Re: New to the group (daughter newly diagnosed)

[Guest guest]

Welcome to the list, .

Tuna

=====

mom to:

, 8, ASD

, 4, NT

Normal is just a setting on the washing machine.

- Whoopi Goldberg

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[Guest guest]

Welcome to the group, . My daughter Ebony takes risperdal as well and

it was a godsend. Truly changed our lives. It stabalized her moods A LOT!

It also was a real help with sleep issues. As long as you don't have weight

issues, this could really help your daughter. I hope you see improvement

right away. We have a horrible time getting meds into Ebony. The only

thing that works for us is to put it into her cup. She still uses sippy

cups. We use the liquid risperdal. I know some people say it tastes bad

but Ebony drinks it down really well. She has more trouble with pills or

chewables that I crush because no matter how well you crush them the drink

is grittier with that stuff in it. We mix it with some fruit punch sugar

free kool-aid. I think the taste of that is strong enough to hide the

risperdal taste. Good luck to you and keep us posted on how that works for

you. I've got my fingers crossed for you guys.

Tamara

mom to Ebony, 5 years old, asd, adhd, bipolar

and , 2, polish (lol)

wife to Terry

>

>Reply-To: parenting_autism

>To: parenting_autism

>Subject: New to the group (daughter newly diagnosed)

>Date: Thu, 08 May 2003 18:10:20 -0000

>

>Hello all,

>

>Just wanted to introduce myself. I am the daddy of an eight year old

>daughter, Micki, that was recently diagnosed with Autism and Mental

>Retardation. It took us YEARS to get this diagnosis, which we agree

>with. I cannot believe how much pushing and pulling and yelling we

>had to do to get to where we are now. The diagnosis we had before

>was Cerebral Palsy. Her neuro left it at that, but said that she is

>a puzzle that is not put together yet.

>

>Anyway we have got more done in the past month than we had since we

>adopted her four years ago. We got an appointment with the JFK

>Center for Autism in Denver. (We live in Colorado Springs) They gave

>us the results a lot quicker than normal and got us in touch with

>their Developmental Peditician. We went to see him because of some

>raging and behavioral problems. He is going to try Micki on

>Risperdal and I have read a lot on this and am really looking forward

>to trying it.

>

>My wife and I are about at the end of our ropes. Micki's rages have

>been really bad lately. They usually last at least 30 minutes and

>have gone on for as much as a couple hours. It makes it really hard

>to get sitters even if it is just grandma.

>

>With the Resperdal I have no problem with the weight gain as Micki

>has grown 4 or 5 inches in the past year and has not gained any

>weight. She is constant movement, even when she is asleep.

>

>Anyway, if you have gotten this far let me ask a question. Micki has

>problems with meds. With her anti-seizure meds we have tried

>sprinkles, liquid and chewables. Chewables seem to work best, with

>bribes. I know Resperdal does not come in chews, does anyone know

>how well the tablets go if they are chewed?

>

>Thanks

> Wilhelm

>Mickisdaddy

>

_________________________________________________________________

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[Guest guest]

>>>>>>>>

My wife and I are about at the end of our ropes. Micki's rages have

been really bad lately. They usually last at least 30 minutes and

have gone on for as much as a couple hours. It makes it really hard

to get sitters even if it is just grandma.

<<<<<<<<

Welcome to the list ...oh, and welcome to my world! :/

Sorry I don't have any answers on the meds. My daughter won't take them,

even when she's ill.

We have put enzymes in chocolate before, but I don't know if that's an

option for something like Risperadol.

Again, Welcome....

Penny

Mom to Jacqui, 8 - HFA

Jeff, 20

[Guest guest]

>>>>>>>>

My wife and I are about at the end of our ropes. Micki's rages have

been really bad lately. They usually last at least 30 minutes and

have gone on for as much as a couple hours. It makes it really hard

to get sitters even if it is just grandma.

<<<<<<<<

Welcome to the list ...oh, and welcome to my world! :/

Sorry I don't have any answers on the meds. My daughter won't take them,

even when she's ill.

We have put enzymes in chocolate before, but I don't know if that's an

option for something like Risperadol.

Again, Welcome....

Penny

Mom to Jacqui, 8 - HFA

Jeff, 20

[Guest guest]

>>>>>>>>

My wife and I are about at the end of our ropes. Micki's rages have

been really bad lately. They usually last at least 30 minutes and

have gone on for as much as a couple hours. It makes it really hard

to get sitters even if it is just grandma.

<<<<<<<<

Welcome to the list ...oh, and welcome to my world! :/

Sorry I don't have any answers on the meds. My daughter won't take them,

even when she's ill.

We have put enzymes in chocolate before, but I don't know if that's an

option for something like Risperadol.

Again, Welcome....

Penny

Mom to Jacqui, 8 - HFA

Jeff, 20

[Guest guest]

Salli ~

I have been meaning to ask, how did Putter get the nickname Putter?

Georga

Visit my new web page at www.ubahbookshelf.com

This tag line space for rent.

Re: New to the group (daughter newly diagnosed)

> Welcome and Micki!

>

> I have five kids: Enrique, 16, AS; , 13, but 14 next week, NT;

> Sophia, 9, NT; Xavier, aka Putter, 7, very ASD; and Robbie, 4, NT.

>

> > >Just wanted to introduce myself. I am the daddy of an eight year old

> > >daughter, Micki, that was recently diagnosed with Autism and Mental

> > >Retardation. It took us YEARS to get this diagnosis, which we agree

> > >with. I cannot believe how much pushing and pulling and yelling we

> > >had to do to get to where we are now. The diagnosis we had before

> > >was Cerebral Palsy. Her neuro left it at that, but said that she is

> > >a puzzle that is not put together yet.

>

> So...sounds intriguing. Does she NOT have cerebral palsy then? I thought

> that was a pretty definite thing, but then I know next to nothing about

it.

> Or do you mean that she has cerebral palsy and autism? I could see that

> would be quite a puzzle.

> > >

> > We went to see him because of some

> > >raging and behavioral problems. He is going to try Micki on

> > >Risperdal and I have read a lot on this and am really looking forward

> > >to trying it.

>

> It was very effective at first for my oldest who has some pretty big

> behavior problems too, but it quit working for us and he gained a lot of

> weight. It is VERY useful for some of our kids though.

> > >

> > >My wife and I are about at the end of our ropes. Micki's rages have

> > >been really bad lately. They usually last at least 30 minutes and

> > >have gone on for as much as a couple hours. It makes it really hard

> > >to get sitters even if it is just grandma.

>

> Oh, yes.

> > >

> > >With the Resperdal I have no problem with the weight gain as Micki

> > >has grown 4 or 5 inches in the past year and has not gained any

> > >weight. She is constant movement, even when she is asleep.

>

> Well, this sounds good.

> > >

> > >Anyway, if you have gotten this far let me ask a question. Micki has

> > >problems with meds. With her anti-seizure meds we have tried

> > >sprinkles, liquid and chewables. Chewables seem to work best, with

> > >bribes. I know Resperdal does not come in chews, does anyone know

> > >how well the tablets go if they are chewed?

> > >

>

> I got this far, but I don't know the answer! I hope someone else did!

>

> Salli

>

>

>

>

>

>

>

>

[Guest guest]

> I have been meaning to ask, how did Putter get the nickname Putter?

>

Lou had a friend named Xavier (it is HA-vee-air, Zay-vee-yur) who was

nicknamed Ox. He wanted to use Ox as a nickname. In my experience, planned

nicknames do not work (we planned to call Enrique Quique, the standard

Spanish nickname for Enrique, and we called him Bunny instead), but we

called him Ox for a few weeks. Then I called him Oxy, then things like

Oxytocin and Oxymoron, but finally settled, for a while, on Oxy-poo. That

turned into Putti (like the plural of the little Italian cherubs in

paintings), and that lasted about a year. Then started calling

him Putt-Putt, partly from Putt Putt miniature golf and partly because he

did indeed Putt around. I changed that into Putter because he puttered with

stuff until it broke.

And that is the history of his name.

Salli

[Guest guest]

> I have been meaning to ask, how did Putter get the nickname Putter?

>

Lou had a friend named Xavier (it is HA-vee-air, Zay-vee-yur) who was

nicknamed Ox. He wanted to use Ox as a nickname. In my experience, planned

nicknames do not work (we planned to call Enrique Quique, the standard

Spanish nickname for Enrique, and we called him Bunny instead), but we

called him Ox for a few weeks. Then I called him Oxy, then things like

Oxytocin and Oxymoron, but finally settled, for a while, on Oxy-poo. That

turned into Putti (like the plural of the little Italian cherubs in

paintings), and that lasted about a year. Then started calling

him Putt-Putt, partly from Putt Putt miniature golf and partly because he

did indeed Putt around. I changed that into Putter because he puttered with

stuff until it broke.

And that is the history of his name.

Salli

[Guest guest]

Makes perfect sense.

I just always wondered how one would get a nickname like Putter.

Then again I have a Toad and a Worm....

Georga

Visit my new web page at www.ubahbookshelf.com

This tag line space for rent.

Re: New to the group (daughter newly diagnosed)

> > I have been meaning to ask, how did Putter get the nickname Putter?

> >

> Lou had a friend named Xavier (it is HA-vee-air, Zay-vee-yur) who was

> nicknamed Ox. He wanted to use Ox as a nickname. In my experience,

planned

> nicknames do not work (we planned to call Enrique Quique, the standard

> Spanish nickname for Enrique, and we called him Bunny instead), but we

> called him Ox for a few weeks. Then I called him Oxy, then things like

> Oxytocin and Oxymoron, but finally settled, for a while, on Oxy-poo. That

> turned into Putti (like the plural of the little Italian cherubs in

> paintings), and that lasted about a year. Then started calling

> him Putt-Putt, partly from Putt Putt miniature golf and partly because he

> did indeed Putt around. I changed that into Putter because he puttered

with

> stuff until it broke.

>

> And that is the history of his name.

>

> Salli

>

>

>

>

>

>

>

>

[Guest guest]

And I have a Boogie, short for Boogie Woogie Bugle Butt...don't ask me

how I came up with that....

Maggie

________________________________________________________________

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[Guest guest]

> And I have a Boogie, short for Boogie Woogie Bugle Butt...don't ask me

> how I came up with that....

>

You don't need to. My brother was called Fishhead by my father for years.

I was McGinty. And my mother was Lizard the Gizzard.

Salli

[Guest guest]

This all makes the name Putter seem so normal ;0)

Georga

Visit my new web page at www.ubahbookshelf.com

This tag line space for rent.

Re: New to the group (daughter newly diagnosed)

>

> > And I have a Boogie, short for Boogie Woogie Bugle Butt...don't ask me

> > how I came up with that....

> >

> You don't need to. My brother was called Fishhead by my father for years.

> I was McGinty. And my mother was Lizard the Gizzard.

>

> Salli

>

>

>

>

>

>

>

>

[Guest guest]

> This all makes the name Putter seem so normal ;0)

>

Well, naturally. It is a perfectly normal name.

Salli Walli Fiddle Faddle (another name from my father...)

[Guest guest]

> This all makes the name Putter seem so normal ;0)

>

Well, naturally. It is a perfectly normal name.

Salli Walli Fiddle Faddle (another name from my father...)

ROFL...My mother used to call me her " little Putt-Putt " when I was small,

which I found horrendously embarrassing as I grew up. So we have that in

common.

Maggie aka Little Putt-Putt

[Guest guest]

>

> Well, naturally. It is a perfectly normal name.

>

> Salli Walli Fiddle Faddle (another name from my father...)

LOL!!!

nancy

[Guest guest]

Welcome! I am Jacquie H, married to Jeff. We live in California with our 3

children. Greggory is HF autistic and doing great! He is getting ready to finish

up first grade and move onto 2nd grade next fall. (my baby! where does the time

go??) Alec is 5 yrs old and autistic, bp , adhd and probably ODD. He is at home

with me for now. We are still having trouble finding a suitable placement for

him next year. ugh. Then Miss Yessenia. She is 10 months old and a real stinker!

She just started waving Hi and Bye bye! She also says Hi now too. We are

watching her closely. You will love it here. Alec was on risperdal and it really

did help him. But he gained too much weight. He took it in liquid form.

Jacquie H

New to the group (daughter newly diagnosed)

Hello all,

Just wanted to introduce myself. I am the daddy of an eight year old

daughter, Micki, that was recently diagnosed with Autism and Mental

Retardation. It took us YEARS to get this diagnosis, which we agree

with. I cannot believe how much pushing and pulling and yelling we

had to do to get to where we are now. The diagnosis we had before

was Cerebral Palsy. Her neuro left it at that, but said that she is

a puzzle that is not put together yet.

Anyway we have got more done in the past month than we had since we

adopted her four years ago. We got an appointment with the JFK

Center for Autism in Denver. (We live in Colorado Springs) They gave

us the results a lot quicker than normal and got us in touch with

their Developmental Peditician. We went to see him because of some

raging and behavioral problems. He is going to try Micki on

Risperdal and I have read a lot on this and am really looking forward

to trying it.

My wife and I are about at the end of our ropes. Micki's rages have

been really bad lately. They usually last at least 30 minutes and

have gone on for as much as a couple hours. It makes it really hard

to get sitters even if it is just grandma.

With the Resperdal I have no problem with the weight gain as Micki

has grown 4 or 5 inches in the past year and has not gained any

weight. She is constant movement, even when she is asleep.

Anyway, if you have gotten this far let me ask a question. Micki has

problems with meds. With her anti-seizure meds we have tried

sprinkles, liquid and chewables. Chewables seem to work best, with

bribes. I know Resperdal does not come in chews, does anyone know

how well the tablets go if they are chewed?

Thanks

Wilhelm

Mickisdaddy

[Guest guest]

I use a motal and a pestal to smash the pills, and then we mix them

with juice in a medicine dropper, and he takes this fine.

Libby

> Hello all,

>

> Just wanted to introduce myself. I am the daddy of an eight year

old

> daughter, Micki, that was recently diagnosed with Autism and

Mental

> Retardation. It took us YEARS to get this diagnosis, which we

agree

> with. I cannot believe how much pushing and pulling and yelling we

> had to do to get to where we are now. The diagnosis we had before

> was Cerebral Palsy. Her neuro left it at that, but said that she

is

> a puzzle that is not put together yet.

>

> Anyway we have got more done in the past month than we had since we

> adopted her four years ago. We got an appointment with the JFK

> Center for Autism in Denver. (We live in Colorado Springs) They

gave

> us the results a lot quicker than normal and got us in touch with

> their Developmental Peditician. We went to see him because of some

> raging and behavioral problems. He is going to try Micki on

> Risperdal and I have read a lot on this and am really looking

forward

> to trying it.

>

> My wife and I are about at the end of our ropes. Micki's rages

have

> been really bad lately. They usually last at least 30 minutes and

> have gone on for as much as a couple hours. It makes it really

hard

> to get sitters even if it is just grandma.

>

> With the Resperdal I have no problem with the weight gain as Micki

> has grown 4 or 5 inches in the past year and has not gained any

> weight. She is constant movement, even when she is asleep.

>

> Anyway, if you have gotten this far let me ask a question. Micki

has

> problems with meds. With her anti-seizure meds we have tried

> sprinkles, liquid and chewables. Chewables seem to work best, with

> bribes. I know Resperdal does not come in chews, does anyone know

> how well the tablets go if they are chewed?

>

> Thanks

> Wilhelm

> Mickisdaddy