Re: TEDs & Ulcer on cornea-Jody//Elaine

[Guest guest]

I also have severe TED and have had five decompression surgeries.

Before the last one, I had very " beaten-up " (my surgeon's words)

corneas and a nasty chemosis on the conjunctiva of the eye due to be

operated on. The surgeon put in a tarsorrhapy (sewing together the

eyelid either completely or partially--mine was left a little open so

that I could see out of the eye, but it looked TERRIBLE!!). This

actually helped a lot and then they did the decompression, which

meant my eye wasn't protruding anymore, which eliminated the chemosis

problem

I'm going to have eye muscle surgery Feb. 20 and boy, will I be glad

to get rid of the double vision, which has been going on for 15

months now. After that, they will do the eyelids and remove the

excess fatty tissue that's developed and fix my retracted lids.

This whole eye disease is such a long process. I know how you feel.

I can't wait until I'm back to some semblance of my old self.

Northstar

> As most of you know I do have severe TEDs in the left eye and have

> been battling an ulcer on my cornea and infection of the cornea for

> the past week. Over a week ago I saw my specialist and he did a

> culture where he had to scrap the cornea for a bacteria sample to

be

> sent in for analysis. Well, I saw my doc 3 times last week for

> monitoring and with antibotic drops my ulcer seems to be healing

> topically, slow to heal internally. Today they called and said that

> the culture is now showing signs of a growth bacteria and he is

adding

> additional prescription drops to be used with the ones from last

week.

> Has anyone else had this many additional issues with TEDs. My eye

has

> gone through drying filaments and now an ulcer. My doc did insert

> temporary plugs into my upper and lower lids to help lubricate the

> eye. Next step will be permanent plugs. I am getting so frustrated

> with all of this anyone go through anything similiar?

>

> Thanks much

> Nancejo