivity. It's better because it's

FREE under our drug plan . It has a slight effect on his ability to

sit still and attend, but not as much as I'd like.

So that's our history of supplements! If I was to endorse one, it would

definitely be the DMG.

Jacquie

[Guest guest]

Oh - I forgot diet!

We went gfcf. It's a long story, but the last chapter reads that casein is

absolute poison to 's brain (and mine as well), but gluten seems to have

no adverse effect.

Short version: within days of no casein, begain talking in sentences!

Whenever casein enters his system (like when his idiot home therapist gave

him cheetos, or his idiot father took him out for ice cream), he seems to

vanish behind a wall of stims and off-the-wall behaviour. When the casein

leaves his system, so do the stims.

So we are a strict casein-free household that still eats grains, and that

works for us!

Jacquie

[Guest guest]

Oh - I forgot diet!

We went gfcf. It's a long story, but the last chapter reads that casein is

absolute poison to 's brain (and mine as well), but gluten seems to have

no adverse effect.

Short version: within days of no casein, begain talking in sentences!

Whenever casein enters his system (like when his idiot home therapist gave

him cheetos, or his idiot father took him out for ice cream), he seems to

vanish behind a wall of stims and off-the-wall behaviour. When the casein

leaves his system, so do the stims.

So we are a strict casein-free household that still eats grains, and that

works for us!

Jacquie

[Guest guest]

Thanks Jacquie!

I keep reading about DMG so now I will definitely have to try it!! Is it a

liquid? I think has an addiction (lack of a better word) to milk. When

upset he drinks it and settles down. I have read about the GFCF diet and also

the enzymes. I was already to go Casein free and chickened out with him starting

school 2 weeks ago.

Thanks for sharing and I look forward to hearing from others

Warm Regards

& ASD 11/25/00 in Maine

Re: Vitamin/supplement/Diets

> I am not sure if this topic is appropriate for this list and I am NOT

trying to start a debate. I have found this group so support and fun so if

these questions are inappropriate, someone please tell me

>

Nope, not inappropriate! No one around here will DARE tell you what is

" best " , so there's no problem! LOL.

> What types of vitamins/supplements/diets are your children on and have you

found that these things have helped your children? I have been reading and

reading and there is just so many different things to try that I don't know

where to start, what to try etc.

>

I tried SuperNuThera from Kirkman's Lab, a blend of B-something and

something else...I have no idea how it affected because I could never

get it into him!!!

We used DMG (dimethylglicene, available at any health food store) and that

really sped up his speech progress, then after a year lost its effect. This

was the BEST supplement we used with him; while it was effective it seemed

to perform miracles on the kid.

We used TMG (trimethylglycine, from Kirkman's), and it made him very hyper,

so we didn'd use it for very long.

We don't use any supplements now, just clonidine (now called Dixoret here in

ONtario or maybe Canada) for his hyperactivity. It's better because it's

FREE under our drug plan . It has a slight effect on his ability to

sit still and attend, but not as much as I'd like.

So that's our history of supplements! If I was to endorse one, it would

definitely be the DMG.

Jacquie

[Guest guest]

Thanks Jacquie!

I keep reading about DMG so now I will definitely have to try it!! Is it a

liquid? I think has an addiction (lack of a better word) to milk. When

upset he drinks it and settles down. I have read about the GFCF diet and also

the enzymes. I was already to go Casein free and chickened out with him starting

school 2 weeks ago.

Thanks for sharing and I look forward to hearing from others

Warm Regards

& ASD 11/25/00 in Maine

Re: Vitamin/supplement/Diets

> I am not sure if this topic is appropriate for this list and I am NOT

trying to start a debate. I have found this group so support and fun so if

these questions are inappropriate, someone please tell me

>

Nope, not inappropriate! No one around here will DARE tell you what is

" best " , so there's no problem! LOL.

> What types of vitamins/supplements/diets are your children on and have you

found that these things have helped your children? I have been reading and

reading and there is just so many different things to try that I don't know

where to start, what to try etc.

>

I tried SuperNuThera from Kirkman's Lab, a blend of B-something and

something else...I have no idea how it affected because I could never

get it into him!!!

We used DMG (dimethylglicene, available at any health food store) and that

really sped up his speech progress, then after a year lost its effect. This

was the BEST supplement we used with him; while it was effective it seemed

to perform miracles on the kid.

We used TMG (trimethylglycine, from Kirkman's), and it made him very hyper,

so we didn'd use it for very long.

We don't use any supplements now, just clonidine (now called Dixoret here in

ONtario or maybe Canada) for his hyperactivity. It's better because it's

FREE under our drug plan . It has a slight effect on his ability to

sit still and attend, but not as much as I'd like.

So that's our history of supplements! If I was to endorse one, it would

definitely be the DMG.

Jacquie

[Guest guest]

Hi ,

I have no problem answering the question and I'm curious to see what

other people answer. If you want to ask me more questions about

anything I'm doing, please contact me offlist or in IM, I'm more than

happy to discuss it further.

Jordan is Gluten-Free, Casein-Free. I haven't bothered to eliminate all

the other stuff that you hear from other people (corn, soy, yadda

yadda). He doesn't seem to have huge reactions to those things. Though

I do try to limit the amount of soy he gets just because of health

concerns with soy. Can't say I'm totally successful right now at

limiting soy because he's not eating anything but crackers (soy meal

ones right now, waiting for others to be in stock) and soy protein

supplement in his rice milk.

He gets Kirkman's ProBio Gold, a probiotic (the good gut flora) because

he has intermittent problems with yeasty diarrhea. I had discontinued

it but his DAN! Doctor told me to start it back up. His DAN! Doctor

also just added cod liver oil (lemon flavored, imagine that) and I

haven't been so good about making sure he gets that yet. Gotta really

buckle down on it. I'm supposed to add a multivitamin called " Sea

Silver " but I haven't found it in a healthfood store yet. The ultimate

goal is to get him taking Super NuThera but he's unable to tolerate a

lot of B-vitamins yet. I have enzymes to supplement his meals but he

hasn't eaten table foods in over a month so he's not taking those right

now.

It sounds like a lot but really it's hardly anything compared to a lot

of people I know. My ultimate goal is to get his gut healed so he

doesn't *have* to take anything but a good multivitamin and maybe some

enzymes with gluten or casein foods he eats occasionally.

Debbie with twins

- Jordan (ASD) 2.5yo

- (NT) 2.5yo

[Guest guest]

> What types of vitamins/supplements/diets are your children on and

> have you found that these things have helped your children? >

takes a children's multivitamin (not full strength, because we

supplement some things and don't want to overdose him),

calcium/magnesium/zinc, coromega (omega 3 EFA). I am thinking

seriously of ordering something called " Kelp Plus " , which is a

combination of minerals, amino acids, digestive enzymes, etc...but

haven't done so yet. Maybe today. ;-)

The ca/mg/zn seems to be the most help to him...makes him visibly

calmer, better able to focus. Coromega gives us better eye contact

and more conversational-sounding jabbering.

is sensitive to milk products, so we stay away from

those...also strawberries and milled corn (that one's fun).

Things that didn't work? Multi-B vitamins...vitamin C---both made

him incredibly hyper. Acidophilis---had to break open the capsules

and apparently it just tastes too bad. Nordic Naturals (strawberry

flavored capsules of fish oil)---took the first one, threw the next

behind the fridge. Shaklee Optiflora--tiny, extra tough capsule (to

make it to the small intestine before breaking apart) of probiotics

that you are supposed to be able to hide in food (HAHAHAHAHA)--bit

thru capsule, made the worst face I've ever seen....

For us, the main issue isn't what works, it's what I can get down him

to even try.

Thoughts? Try one thing at a time, give it at least a week or

two...clear anything new with pharmacist/dr for drug interactions and

appropriate (read " safe " ) dosages...don't believe everything you hear

about THE cure.

Raena

[Guest guest]

Nordic Naturals (strawberry

> flavored capsules of fish oil)---took the first one, threw the next

> behind the fridge.

Oh, Putter ADORED these. I don't know that they did anything to his autism,

but they were a healthy supplement, and he loved them so much that we had to

hide them.

I had forgotten those; I will have to order some more; thanks, Raena!

Salli

[Guest guest]

> He gets Kirkman's ProBio Gold, a probiotic (the good gut flora) because

> he has intermittent problems with yeasty diarrhea. I had discontinued

> it but his DAN! Doctor told me to start it back up.

We did this, but I have never understood why. Putter never had any problem

with diarrhea. I don't think he has any gut issues at all. He took the

ProBio Gold okay, but it seemed pointless.

His DAN! Doctor

> also just added cod liver oil (lemon flavored, imagine that) and I

> haven't been so good about making sure he gets that yet. Gotta really

> buckle down on it.

Ask about the strawberry flavored Nordic Naturals; they serve the same

purpose and when Putter refused cod liver oil, his doctor suggested those.

Most of our family liked them (although not Raena's !).

The ultimate

> goal is to get him taking Super NuThera but he's unable to tolerate a

> lot of B-vitamins yet.

Putter loathed Super NuThera in whatever form I tried it. Enrique loathed

it too; he said it should not even be in the house and he refused to help me

force it into Putter. We gave up.

>

> It sounds like a lot but really it's hardly anything compared to a lot

> of people I know. My ultimate goal is to get his gut healed so he

> doesn't *have* to take anything but a good multivitamin and maybe some

> enzymes with gluten or casein foods he eats occasionally.

>

Putter was on tons of stuff. None of it changed the essential Putter and,

as I just said, I don't think his gut needed any healing anyway.

Salli

[Guest guest]

> Putter was on tons of stuff. None of it changed the essential

> Putter and, as I just said, I don't think his gut needed any

> healing anyway. >

Salli,

I have to tell you how much BETTER this statement makes me feel.

When was little, I read about so many of these things for kids

with autism, as there was the beginnings of discussions of using this

kind of supplementation for kids with apraxia (at that time, '

only diagnosis was dyspraxia due to DSI)...I didn't really pay much

attention to them because he wasn't autistic--and didn't even have a

tentative diagnosis of CDD until 6 1/2...beyond the *optimum* age for

starting stuff like GFCF. So I always struggled with that " too

little too late " feeling...and wondered if it is my fault that

is the way he is.

I have kicked myself so many times for not trying those things

earlier...I'll never know if it would have helped or not...but at

least I can give myself the benefit of a doubt.

Raena

[Guest guest]

-

If you get to a point where you feel some of s Autistic " symptoms " are

brought on or exasberated by problems with his gut, I would recommed

Digestive Enzymes. You can read alot about them at http://www.houstonni.com

and http://www.kirkmanlabs.com .

DMG/TMG has also had positive effects on many children. We started TMG and

saw improvement. I think we stopped it because it seems like it was

affective her appetite (downward).

There are many, many more and it's really an individual choice and should be

based on an 's individual issues.

JMO

Penny :-D

Vitamin/supplement/Diets

What types of vitamins/supplements/diets are your children on and have you

found that these things have helped your children? I have been reading and

reading and there is just so many different things to try that I don't know

where to start, what to try etc.