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Saw Mac - ankle update

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Aargh, I really hate the onslaught my poor body is going through

right now. I can honestly and unashamedly admit I am in complete

agony tonight, every single part of my body hurts...even my hair

hurts. Trying to cope with the busted ankle and the cats is taking

such a huge toll on me and I am really struggling. Getting around on

two crutches with a dodgy left arm and two stuffed up legs just

isn't fun at all....my left knee is screaming and subluxiing all

over the place with having to take weight. I honestly think I'm

taking my last painful steps towards my wheelchair - I have to start

being real as my body can't keep paying the price for my pride. (

many thanks to Aase Marit for your email - you're such a star and

I'll write back properly tomorrow)

I saw Mac this afternoon and his face just drained when he saw the

state of me. He as expected had a good giggle with me about the

whole thing, knowing that I need his humour to survive this....but

he wasn't nearly as jokey as usual. That's always a worry as he only

ever stops laughing when he's worried and things are getting

serious. He tried his best to give me Mac the jolly surgeon, but

knew full well that I could see straight through him to Mac the

worried, protective surrogate father.

He sent me for more x-rays as he was concerned some of the bones

were still out of place, but fortunately everything is in alignment

again now. The amount of ligament damage is a huge problem though,

meaning I need to stay in the plaster and allow things time to heal.

Because of the trouble I'm having with my other joints and my need

to get in to stay with Prof Bird too, he is leaving me the absolute

minimum he can of two weeks before removing the cast and having a

full assessment...then decide whether I need further casting or can

get away with splinting. So I've been told to rest up and stay as

immobile as I can for the next two weeks and I'm on strict orders

to " try not to dislocate anything else, not that you have much left

to bloody dislocate! "

Sadly, I didn't get to talk about the thing I was supposed to be at

the appt for - my wrist MRI results. The results will be back, but

apparently they will be buried in his office! At this point Mac

launched into a good old fashioned moan with a friend, as his

secretary is getting her office decorated meaning all her " stuff "

has been dumped in his office, meaning he can't even get in there,

let alone find my results! Poor Mac he was not impressed and very

embarrassed at not being able to inform me of my scan, but he

promised he would brave the towers of secretarial junk and flat pack

furniture to dog them out and would either write to me or see me

when I come back for my ankle. I'm obviously disappointed as it

means another two weeks of wearing my cast splint, but I have to

confess it was hilarious seeing poor Mac whinging about the assault

on his office space! It probably sounds a bit daft, but I felt kind

of honoured that he felt comfortable enough to moan with me...he

really is more like a mate than my surgeon these days! rather

worrying really...

So anyway, here I am in a plastered and splinted up to the eye balls

and receiving some fantastic looks from people as the see me hobble

past looking like a train wreck. Sitting in Ortho outpatients was an

absolute hoot as the place was packed and not one single person

could avoid the furtive, curiosity filled ogle at my battered up

body! I felt a bit embarrassed and self conscious at first, but in

the end I kind of felt amused and a litter proud that I'd at least

taken people's minds of their own woes for a while hee-hee!

Yikes, I am hurting tonight though. Going to go take some more

painkillers and try, probably in vain to get some rest. Take care

all and know I'm thinking of you.

Love and hugs....Jo

xxx

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Jo

You're sense of humour never fails to amaze me even though you are in such

pain, you always manage to bring a smile. I am sending good & healing

(Ihope) thoughts your way.

Betty

Saw Mac - ankle update

> Aargh, I really hate the onslaught my poor body is going through

> right now. I can honestly and unashamedly admit I am in complete

> agony tonight, every single part of my body hurts...even my hair

> hurts. Trying to cope with the busted ankle and the cats is taking

> such a huge toll on me and I am really struggling. Getting around on

> two crutches with a dodgy left arm and two stuffed up legs just

> isn't fun at all....my left knee is screaming and subluxiing all

> over the place with having to take weight. I honestly think I'm

> taking my last painful steps towards my wheelchair - I have to start

> being real as my body can't keep paying the price for my pride. (

> many thanks to Aase Marit for your email - you're such a star and

> I'll write back properly tomorrow)

>

> I saw Mac this afternoon and his face just drained when he saw the

> state of me. He as expected had a good giggle with me about the

> whole thing, knowing that I need his humour to survive this....but

> he wasn't nearly as jokey as usual. That's always a worry as he only

> ever stops laughing when he's worried and things are getting

> serious. He tried his best to give me Mac the jolly surgeon, but

> knew full well that I could see straight through him to Mac the

> worried, protective surrogate father.

>

> He sent me for more x-rays as he was concerned some of the bones

> were still out of place, but fortunately everything is in alignment

> again now. The amount of ligament damage is a huge problem though,

> meaning I need to stay in the plaster and allow things time to heal.

> Because of the trouble I'm having with my other joints and my need

> to get in to stay with Prof Bird too, he is leaving me the absolute

> minimum he can of two weeks before removing the cast and having a

> full assessment...then decide whether I need further casting or can

> get away with splinting. So I've been told to rest up and stay as

> immobile as I can for the next two weeks and I'm on strict orders

> to " try not to dislocate anything else, not that you have much left

> to bloody dislocate! "

>

> Sadly, I didn't get to talk about the thing I was supposed to be at

> the appt for - my wrist MRI results. The results will be back, but

> apparently they will be buried in his office! At this point Mac

> launched into a good old fashioned moan with a friend, as his

> secretary is getting her office decorated meaning all her " stuff "

> has been dumped in his office, meaning he can't even get in there,

> let alone find my results! Poor Mac he was not impressed and very

> embarrassed at not being able to inform me of my scan, but he

> promised he would brave the towers of secretarial junk and flat pack

> furniture to dog them out and would either write to me or see me

> when I come back for my ankle. I'm obviously disappointed as it

> means another two weeks of wearing my cast splint, but I have to

> confess it was hilarious seeing poor Mac whinging about the assault

> on his office space! It probably sounds a bit daft, but I felt kind

> of honoured that he felt comfortable enough to moan with me...he

> really is more like a mate than my surgeon these days! rather

> worrying really...

>

> So anyway, here I am in a plastered and splinted up to the eye balls

> and receiving some fantastic looks from people as the see me hobble

> past looking like a train wreck. Sitting in Ortho outpatients was an

> absolute hoot as the place was packed and not one single person

> could avoid the furtive, curiosity filled ogle at my battered up

> body! I felt a bit embarrassed and self conscious at first, but in

> the end I kind of felt amused and a litter proud that I'd at least

> taken people's minds of their own woes for a while hee-hee!

>

> Yikes, I am hurting tonight though. Going to go take some more

> painkillers and try, probably in vain to get some rest. Take care

> all and know I'm thinking of you.

>

> Love and hugs....Jo

> xxx

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

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