Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Thank you very much. I hope all is well with you! > http://www.smileycentral.com/?partner=ZSzeb001> Welcome Back Sorry about > your Mom. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Sunday, July 25, 2004 9:07 AM > To: LUPIES > Subject: Hello From Sunny > > > > Hi Friends > I have not been online in quite some time due to taking care of my > mom after a horrendous traffice accident she hadSunny > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Thank you very much. I hope all is well with you! > http://www.smileycentral.com/?partner=ZSzeb001> Welcome Back Sorry about > your Mom. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Sunday, July 25, 2004 9:07 AM > To: LUPIES > Subject: Hello From Sunny > > > > Hi Friends > I have not been online in quite some time due to taking care of my > mom after a horrendous traffice accident she hadSunny > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Thank you very much. I hope all is well with you! > http://www.smileycentral.com/?partner=ZSzeb001> Welcome Back Sorry about > your Mom. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Sunday, July 25, 2004 9:07 AM > To: LUPIES > Subject: Hello From Sunny > > > > Hi Friends > I have not been online in quite some time due to taking care of my > mom after a horrendous traffice accident she hadSunny > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Thank you so much for your concern and kind words. I had always planned to retire on the west coast as I had both my kids living beachfront on the east coast. Now I will reconsider putting all my eggs in one basket on the beach. My friends in Punta GOrda lost both their home and business. They are semi permanantly living in North FLorida now. THey had warning only an hour before the storm turned and were forced to take cover in their community center. They huddled under tables and chairs as the second story blew away over them. THey prayed as they windows blew in and all the trees were uprooted before their eyes outside. Miraculously, the first story roof stayed intact. That is they only reason that about 25 people are still alive. One man stuck it out in his refrigerator. ANother woman had her cat sucked right out of her arms and into the air when her roof blew off. I have people asking me where to send care packages, and I am rerouting them to south florida. They need everything down there. It was totally devastated. Yes, we took a beating here, but compared to them, we are in Eden. Please continue to pray for all of Florida. It will be a long time before we are anywhere near normal again. And yes, having Lupus makes is ten times worse. I have already had a very bad year and this was supposed to be my rest time. ( Good lesson here.. take rest time even when you think you can't...just MAKE it... you never know what is around the corner to rob you of that " planned " rest time.) I had just recovered from Pericarditis and now it's back with pleurisy, too. I am just living off my inhaler as I have exercise induced asthma, too, and sitting down is next to impossible. I couldn't even get my meds for three days so the peri is worse than the previous time. BUt.. I will make it. There isn't much choice. I sometimes try to figure out ways to do myself in without God knowing it was MY choice... lol.. but so far I haven't found a way. I have no idea why I didn't think of going outside during this storm! lol The winds were almost 120 mph. But I knew better and I know God would know, too. That is the hard part of having this illness. We know what's on the other side would HAVE to be better, but we have to let it be in God's time. I know He has a reason for us to be here and suffer this way, but when my time comes, I have told him many times I want two hours of His exclusive time to tell me WHAT those reasons are! I hope all of you are doing as well as possible. Deanna, keep the faith, baby. WE are all praying for you to get well soon. YOU are also a survivor! We all are.. hurricane survivors or not. Love to you all, Sunny > I'm so glad you are not hurt Sunny. What a horrible thing you are going > through! It is bad enough to just have this dumb disease. I pray this is > the last of the bad weather for you guys down there. My daughter in North > Carolina just met a new couple who moved in. They said they were thinking > of buying a house in her town or in Punta Gorda and decided to test out > Charlotte and see if they liked it first. HA, good thing. Again, I am so > glad you and your family are safe!! That goes for all you Floridians. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Tuesday, August 17, 2004 9:01 PM > To: LUPIES > Subject: Re: Sunny checking in... > > > > > Hi > You are so sweet to worry about me! Yes, I am fine. And yes, I am in > relapse. lol No chance of avoiding that! But I can't totally blame > Charley. I was already in one after taking care of my mom for 8 weeks > after her car accident. I had a little case of pericarditis going > only a week before Charley's visit, but I was close to being over it. > I have learned to put stress on the back burner, but the physical > effort of preparing for a full fledged hurricane is monumental. There > is ALOT to do to avoid more damage. Then, after living through the > horror of hearing it ( and it IS horror), there is so much clean up > work it is mind boggling. The city and state help with some if it, > but most is done by the individual property owners. We spend all day > Sunday clearing debris and then had the pleasure of coming in to take > a shower in cold water. Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Thank you so much for your concern and kind words. I had always planned to retire on the west coast as I had both my kids living beachfront on the east coast. Now I will reconsider putting all my eggs in one basket on the beach. My friends in Punta GOrda lost both their home and business. They are semi permanantly living in North FLorida now. THey had warning only an hour before the storm turned and were forced to take cover in their community center. They huddled under tables and chairs as the second story blew away over them. THey prayed as they windows blew in and all the trees were uprooted before their eyes outside. Miraculously, the first story roof stayed intact. That is they only reason that about 25 people are still alive. One man stuck it out in his refrigerator. ANother woman had her cat sucked right out of her arms and into the air when her roof blew off. I have people asking me where to send care packages, and I am rerouting them to south florida. They need everything down there. It was totally devastated. Yes, we took a beating here, but compared to them, we are in Eden. Please continue to pray for all of Florida. It will be a long time before we are anywhere near normal again. And yes, having Lupus makes is ten times worse. I have already had a very bad year and this was supposed to be my rest time. ( Good lesson here.. take rest time even when you think you can't...just MAKE it... you never know what is around the corner to rob you of that " planned " rest time.) I had just recovered from Pericarditis and now it's back with pleurisy, too. I am just living off my inhaler as I have exercise induced asthma, too, and sitting down is next to impossible. I couldn't even get my meds for three days so the peri is worse than the previous time. BUt.. I will make it. There isn't much choice. I sometimes try to figure out ways to do myself in without God knowing it was MY choice... lol.. but so far I haven't found a way. I have no idea why I didn't think of going outside during this storm! lol The winds were almost 120 mph. But I knew better and I know God would know, too. That is the hard part of having this illness. We know what's on the other side would HAVE to be better, but we have to let it be in God's time. I know He has a reason for us to be here and suffer this way, but when my time comes, I have told him many times I want two hours of His exclusive time to tell me WHAT those reasons are! I hope all of you are doing as well as possible. Deanna, keep the faith, baby. WE are all praying for you to get well soon. YOU are also a survivor! We all are.. hurricane survivors or not. Love to you all, Sunny > I'm so glad you are not hurt Sunny. What a horrible thing you are going > through! It is bad enough to just have this dumb disease. I pray this is > the last of the bad weather for you guys down there. My daughter in North > Carolina just met a new couple who moved in. They said they were thinking > of buying a house in her town or in Punta Gorda and decided to test out > Charlotte and see if they liked it first. HA, good thing. Again, I am so > glad you and your family are safe!! That goes for all you Floridians. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Tuesday, August 17, 2004 9:01 PM > To: LUPIES > Subject: Re: Sunny checking in... > > > > > Hi > You are so sweet to worry about me! Yes, I am fine. And yes, I am in > relapse. lol No chance of avoiding that! But I can't totally blame > Charley. I was already in one after taking care of my mom for 8 weeks > after her car accident. I had a little case of pericarditis going > only a week before Charley's visit, but I was close to being over it. > I have learned to put stress on the back burner, but the physical > effort of preparing for a full fledged hurricane is monumental. There > is ALOT to do to avoid more damage. Then, after living through the > horror of hearing it ( and it IS horror), there is so much clean up > work it is mind boggling. The city and state help with some if it, > but most is done by the individual property owners. We spend all day > Sunday clearing debris and then had the pleasure of coming in to take > a shower in cold water. Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Thank you so much for your concern and kind words. I had always planned to retire on the west coast as I had both my kids living beachfront on the east coast. Now I will reconsider putting all my eggs in one basket on the beach. My friends in Punta GOrda lost both their home and business. They are semi permanantly living in North FLorida now. THey had warning only an hour before the storm turned and were forced to take cover in their community center. They huddled under tables and chairs as the second story blew away over them. THey prayed as they windows blew in and all the trees were uprooted before their eyes outside. Miraculously, the first story roof stayed intact. That is they only reason that about 25 people are still alive. One man stuck it out in his refrigerator. ANother woman had her cat sucked right out of her arms and into the air when her roof blew off. I have people asking me where to send care packages, and I am rerouting them to south florida. They need everything down there. It was totally devastated. Yes, we took a beating here, but compared to them, we are in Eden. Please continue to pray for all of Florida. It will be a long time before we are anywhere near normal again. And yes, having Lupus makes is ten times worse. I have already had a very bad year and this was supposed to be my rest time. ( Good lesson here.. take rest time even when you think you can't...just MAKE it... you never know what is around the corner to rob you of that " planned " rest time.) I had just recovered from Pericarditis and now it's back with pleurisy, too. I am just living off my inhaler as I have exercise induced asthma, too, and sitting down is next to impossible. I couldn't even get my meds for three days so the peri is worse than the previous time. BUt.. I will make it. There isn't much choice. I sometimes try to figure out ways to do myself in without God knowing it was MY choice... lol.. but so far I haven't found a way. I have no idea why I didn't think of going outside during this storm! lol The winds were almost 120 mph. But I knew better and I know God would know, too. That is the hard part of having this illness. We know what's on the other side would HAVE to be better, but we have to let it be in God's time. I know He has a reason for us to be here and suffer this way, but when my time comes, I have told him many times I want two hours of His exclusive time to tell me WHAT those reasons are! I hope all of you are doing as well as possible. Deanna, keep the faith, baby. WE are all praying for you to get well soon. YOU are also a survivor! We all are.. hurricane survivors or not. Love to you all, Sunny > I'm so glad you are not hurt Sunny. What a horrible thing you are going > through! It is bad enough to just have this dumb disease. I pray this is > the last of the bad weather for you guys down there. My daughter in North > Carolina just met a new couple who moved in. They said they were thinking > of buying a house in her town or in Punta Gorda and decided to test out > Charlotte and see if they liked it first. HA, good thing. Again, I am so > glad you and your family are safe!! That goes for all you Floridians. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Tuesday, August 17, 2004 9:01 PM > To: LUPIES > Subject: Re: Sunny checking in... > > > > > Hi > You are so sweet to worry about me! Yes, I am fine. And yes, I am in > relapse. lol No chance of avoiding that! But I can't totally blame > Charley. I was already in one after taking care of my mom for 8 weeks > after her car accident. I had a little case of pericarditis going > only a week before Charley's visit, but I was close to being over it. > I have learned to put stress on the back burner, but the physical > effort of preparing for a full fledged hurricane is monumental. There > is ALOT to do to avoid more damage. Then, after living through the > horror of hearing it ( and it IS horror), there is so much clean up > work it is mind boggling. The city and state help with some if it, > but most is done by the individual property owners. We spend all day > Sunday clearing debris and then had the pleasure of coming in to take > a shower in cold water. Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Thanks for the Welcome. I am looking forward to talking with you all more. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Thanks for the Welcome. I am looking forward to talking with you all more. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 > >I thank you all for your kind thoughts. But you have to realize that I have been living with this disease for two decades now. I raised two children who never knew the person I used to be.. the person I really am. She was lost years ago, never to return. All my family has known for 20 years is my pain. I have never heaped it upon them and have gotten more ill in my efforts to hide it. And then even more ill trying to work to show them I was trying to help support my kids. But nothing has helped me physically. And nothing has changed their opinions of me. They tell me what a great personality I have and that I should remain upbeat and I would be better. They tell me I should walk around the block every day and I would be well.They tell me to come to parties and go places that I am unable to go, then get angry and disgusted with me if I dare to say I am not up to it. That gives you a clue how much time they have taken to understand my disease.. the invisible monster. No, it is simply too late for me to have a life. Now I am struggling to keep my Summa Cum Laude graduate in the college of her choice. They told me they would help, but now the judgment call is that she made the wrong choice in where she went. ( A state school, with a partial scholarship.) She doesn't deserve their help as she didn't work in high school. She DID work.. she got a perfect 4.2 average for all four years and got accepted into the most pretigious college in our state to study medicine. But now, I am hearing that I raised her wrong and didn't teach her about " life " .For that, they are taking back their offers to help her due to my not being able to. It is always something I have done wrong, of course. Forget all the times I took a beating in my body to do what they wanted and to be there for them. When you have a disease as long as I have, it just becomes colorless. They can't see, hear or smell it so it doesn't exist. I have held back this depression for so long I think it will take months to get it all out. But I am taking the time I need to try to get better at the expense of them blasting me for even that. It just doesn't matter to me anymore what they think. But it does matter that I may have to bring my daughter home from something she truly earned. You know your depression is very real when it feels better to pray to be taken than to get well. That is how I am feeling and, if that, too, is wrong, then I am quilty. I do want to be free of this body and this world. My kids are grown and they will be okay without me. They have my husband. But, in response to your concerns, I AM trying to overcome it. I will not take my own life, as I said, no matter how good that sounds. But as far as praying for Him to take me, that will remain. He gives horrible illnesses to ones much younger than me who have whole lives ahead. I am 51, I have lived mine and there is truly no reason for me to be here. But it's up to God. I am working on the document as I know I am facing some serious complications in the near future. But it's my choice.. Heaven is where I will be free and be with God. I can't think of any reason I would pray to stay here. Forgive me for my dark thoughts, but I think you all know where I am at. You may be the only ones. Thanks for listening. It is nice to know someone does understand and care. I love you all, too, Sunny I don't like the sound of your depression. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 > >I thank you all for your kind thoughts. But you have to realize that I have been living with this disease for two decades now. I raised two children who never knew the person I used to be.. the person I really am. She was lost years ago, never to return. All my family has known for 20 years is my pain. I have never heaped it upon them and have gotten more ill in my efforts to hide it. And then even more ill trying to work to show them I was trying to help support my kids. But nothing has helped me physically. And nothing has changed their opinions of me. They tell me what a great personality I have and that I should remain upbeat and I would be better. They tell me I should walk around the block every day and I would be well.They tell me to come to parties and go places that I am unable to go, then get angry and disgusted with me if I dare to say I am not up to it. That gives you a clue how much time they have taken to understand my disease.. the invisible monster. No, it is simply too late for me to have a life. Now I am struggling to keep my Summa Cum Laude graduate in the college of her choice. They told me they would help, but now the judgment call is that she made the wrong choice in where she went. ( A state school, with a partial scholarship.) She doesn't deserve their help as she didn't work in high school. She DID work.. she got a perfect 4.2 average for all four years and got accepted into the most pretigious college in our state to study medicine. But now, I am hearing that I raised her wrong and didn't teach her about " life " .For that, they are taking back their offers to help her due to my not being able to. It is always something I have done wrong, of course. Forget all the times I took a beating in my body to do what they wanted and to be there for them. When you have a disease as long as I have, it just becomes colorless. They can't see, hear or smell it so it doesn't exist. I have held back this depression for so long I think it will take months to get it all out. But I am taking the time I need to try to get better at the expense of them blasting me for even that. It just doesn't matter to me anymore what they think. But it does matter that I may have to bring my daughter home from something she truly earned. You know your depression is very real when it feels better to pray to be taken than to get well. That is how I am feeling and, if that, too, is wrong, then I am quilty. I do want to be free of this body and this world. My kids are grown and they will be okay without me. They have my husband. But, in response to your concerns, I AM trying to overcome it. I will not take my own life, as I said, no matter how good that sounds. But as far as praying for Him to take me, that will remain. He gives horrible illnesses to ones much younger than me who have whole lives ahead. I am 51, I have lived mine and there is truly no reason for me to be here. But it's up to God. I am working on the document as I know I am facing some serious complications in the near future. But it's my choice.. Heaven is where I will be free and be with God. I can't think of any reason I would pray to stay here. Forgive me for my dark thoughts, but I think you all know where I am at. You may be the only ones. Thanks for listening. It is nice to know someone does understand and care. I love you all, too, Sunny I don't like the sound of your depression. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Thank you, Dawn Marie. It sounds like we have very similar husbands. What would we do if we didn't have them? I just can't imagine. I wish we could have a big party for all the guys who have stood by all of us HYPERCHONDRIACS. lol I basically unload people from my life who consider me annoying by being sick. But that is harder to do with family. I have started telling people who I KNOW talk about me behind my back, when they actually ask how I am... that I am just busy working on my hyperchondria. That shuts most of them up. When I am with my family and I know they have all been discussing my downfalls, I usually tell them to " talk amongst themselves " ala SNL and go home. They ALWAYS get mad at me.. how dare I give THEM a hard time or insinuate that they are less than perfect? But this time I am just plain depressed about being sick. They are not the true reason, although they sure don't help. I am just plain tired of living with lupus. I know, for you newly diagnosed people, this sounds very pessimistic and I apologize for that. But, like I said, I am a long time lupie and I have fought the good fight for as long as I can remember. If I could just sign off now, I would be a happy camper. But, unfortunately, I have to trudge on until God decides he is done having me live like Job on Earth. Some say I don't see the bright side. Oh, yes, I do..that is where my nickname came from. But sometimes it just gets old having to search for the bright side everyday. I guess I am just weary and old. Forgive my babbling.... I love you guys and wish only blessings and GOOD days for all of you! Those that are new, you have found a goldmine of angels here! Love ya all, Sunny > I know what you're going through, I don't really have anyone I even call " Family " anymore because of the way they've done me. Since I've been sick people who I thought were my friends, I'm founding out have been calling me a hypochondriac the whole time. Even my husbands family has, so the only one I have in my corner is my husband, and I thank God for that everyday. He stands by my side through anything, and stands up for me, even though it won't do any good, but he cares at that's all I need. Hang in there, people do care sometimes when you don't really know it, they care. > > Dawn Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Thank you, Dawn Marie. It sounds like we have very similar husbands. What would we do if we didn't have them? I just can't imagine. I wish we could have a big party for all the guys who have stood by all of us HYPERCHONDRIACS. lol I basically unload people from my life who consider me annoying by being sick. But that is harder to do with family. I have started telling people who I KNOW talk about me behind my back, when they actually ask how I am... that I am just busy working on my hyperchondria. That shuts most of them up. When I am with my family and I know they have all been discussing my downfalls, I usually tell them to " talk amongst themselves " ala SNL and go home. They ALWAYS get mad at me.. how dare I give THEM a hard time or insinuate that they are less than perfect? But this time I am just plain depressed about being sick. They are not the true reason, although they sure don't help. I am just plain tired of living with lupus. I know, for you newly diagnosed people, this sounds very pessimistic and I apologize for that. But, like I said, I am a long time lupie and I have fought the good fight for as long as I can remember. If I could just sign off now, I would be a happy camper. But, unfortunately, I have to trudge on until God decides he is done having me live like Job on Earth. Some say I don't see the bright side. Oh, yes, I do..that is where my nickname came from. But sometimes it just gets old having to search for the bright side everyday. I guess I am just weary and old. Forgive my babbling.... I love you guys and wish only blessings and GOOD days for all of you! Those that are new, you have found a goldmine of angels here! Love ya all, Sunny > I know what you're going through, I don't really have anyone I even call " Family " anymore because of the way they've done me. Since I've been sick people who I thought were my friends, I'm founding out have been calling me a hypochondriac the whole time. Even my husbands family has, so the only one I have in my corner is my husband, and I thank God for that everyday. He stands by my side through anything, and stands up for me, even though it won't do any good, but he cares at that's all I need. Hang in there, people do care sometimes when you don't really know it, they care. > > Dawn Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Thank you, Dawn Marie. It sounds like we have very similar husbands. What would we do if we didn't have them? I just can't imagine. I wish we could have a big party for all the guys who have stood by all of us HYPERCHONDRIACS. lol I basically unload people from my life who consider me annoying by being sick. But that is harder to do with family. I have started telling people who I KNOW talk about me behind my back, when they actually ask how I am... that I am just busy working on my hyperchondria. That shuts most of them up. When I am with my family and I know they have all been discussing my downfalls, I usually tell them to " talk amongst themselves " ala SNL and go home. They ALWAYS get mad at me.. how dare I give THEM a hard time or insinuate that they are less than perfect? But this time I am just plain depressed about being sick. They are not the true reason, although they sure don't help. I am just plain tired of living with lupus. I know, for you newly diagnosed people, this sounds very pessimistic and I apologize for that. But, like I said, I am a long time lupie and I have fought the good fight for as long as I can remember. If I could just sign off now, I would be a happy camper. But, unfortunately, I have to trudge on until God decides he is done having me live like Job on Earth. Some say I don't see the bright side. Oh, yes, I do..that is where my nickname came from. But sometimes it just gets old having to search for the bright side everyday. I guess I am just weary and old. Forgive my babbling.... I love you guys and wish only blessings and GOOD days for all of you! Those that are new, you have found a goldmine of angels here! Love ya all, Sunny > I know what you're going through, I don't really have anyone I even call " Family " anymore because of the way they've done me. Since I've been sick people who I thought were my friends, I'm founding out have been calling me a hypochondriac the whole time. Even my husbands family has, so the only one I have in my corner is my husband, and I thank God for that everyday. He stands by my side through anything, and stands up for me, even though it won't do any good, but he cares at that's all I need. Hang in there, people do care sometimes when you don't really know it, they care. > > Dawn Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Hi NOrma Jean Isn't it funny that two sickos are both nicknamed Sunny??lol You would think they would call us other names. But the reason is obvious. We go out of our way to TRY to be sunny to hide what should be obvious to those who say they love us. That is exactly what is wrong with me right now. I am TIRED of being everyone's sunshine when they only give me darkness. I am sorry to hear you get the same thing. I think we all do. To me, the pain, the inflammation, the medicines, the hospital visits, none of it is as bad as feeling so inferior when I am with people who say they care. I am also SOOO tired of defending myself. I have decided that when I do decide to talk to my family again, I am going to tell them I am better because I found a new doctor who specializes in HYPERCHONDRIA! lol Wonder what reaction that one will bring.... I'll keep you posted. Sunny > Sunny > My this sounds like something I have heard before. You look OK sure your not > faking it. Why are you walking so slow. what are you just lazy? Oh and the > big one. oh I see your pooping another pill. I have gone through this for so > many years I say nothing because I get so tired of the remarks even at times > from the Doctors. For example the one I jus started seeing I told him mine > does not always show up in the blood work but the damage it did. well last > Monday I called to see if my blood work came back there remark was he wont's you > to come in so he can talk to you and you don't have lupus. I was so mad when I > hung up the phone as here we go gain. sorry for complaining but people get me > upset as they are in our body. Take care Sunny Ps my nickname is Sunny also > Norma Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Hi NOrma Jean Isn't it funny that two sickos are both nicknamed Sunny??lol You would think they would call us other names. But the reason is obvious. We go out of our way to TRY to be sunny to hide what should be obvious to those who say they love us. That is exactly what is wrong with me right now. I am TIRED of being everyone's sunshine when they only give me darkness. I am sorry to hear you get the same thing. I think we all do. To me, the pain, the inflammation, the medicines, the hospital visits, none of it is as bad as feeling so inferior when I am with people who say they care. I am also SOOO tired of defending myself. I have decided that when I do decide to talk to my family again, I am going to tell them I am better because I found a new doctor who specializes in HYPERCHONDRIA! lol Wonder what reaction that one will bring.... I'll keep you posted. Sunny > Sunny > My this sounds like something I have heard before. You look OK sure your not > faking it. Why are you walking so slow. what are you just lazy? Oh and the > big one. oh I see your pooping another pill. I have gone through this for so > many years I say nothing because I get so tired of the remarks even at times > from the Doctors. For example the one I jus started seeing I told him mine > does not always show up in the blood work but the damage it did. well last > Monday I called to see if my blood work came back there remark was he wont's you > to come in so he can talk to you and you don't have lupus. I was so mad when I > hung up the phone as here we go gain. sorry for complaining but people get me > upset as they are in our body. Take care Sunny Ps my nickname is Sunny also > Norma Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Hi NOrma Jean Isn't it funny that two sickos are both nicknamed Sunny??lol You would think they would call us other names. But the reason is obvious. We go out of our way to TRY to be sunny to hide what should be obvious to those who say they love us. That is exactly what is wrong with me right now. I am TIRED of being everyone's sunshine when they only give me darkness. I am sorry to hear you get the same thing. I think we all do. To me, the pain, the inflammation, the medicines, the hospital visits, none of it is as bad as feeling so inferior when I am with people who say they care. I am also SOOO tired of defending myself. I have decided that when I do decide to talk to my family again, I am going to tell them I am better because I found a new doctor who specializes in HYPERCHONDRIA! lol Wonder what reaction that one will bring.... I'll keep you posted. Sunny > Sunny > My this sounds like something I have heard before. You look OK sure your not > faking it. Why are you walking so slow. what are you just lazy? Oh and the > big one. oh I see your pooping another pill. I have gone through this for so > many years I say nothing because I get so tired of the remarks even at times > from the Doctors. For example the one I jus started seeing I told him mine > does not always show up in the blood work but the damage it did. well last > Monday I called to see if my blood work came back there remark was he wont's you > to come in so he can talk to you and you don't have lupus. I was so mad when I > hung up the phone as here we go gain. sorry for complaining but people get me > upset as they are in our body. Take care Sunny Ps my nickname is Sunny also > Norma Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Sunny, In reading your note, I am wondering if you and your daughter have tried www.scholarships.com. There are thousands of scholarships out there that are not being used. Our Worship Minster at church when through four years of college without paying a dime. It was the time he took to apply for any scholarship he was eligible for. Our oldest daughter is a junior in high school, not the highest GPA. and there are over 30 scholarships for her to apply for. What about financial aid? We are looking into that route, too. I know college loans should be taken out only in emergancies, but maybe this is it. As far as your children being grown and not needing you, well, they are your children and will always need you! You are not alone in this! Puppy > > > >I thank you all for your kind thoughts. . . Now I am struggling > to keep my Summa Cum Laude graduate in the college of her choice. > They told me they would help, but now the judgment call is that she > made the wrong choice in where she went. ( A state school, with a > partial scholarship.) She doesn't deserve their help as she didn't > work in high school. She DID work.. she got a perfect 4.2 average for > all four years and got accepted into the most pretigious college in > our state to study medicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Sunny, In reading your note, I am wondering if you and your daughter have tried www.scholarships.com. There are thousands of scholarships out there that are not being used. Our Worship Minster at church when through four years of college without paying a dime. It was the time he took to apply for any scholarship he was eligible for. Our oldest daughter is a junior in high school, not the highest GPA. and there are over 30 scholarships for her to apply for. What about financial aid? We are looking into that route, too. I know college loans should be taken out only in emergancies, but maybe this is it. As far as your children being grown and not needing you, well, they are your children and will always need you! You are not alone in this! Puppy > > > >I thank you all for your kind thoughts. . . Now I am struggling > to keep my Summa Cum Laude graduate in the college of her choice. > They told me they would help, but now the judgment call is that she > made the wrong choice in where she went. ( A state school, with a > partial scholarship.) She doesn't deserve their help as she didn't > work in high school. She DID work.. she got a perfect 4.2 average for > all four years and got accepted into the most pretigious college in > our state to study medicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Sunny, In reading your note, I am wondering if you and your daughter have tried www.scholarships.com. There are thousands of scholarships out there that are not being used. Our Worship Minster at church when through four years of college without paying a dime. It was the time he took to apply for any scholarship he was eligible for. Our oldest daughter is a junior in high school, not the highest GPA. and there are over 30 scholarships for her to apply for. What about financial aid? We are looking into that route, too. I know college loans should be taken out only in emergancies, but maybe this is it. As far as your children being grown and not needing you, well, they are your children and will always need you! You are not alone in this! Puppy > > > >I thank you all for your kind thoughts. . . Now I am struggling > to keep my Summa Cum Laude graduate in the college of her choice. > They told me they would help, but now the judgment call is that she > made the wrong choice in where she went. ( A state school, with a > partial scholarship.) She doesn't deserve their help as she didn't > work in high school. She DID work.. she got a perfect 4.2 average for > all four years and got accepted into the most pretigious college in > our state to study medicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Sunny, I have been living with Lupus since I was ten. That's 45 years now. I wasn't officially diagnosed until I hit 30, and even then it was followed by the word "suspect" on my chart until just last year. I suffered all through my childhood, puberty, and young adulthood with pain, fatigue, fevers, mysterious illnesses with no known cause, OB-GYN problems up the Kazoo, migraines, joing pain, etc. and was told for years that I had an overactive imagination, it was all in my head, and to just plain snap out of it. Well, hello-0-0-o. Now I have SLE, RA, Anemia, Ulcers, Diabetes, Fibromyalgia, chronic Lyme's, Sjogren's, and congestive heart failure, and have lost a percentage of my kidney function. Am I ready to leave the planet? Nope. If God takes me, ok, but I ain't askin'. I don't know what my contribution to the world is or has been, but I know I am not done speaking my mind. LOL I'm sure there are those who wish I'd shut up and shuffle off this mortal coil, but I do get a charge out of stating my opinions, arguing with puffed up people, and proving naysayers wrong. Must be what keeps me alive. LOL I am a stubborn old woman, that's for sure. Teehee. I hope you find the strength and humor you need to keep on keeping on, honey. I love you. MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Sunny, I have been living with Lupus since I was ten. That's 45 years now. I wasn't officially diagnosed until I hit 30, and even then it was followed by the word "suspect" on my chart until just last year. I suffered all through my childhood, puberty, and young adulthood with pain, fatigue, fevers, mysterious illnesses with no known cause, OB-GYN problems up the Kazoo, migraines, joing pain, etc. and was told for years that I had an overactive imagination, it was all in my head, and to just plain snap out of it. Well, hello-0-0-o. Now I have SLE, RA, Anemia, Ulcers, Diabetes, Fibromyalgia, chronic Lyme's, Sjogren's, and congestive heart failure, and have lost a percentage of my kidney function. Am I ready to leave the planet? Nope. If God takes me, ok, but I ain't askin'. I don't know what my contribution to the world is or has been, but I know I am not done speaking my mind. LOL I'm sure there are those who wish I'd shut up and shuffle off this mortal coil, but I do get a charge out of stating my opinions, arguing with puffed up people, and proving naysayers wrong. Must be what keeps me alive. LOL I am a stubborn old woman, that's for sure. Teehee. I hope you find the strength and humor you need to keep on keeping on, honey. I love you. MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Sunny, I have been living with Lupus since I was ten. That's 45 years now. I wasn't officially diagnosed until I hit 30, and even then it was followed by the word "suspect" on my chart until just last year. I suffered all through my childhood, puberty, and young adulthood with pain, fatigue, fevers, mysterious illnesses with no known cause, OB-GYN problems up the Kazoo, migraines, joing pain, etc. and was told for years that I had an overactive imagination, it was all in my head, and to just plain snap out of it. Well, hello-0-0-o. Now I have SLE, RA, Anemia, Ulcers, Diabetes, Fibromyalgia, chronic Lyme's, Sjogren's, and congestive heart failure, and have lost a percentage of my kidney function. Am I ready to leave the planet? Nope. If God takes me, ok, but I ain't askin'. I don't know what my contribution to the world is or has been, but I know I am not done speaking my mind. LOL I'm sure there are those who wish I'd shut up and shuffle off this mortal coil, but I do get a charge out of stating my opinions, arguing with puffed up people, and proving naysayers wrong. Must be what keeps me alive. LOL I am a stubborn old woman, that's for sure. Teehee. I hope you find the strength and humor you need to keep on keeping on, honey. I love you. MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Thanks. No I don't mind your saying so. I said as much myself. Selfishness seems to be a big thing if you are blessed with health, wealth and happiness. But when the tables turn, they sure do expect the compassion they failed to give those less fortunate. I have not heard any more from any of them today. I am sure they are all even more disgusted that I actually spoke up and told them they hurt me. You see, I am not allowed to do that. THEY are the only ones allowed to have opinions and speak them freely. Oh well, God knows my heart and theirs. It is God who they need to ask for forgiveness as someday THEY will be judged. Compassion is a rare thing in this world anymore. Thanks for the support. I love you all, Sunny > Sunny honey I am so sorry. Your family sounds like a bunch of very selfish > creeps. I hope you don't mind my saying so. I think maybe it is best if > you don't talk to them. Get to bed and rest all you can. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Saturday, August 21, 2004 4:55 PM > To: LUPIES > I am fighting > pericarditis right now for the second time and simply can't. When I > finally broke down and cried out of pain and depression that I had > been holding in for months, one told me I was having a " pity party " > and my own mother told me that I should " buck up " and that I don't > > Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Thanks. No I don't mind your saying so. I said as much myself. Selfishness seems to be a big thing if you are blessed with health, wealth and happiness. But when the tables turn, they sure do expect the compassion they failed to give those less fortunate. I have not heard any more from any of them today. I am sure they are all even more disgusted that I actually spoke up and told them they hurt me. You see, I am not allowed to do that. THEY are the only ones allowed to have opinions and speak them freely. Oh well, God knows my heart and theirs. It is God who they need to ask for forgiveness as someday THEY will be judged. Compassion is a rare thing in this world anymore. Thanks for the support. I love you all, Sunny > Sunny honey I am so sorry. Your family sounds like a bunch of very selfish > creeps. I hope you don't mind my saying so. I think maybe it is best if > you don't talk to them. Get to bed and rest all you can. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Saturday, August 21, 2004 4:55 PM > To: LUPIES > I am fighting > pericarditis right now for the second time and simply can't. When I > finally broke down and cried out of pain and depression that I had > been holding in for months, one told me I was having a " pity party " > and my own mother told me that I should " buck up " and that I don't > > Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Thanks. No I don't mind your saying so. I said as much myself. Selfishness seems to be a big thing if you are blessed with health, wealth and happiness. But when the tables turn, they sure do expect the compassion they failed to give those less fortunate. I have not heard any more from any of them today. I am sure they are all even more disgusted that I actually spoke up and told them they hurt me. You see, I am not allowed to do that. THEY are the only ones allowed to have opinions and speak them freely. Oh well, God knows my heart and theirs. It is God who they need to ask for forgiveness as someday THEY will be judged. Compassion is a rare thing in this world anymore. Thanks for the support. I love you all, Sunny > Sunny honey I am so sorry. Your family sounds like a bunch of very selfish > creeps. I hope you don't mind my saying so. I think maybe it is best if > you don't talk to them. Get to bed and rest all you can. > http://www.mymailsignature.com> > > > > _____ > > From: sunnione4 [mailto:sunnione4@y...] > Sent: Saturday, August 21, 2004 4:55 PM > To: LUPIES > I am fighting > pericarditis right now for the second time and simply can't. When I > finally broke down and cried out of pain and depression that I had > been holding in for months, one told me I was having a " pity party " > and my own mother told me that I should " buck up " and that I don't > > Sunny Quote Link to comment Share on other sites More sharing options...
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