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I'm in the NIH Study Dec 13-14

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Posted
Posted

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS study

Dec 13-14. I plan on flying out either Friday or Saturday so I can visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so I

don't have much break between classes. We start up again January 4. I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

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Posted
Posted

Barb:

Congrats.

Just thought of something funny. I have never seen a group so eager to

be pricked, prodded, gone over in minute detail, x-rayed, scaned,

interrogated re family details, etc. etc. This syndrome really does

make us pretty weird. Most people hate this stuff and would totally run

for miles rather than spend money to fly there, for 2 days of it no

less.

I'm sitting here wondering if this will really change the doctors we

have to deal with locally, and particularly their ability to acknowledge

this syndrome. I AM CERTAIN BEYOND A DOUBT THAT EACH OF US SHOULD BE

TAKING OUR FAMILY DOCTOR WITH US SO THEY CAN NO LONGER CLAIM LACK OF

KNOWING HEDS and that doc should be obliged to go through 1/2 the tests.

Bernie

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Barb:

Congrats.

Just thought of something funny. I have never seen a group so eager to

be pricked, prodded, gone over in minute detail, x-rayed, scaned,

interrogated re family details, etc. etc. This syndrome really does

make us pretty weird. Most people hate this stuff and would totally run

for miles rather than spend money to fly there, for 2 days of it no

less.

I'm sitting here wondering if this will really change the doctors we

have to deal with locally, and particularly their ability to acknowledge

this syndrome. I AM CERTAIN BEYOND A DOUBT THAT EACH OF US SHOULD BE

TAKING OUR FAMILY DOCTOR WITH US SO THEY CAN NO LONGER CLAIM LACK OF

KNOWING HEDS and that doc should be obliged to go through 1/2 the tests.

Bernie

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

MY WHOLE EMEDIATE FAMILY HAS HYPERMOBILE TYPE WITH VASCULAR SYMPTOMS AS WELL

WITH A NEG BIOPSY ON MY SON AND ME. WE HAVE BEEN E-MAILED BACK BUT I KNOW

WE CANNOT AFFORD THE TRAVEL.

THEY WANT TO KNOW IF WE WANT TO BE PART OF THE STUDY. DOES ANYONE KNOW WHERE

YOU CAN GET ASSISTANCE FOR THIS? I AM IN MAINE.

aUTUMN

_____

From: Barbara

Sent: Monday, August 23, 2004 3:04 PM

To: ceda

Subject: I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS study

Dec 13-14. I plan on flying out either Friday or Saturday so I can visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so I

don't have much break between classes. We start up again January 4. I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Autumn, I found it - it's called US Flights info and it's in the

files section of this list.

Love Lana

> MY WHOLE EMEDIATE FAMILY HAS HYPERMOBILE TYPE WITH VASCULAR

SYMPTOMS AS WELL

> WITH A NEG BIOPSY ON MY SON AND ME. WE HAVE BEEN E-MAILED BACK

BUT I KNOW

> WE CANNOT AFFORD THE TRAVEL.

>

>

>

> THEY WANT TO KNOW IF WE WANT TO BE PART OF THE STUDY. DOES ANYONE

KNOW WHERE

> YOU CAN GET ASSISTANCE FOR THIS? I AM IN MAINE.

>

>

>

> aUTUMN

>

>

>

> _____

>

> From: Barbara [mailto:kdavis@d...]

> Sent: Monday, August 23, 2004 3:04 PM

> To: ceda

> Subject: I'm in the NIH Study Dec 13-14

>

>

>

> Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH

EDS study

> Dec 13-14. I plan on flying out either Friday or Saturday so I

can visit

> friends and family in the area on the weekend, and then go to the

study

> Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

>

> One of my classes ends Dec 7, but the other one runs until the

23rd, so I

> don't have much break between classes. We start up again January

4. I'll

> probably have to bring the homework to do at the hospital, but I

am sure

> there will be some down-time between tests during which I can work

class

> stuff.

>

> If anyone else is going to be there around the same time, let me

know if you

> want to meet up. I am going to try to get in touch with Kiersten

Sistek

> while I am there and I also have some family in the DC area.

>

> -Barb

>

>

>

> To learn more about EDS, visit our website:

http://www.ehlersdanlos.ca

>

>

>

>

>

>

>

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Posted
Posted

TY WILL CHECK INTO IT THIS IS A ONCE IN A LIFETIME THING.

aUTUMN

_____

From: buckysmom2000

Sent: Tuesday, August 24, 2004 12:20 AM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Autumn, I found it - it's called US Flights info and it's in the

files section of this list.

Love Lana

> MY WHOLE EMEDIATE FAMILY HAS HYPERMOBILE TYPE WITH VASCULAR

SYMPTOMS AS WELL

> WITH A NEG BIOPSY ON MY SON AND ME. WE HAVE BEEN E-MAILED BACK

BUT I KNOW

> WE CANNOT AFFORD THE TRAVEL.

>

>

>

> THEY WANT TO KNOW IF WE WANT TO BE PART OF THE STUDY. DOES ANYONE

KNOW WHERE

> YOU CAN GET ASSISTANCE FOR THIS? I AM IN MAINE.

>

>

>

> aUTUMN

>

>

>

> _____

>

> From: Barbara [mailto:kdavis@d...]

> Sent: Monday, August 23, 2004 3:04 PM

> To: ceda

> Subject: I'm in the NIH Study Dec 13-14

>

>

>

> Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH

EDS study

> Dec 13-14. I plan on flying out either Friday or Saturday so I

can visit

> friends and family in the area on the weekend, and then go to the

study

> Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

>

> One of my classes ends Dec 7, but the other one runs until the

23rd, so I

> don't have much break between classes. We start up again January

4. I'll

> probably have to bring the homework to do at the hospital, but I

am sure

> there will be some down-time between tests during which I can work

class

> stuff.

>

> If anyone else is going to be there around the same time, let me

know if you

> want to meet up. I am going to try to get in touch with Kiersten

Sistek

> while I am there and I also have some family in the DC area.

>

> -Barb

>

>

>

> To learn more about EDS, visit our website:

http://www.ehlersdanlos.ca

>

>

>

>

>

>

>

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Posted
Posted

TY, IVE BEEN BACK ON FOR 3 DAYS NOW

STILL TRYING TO FIGURE OUT THE DRAGON NATURALLY SPEAKING.

aUTUMN

_____

From: buckysmom2000

Sent: Tuesday, August 24, 2004 12:17 AM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Autumn, someone just posted something on the list about charity

flights that you can contact. It was in the last 3-4 days.

Love Lana

> MY WHOLE EMEDIATE FAMILY HAS HYPERMOBILE TYPE WITH VASCULAR

SYMPTOMS AS WELL

> WITH A NEG BIOPSY ON MY SON AND ME. WE HAVE BEEN E-MAILED BACK

BUT I KNOW

> WE CANNOT AFFORD THE TRAVEL.

>

>

>

> THEY WANT TO KNOW IF WE WANT TO BE PART OF THE STUDY. DOES ANYONE

KNOW WHERE

> YOU CAN GET ASSISTANCE FOR THIS? I AM IN MAINE.

>

>

>

> aUTUMN

>

>

>

> _____

>

> From: Barbara [mailto:kdavis@d...]

> Sent: Monday, August 23, 2004 3:04 PM

> To: ceda

> Subject: I'm in the NIH Study Dec 13-14

>

>

>

> Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH

EDS study

> Dec 13-14. I plan on flying out either Friday or Saturday so I

can visit

> friends and family in the area on the weekend, and then go to the

study

> Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

>

> One of my classes ends Dec 7, but the other one runs until the

23rd, so I

> don't have much break between classes. We start up again January

4. I'll

> probably have to bring the homework to do at the hospital, but I

am sure

> there will be some down-time between tests during which I can work

class

> stuff.

>

> If anyone else is going to be there around the same time, let me

know if you

> want to meet up. I am going to try to get in touch with Kiersten

Sistek

> while I am there and I also have some family in the DC area.

>

> -Barb

>

>

>

> To learn more about EDS, visit our website:

http://www.ehlersdanlos.ca

>

>

>

>

>

>

>

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Posted
Posted

TY, IVE BEEN BACK ON FOR 3 DAYS NOW

STILL TRYING TO FIGURE OUT THE DRAGON NATURALLY SPEAKING.

aUTUMN

_____

From: buckysmom2000

Sent: Tuesday, August 24, 2004 12:17 AM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Autumn, someone just posted something on the list about charity

flights that you can contact. It was in the last 3-4 days.

Love Lana

> MY WHOLE EMEDIATE FAMILY HAS HYPERMOBILE TYPE WITH VASCULAR

SYMPTOMS AS WELL

> WITH A NEG BIOPSY ON MY SON AND ME. WE HAVE BEEN E-MAILED BACK

BUT I KNOW

> WE CANNOT AFFORD THE TRAVEL.

>

>

>

> THEY WANT TO KNOW IF WE WANT TO BE PART OF THE STUDY. DOES ANYONE

KNOW WHERE

> YOU CAN GET ASSISTANCE FOR THIS? I AM IN MAINE.

>

>

>

> aUTUMN

>

>

>

> _____

>

> From: Barbara [mailto:kdavis@d...]

> Sent: Monday, August 23, 2004 3:04 PM

> To: ceda

> Subject: I'm in the NIH Study Dec 13-14

>

>

>

> Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH

EDS study

> Dec 13-14. I plan on flying out either Friday or Saturday so I

can visit

> friends and family in the area on the weekend, and then go to the

study

> Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

>

> One of my classes ends Dec 7, but the other one runs until the

23rd, so I

> don't have much break between classes. We start up again January

4. I'll

> probably have to bring the homework to do at the hospital, but I

am sure

> there will be some down-time between tests during which I can work

class

> stuff.

>

> If anyone else is going to be there around the same time, let me

know if you

> want to meet up. I am going to try to get in touch with Kiersten

Sistek

> while I am there and I also have some family in the DC area.

>

> -Barb

>

>

>

> To learn more about EDS, visit our website:

http://www.ehlersdanlos.ca

>

>

>

>

>

>

>

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Posted
Posted

Yes, it is. You should try to take advantage of it if at all

possible.

Love Lana

> > MY WHOLE EMEDIATE FAMILY HAS HYPERMOBILE TYPE WITH VASCULAR

> SYMPTOMS AS WELL

> > WITH A NEG BIOPSY ON MY SON AND ME. WE HAVE BEEN E-MAILED BACK

> BUT I KNOW

> > WE CANNOT AFFORD THE TRAVEL.

> >

> >

> >

> > THEY WANT TO KNOW IF WE WANT TO BE PART OF THE STUDY. DOES

ANYONE

> KNOW WHERE

> > YOU CAN GET ASSISTANCE FOR THIS? I AM IN MAINE.

> >

> >

> >

> > aUTUMN

> >

> >

> >

> > _____

> >

> > From: Barbara [mailto:kdavis@d...]

> > Sent: Monday, August 23, 2004 3:04 PM

> > To: ceda

> > Subject: I'm in the NIH Study Dec 13-14

> >

> >

> >

> > Just spoke to Dr. McDonnell at NIH. I am scheduled to do the

NIH

> EDS study

> > Dec 13-14. I plan on flying out either Friday or Saturday so I

> can visit

> > friends and family in the area on the weekend, and then go to

the

> study

> > Mon/Tue, returning home Wednesday so I can be back in school on

> Thursday.

> >

> > One of my classes ends Dec 7, but the other one runs until the

> 23rd, so I

> > don't have much break between classes. We start up again

January

> 4. I'll

> > probably have to bring the homework to do at the hospital, but I

> am sure

> > there will be some down-time between tests during which I can

work

> class

> > stuff.

> >

> > If anyone else is going to be there around the same time, let me

> know if you

> > want to meet up. I am going to try to get in touch with

Kiersten

> Sistek

> > while I am there and I also have some family in the DC area.

> >

> > -Barb

> >

> >

> >

> > To learn more about EDS, visit our website:

> http://www.ehlersdanlos.ca

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

In a message dated 8/23/2004 7:56:39 PM Pacific Standard Time,

bfhalkett@... writes:

This syndrome really does

make us pretty weird. Most people hate this stuff and would totally run

for miles rather than spend money to fly there, for 2 days of it no

less.

My first thought was that I'd save enough on my co-pays for all those tests

that I could afford the airfare! My second thought was spending ONLY two days

getting all that & not having to run to 20 different doctors, offices &

appointments would also save a heck of a lot of time & searching for parking

spaces . & I have applied, waiting to hear. I'd put off my hip

operation

if needed...especially if the tests would give the hip doctor additional info

to work from!

Liza

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Posted
Posted

In a message dated 8/23/2004 8:39:40 PM Pacific Standard Time,

EDSLana@... writes:

he doesn't really know HOW to be proactive with this (if there

is such a thing). For example, I've never had a heart echo - and

haven't asked for one, as I know he would have asked why I thought

it was necessary, and until the conference this year, I wouldn't

have had an answer. Does this make sense to anyone else?

AMEN, Lana! I've had to always tell the docs what to check...and usually I'm

right even when they aren't sure. But when even WE don't know what to look

for all the time, I can't expect the doctors to have any more info.

Liza

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Posted
Posted

Hi Autumn --

My name is Patti and I am from Maine also. I hope you can go - I am waiting to

hear from them to get the dates I'll be going. Hey, it would be great if it

worked out that we could hook up and go together?? (I have vascular EDS)

Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS study

Dec 13-14. I plan on flying out either Friday or Saturday so I can visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so I

don't have much break between classes. We start up again January 4. I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Patti,

I live in Waterville. I go to KVCC in Fairfield, I am taking mental health

rehab and go full time.

Hugs

Autumn

_____

From: Patti Melcher

Sent: Friday, August 27, 2004 8:22 AM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Hi Autumn --

I live on Southport - right outside of Boothbay Harbor. I don't know yet

when I'll be scheduled.

What are you taking in college? Do you go full-time?

Take care and hope to talk to you soon.

Love, Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Patti,

I live in Waterville. I go to KVCC in Fairfield, I am taking mental health

rehab and go full time.

Hugs

Autumn

_____

From: Patti Melcher

Sent: Friday, August 27, 2004 8:22 AM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Hi Autumn --

I live on Southport - right outside of Boothbay Harbor. I don't know yet

when I'll be scheduled.

What are you taking in college? Do you go full-time?

Take care and hope to talk to you soon.

Love, Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Patti,

I live in Waterville. I go to KVCC in Fairfield, I am taking mental health

rehab and go full time.

Hugs

Autumn

_____

From: Patti Melcher

Sent: Friday, August 27, 2004 8:22 AM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Hi Autumn --

I live on Southport - right outside of Boothbay Harbor. I don't know yet

when I'll be scheduled.

What are you taking in college? Do you go full-time?

Take care and hope to talk to you soon.

Love, Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Autumn --

Hey, you're not that far away -- maybe when you are on break or have some free

time, we could meet - say in Augusta??

Mental health rehab must be so interesting. I, myself, am seeing a therapist and

have found her extremely helpful in helping me deal with VEDS. Anyway, I hope

all is good with you and yours --

Hope to hear from you soon,

Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

Autumn --

Hey, you're not that far away -- maybe when you are on break or have some free

time, we could meet - say in Augusta??

Mental health rehab must be so interesting. I, myself, am seeing a therapist and

have found her extremely helpful in helping me deal with VEDS. Anyway, I hope

all is good with you and yours --

Hope to hear from you soon,

Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd, so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am sure

there will be some down-time between tests during which I can work class

stuff.

If anyone else is going to be there around the same time, let me know if

you

want to meet up. I am going to try to get in touch with Kiersten Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

That would be fun sometime Patti, we will have to keep in touch, so when

time frees itself we can make some plans.

Hugs

Autumn

_____

From: Patti Melcher

Sent: Saturday, August 28, 2004 6:25 PM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Autumn --

Hey, you're not that far away -- maybe when you are on break or have some

free time, we could meet - say in Augusta??

Mental health rehab must be so interesting. I, myself, am seeing a therapist

and have found her extremely helpful in helping me deal with VEDS. Anyway,

I hope all is good with you and yours --

Hope to hear from you soon,

Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the

study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd,

so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am

sure

there will be some down-time between tests during which I can work

class

stuff.

If anyone else is going to be there around the same time, let me know

if

you

want to meet up. I am going to try to get in touch with Kiersten

Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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Posted
Posted

That would be fun sometime Patti, we will have to keep in touch, so when

time frees itself we can make some plans.

Hugs

Autumn

_____

From: Patti Melcher

Sent: Saturday, August 28, 2004 6:25 PM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Autumn --

Hey, you're not that far away -- maybe when you are on break or have some

free time, we could meet - say in Augusta??

Mental health rehab must be so interesting. I, myself, am seeing a therapist

and have found her extremely helpful in helping me deal with VEDS. Anyway,

I hope all is good with you and yours --

Hope to hear from you soon,

Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the

study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd,

so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am

sure

there will be some down-time between tests during which I can work

class

stuff.

If anyone else is going to be there around the same time, let me know

if

you

want to meet up. I am going to try to get in touch with Kiersten

Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

Link to comment
Share on other sites
Guest guest

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Posted
Posted

That would be fun sometime Patti, we will have to keep in touch, so when

time frees itself we can make some plans.

Hugs

Autumn

_____

From: Patti Melcher

Sent: Saturday, August 28, 2004 6:25 PM

To: ceda

Subject: Re: I'm in the NIH Study Dec 13-14

Autumn --

Hey, you're not that far away -- maybe when you are on break or have some

free time, we could meet - say in Augusta??

Mental health rehab must be so interesting. I, myself, am seeing a therapist

and have found her extremely helpful in helping me deal with VEDS. Anyway,

I hope all is good with you and yours --

Hope to hear from you soon,

Patti

I'm in the NIH Study Dec 13-14

Just spoke to Dr. McDonnell at NIH. I am scheduled to do the NIH EDS

study

Dec 13-14. I plan on flying out either Friday or Saturday so I can

visit

friends and family in the area on the weekend, and then go to the

study

Mon/Tue, returning home Wednesday so I can be back in school on

Thursday.

One of my classes ends Dec 7, but the other one runs until the 23rd,

so

I

don't have much break between classes. We start up again January 4.

I'll

probably have to bring the homework to do at the hospital, but I am

sure

there will be some down-time between tests during which I can work

class

stuff.

If anyone else is going to be there around the same time, let me know

if

you

want to meet up. I am going to try to get in touch with Kiersten

Sistek

while I am there and I also have some family in the DC area.

-Barb

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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