Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Aargh, I really hate the onslaught my poor body is going through right now. I can honestly and unashamedly admit I am in complete agony tonight, every single part of my body hurts...even my hair hurts. Trying to cope with the busted ankle and the cats is taking such a huge toll on me and I am really struggling. Getting around on two crutches with a dodgy left arm and two stuffed up legs just isn't fun at all....my left knee is screaming and subluxiing all over the place with having to take weight. I honestly think I'm taking my last painful steps towards my wheelchair - I have to start being real as my body can't keep paying the price for my pride. ( many thanks to Aase Marit for your email - you're such a star and I'll write back properly tomorrow) I saw Mac this afternoon and his face just drained when he saw the state of me. He as expected had a good giggle with me about the whole thing, knowing that I need his humour to survive this....but he wasn't nearly as jokey as usual. That's always a worry as he only ever stops laughing when he's worried and things are getting serious. He tried his best to give me Mac the jolly surgeon, but knew full well that I could see straight through him to Mac the worried, protective surrogate father. He sent me for more x-rays as he was concerned some of the bones were still out of place, but fortunately everything is in alignment again now. The amount of ligament damage is a huge problem though, meaning I need to stay in the plaster and allow things time to heal. Because of the trouble I'm having with my other joints and my need to get in to stay with Prof Bird too, he is leaving me the absolute minimum he can of two weeks before removing the cast and having a full assessment...then decide whether I need further casting or can get away with splinting. So I've been told to rest up and stay as immobile as I can for the next two weeks and I'm on strict orders to " try not to dislocate anything else, not that you have much left to bloody dislocate! " Sadly, I didn't get to talk about the thing I was supposed to be at the appt for - my wrist MRI results. The results will be back, but apparently they will be buried in his office! At this point Mac launched into a good old fashioned moan with a friend, as his secretary is getting her office decorated meaning all her " stuff " has been dumped in his office, meaning he can't even get in there, let alone find my results! Poor Mac he was not impressed and very embarrassed at not being able to inform me of my scan, but he promised he would brave the towers of secretarial junk and flat pack furniture to dog them out and would either write to me or see me when I come back for my ankle. I'm obviously disappointed as it means another two weeks of wearing my cast splint, but I have to confess it was hilarious seeing poor Mac whinging about the assault on his office space! It probably sounds a bit daft, but I felt kind of honoured that he felt comfortable enough to moan with me...he really is more like a mate than my surgeon these days! rather worrying really... So anyway, here I am in a plastered and splinted up to the eye balls and receiving some fantastic looks from people as the see me hobble past looking like a train wreck. Sitting in Ortho outpatients was an absolute hoot as the place was packed and not one single person could avoid the furtive, curiosity filled ogle at my battered up body! I felt a bit embarrassed and self conscious at first, but in the end I kind of felt amused and a litter proud that I'd at least taken people's minds of their own woes for a while hee-hee! Yikes, I am hurting tonight though. Going to go take some more painkillers and try, probably in vain to get some rest. Take care all and know I'm thinking of you. Love and hugs....Jo xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Jo You're sense of humour never fails to amaze me even though you are in such pain, you always manage to bring a smile. I am sending good & healing (Ihope) thoughts your way. Betty Saw Mac - ankle update > Aargh, I really hate the onslaught my poor body is going through > right now. I can honestly and unashamedly admit I am in complete > agony tonight, every single part of my body hurts...even my hair > hurts. Trying to cope with the busted ankle and the cats is taking > such a huge toll on me and I am really struggling. Getting around on > two crutches with a dodgy left arm and two stuffed up legs just > isn't fun at all....my left knee is screaming and subluxiing all > over the place with having to take weight. I honestly think I'm > taking my last painful steps towards my wheelchair - I have to start > being real as my body can't keep paying the price for my pride. ( > many thanks to Aase Marit for your email - you're such a star and > I'll write back properly tomorrow) > > I saw Mac this afternoon and his face just drained when he saw the > state of me. He as expected had a good giggle with me about the > whole thing, knowing that I need his humour to survive this....but > he wasn't nearly as jokey as usual. That's always a worry as he only > ever stops laughing when he's worried and things are getting > serious. He tried his best to give me Mac the jolly surgeon, but > knew full well that I could see straight through him to Mac the > worried, protective surrogate father. > > He sent me for more x-rays as he was concerned some of the bones > were still out of place, but fortunately everything is in alignment > again now. The amount of ligament damage is a huge problem though, > meaning I need to stay in the plaster and allow things time to heal. > Because of the trouble I'm having with my other joints and my need > to get in to stay with Prof Bird too, he is leaving me the absolute > minimum he can of two weeks before removing the cast and having a > full assessment...then decide whether I need further casting or can > get away with splinting. So I've been told to rest up and stay as > immobile as I can for the next two weeks and I'm on strict orders > to " try not to dislocate anything else, not that you have much left > to bloody dislocate! " > > Sadly, I didn't get to talk about the thing I was supposed to be at > the appt for - my wrist MRI results. The results will be back, but > apparently they will be buried in his office! At this point Mac > launched into a good old fashioned moan with a friend, as his > secretary is getting her office decorated meaning all her " stuff " > has been dumped in his office, meaning he can't even get in there, > let alone find my results! Poor Mac he was not impressed and very > embarrassed at not being able to inform me of my scan, but he > promised he would brave the towers of secretarial junk and flat pack > furniture to dog them out and would either write to me or see me > when I come back for my ankle. I'm obviously disappointed as it > means another two weeks of wearing my cast splint, but I have to > confess it was hilarious seeing poor Mac whinging about the assault > on his office space! It probably sounds a bit daft, but I felt kind > of honoured that he felt comfortable enough to moan with me...he > really is more like a mate than my surgeon these days! rather > worrying really... > > So anyway, here I am in a plastered and splinted up to the eye balls > and receiving some fantastic looks from people as the see me hobble > past looking like a train wreck. Sitting in Ortho outpatients was an > absolute hoot as the place was packed and not one single person > could avoid the furtive, curiosity filled ogle at my battered up > body! I felt a bit embarrassed and self conscious at first, but in > the end I kind of felt amused and a litter proud that I'd at least > taken people's minds of their own woes for a while hee-hee! > > Yikes, I am hurting tonight though. Going to go take some more > painkillers and try, probably in vain to get some rest. Take care > all and know I'm thinking of you. > > Love and hugs....Jo > xxx > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.