RE: doctors appointment today and er visit

[Guest guest]

Liza:

Do you know from research or other perceptions if HEDS and other EDS

types develop s Disease. My reason for asking is that my

daughter was put on Fludrocortisone 0.1 mgm BID by Dr. Grubb. It had a

very good effect, within 3 days she had more animation in her face,

posture and improved energy. I understand that the logic behind this

was that Florinef helps retain salt and thereby retain water and improve

circulating blood volume with result that BP is improved elevated some.

Low standing BP and tachycardia were her problems. The biggest thing we

noticed was that her severe palor was reduced.

Forinef is a glucocorticoid used in the treatment of the Autoimmune

disorder

s disease (one of the drugs). Her dosage is very much less than

that used in s but the other very discomforting symptom she had

was a very sore throat particularly worse in am and the very bad breath

that goes with it. This was also improved but returns occasionally. I

am thinking that there is an autoimmune component....or possibly even

basis in HEDS and possibly even other types of EDS. How do you see this

or what research is out there?

Bernie

Re: doctors appointment today and er visit

In a message dated 8/27/2004 7:04:33 PM Pacific Standard Time,

Thing1973@... writes:

Caring Medical - Treatment of 's Disease

oops, links didn't come thru......

http://www.caringmedical.com/symptoms/condition.asp?condition_id=954

[Guest guest]

I've been on florinef for the last 6 weeks, my cardiologist raised it a few

weeks from .1 mg to .2 mgs. Still it has not seemed to help increase my BP,

there have been some days it would help but more days than not it is still

fairly low.

Re: doctors appointment today and er visit

>

> In a message dated 8/27/2004 7:04:33 PM Pacific Standard Time,

> Thing1973@... writes:

> Caring Medical - Treatment of 's Disease

> oops, links didn't come thru......

>

> http://www.caringmedical.com/symptoms/condition.asp?condition_id=954

>

>

>