Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 S. Rout wrote: > My doctor has become increasingly fixated on TSH levels for managing my > Synthroid dosage. Well it is marginally better for that than for managing your antithyroid drug dose at least ;-) Remember it lags. > (I'm not even going to try for FT3 Do try - I keep trying - it is the single most appropriate number, although you never manage things by one number. > I'm seeing a GP, and I do think she > is educable, but I'd like to print out a couple of medically > authoritative papers or something to give her so she can be updated on > management of Grave's. I'd also like something to give her on > supplementing Synthroid with T3. Although (as has been pointed out it has several, and contradictory views on RAI) www.thyroidmanager.org is definitely the first thing to show her. The " news " items there are also very strong on T3 issues, discussing the study showing rats need T3 for normal tissue levels of thyroid hormones, and the NEMJ study saying it makes a difference, plus a study showing T4 only supplementation doesn't restore full psychological function. Persuasive stuff. I think the key issue for persuading doctors is credibility of material, and this site and it's authors have bucket loads. Doctors need confidence in anything that changes practice. They also have burocracy of their own to fight, and have issues with PIM etc. Thus material that references the medical literature is a must - if they can point to a paper saying " this is the right thing to do " , or even just " this is safe to do " , they cover their arses, and probably keep you alive longer as a result. Although " that's what I learnt at medical school " might not get doc's off every sticky wicket, they are likely to be sent to retrain or revise a field at worst, not lose their livelihood. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+L1SDGFXfHI9FVgYRAvaJAJ9HwUrigPWRJUA4rsCA4jwWWCls2QCeMw8e 3MQ8dHjhDwxcjBBCTAlbv9Q= =dECR -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Jody, Armour makes a lot of sense in some ways, but I can't help but wonder about possible problems with antibodies. What are the other concerns that one should think about before trying it? I thought I heard something about it being linked to TED. Thanks for the link! -- in Fla. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Jody, Armour makes a lot of sense in some ways, but I can't help but wonder about possible problems with antibodies. What are the other concerns that one should think about before trying it? I thought I heard something about it being linked to TED. Thanks for the link! -- in Fla. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Hi , It really is important for you to share this FT3/FT4 testing info with your doctor. If the doctor won't budge, time for a new doc. I got rid of endo #2 for this very reason. He was an older gent and would not test anything but TSH. My current endo tested TSH and FT4 on my first visit, and easily agreed to test TSI at my request. I then asked her to test FT3 each visit and she easily agreed to this also. And the FT3 results saved me from a Synthroid dosage decrease! My TSH was .707 (normal .35-5.5). My FT4 was 2.0 (normal .61-1.76). But my FT3 was 3.4 (normal 2.3-4.2). Her comment was, " Your TSH is in normal range, so let's keep your dosage. " (I guess some docs are bothered by a patient being right.) I guarantee that my dose would have been lowered without the T3 being in normal range as my FT4 was high and TSH low end normal! Next quest...getting my endo to let me try Jody's BRT for my TED! I am working on it! Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Hi , It really is important for you to share this FT3/FT4 testing info with your doctor. If the doctor won't budge, time for a new doc. I got rid of endo #2 for this very reason. He was an older gent and would not test anything but TSH. My current endo tested TSH and FT4 on my first visit, and easily agreed to test TSI at my request. I then asked her to test FT3 each visit and she easily agreed to this also. And the FT3 results saved me from a Synthroid dosage decrease! My TSH was .707 (normal .35-5.5). My FT4 was 2.0 (normal .61-1.76). But my FT3 was 3.4 (normal 2.3-4.2). Her comment was, " Your TSH is in normal range, so let's keep your dosage. " (I guess some docs are bothered by a patient being right.) I guarantee that my dose would have been lowered without the T3 being in normal range as my FT4 was high and TSH low end normal! Next quest...getting my endo to let me try Jody's BRT for my TED! I am working on it! Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 > My doctor has become increasingly fixated on TSH levels > for managing my Synthroid dosage. Hi , The best study I've seen thus far supporting the need to include T-3 is: " Effects of Thyroxine as Compared with Thyroxine plus Triiodothyronine in Patients with Hypothyroidism " . It's in the New England Journal of Medicine at http://content.nejm.org/cgi/content/full/340/6/424 Let me know if you have trouble getting it. Bertta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 > My doctor has become increasingly fixated on TSH levels > for managing my Synthroid dosage. Hi , The best study I've seen thus far supporting the need to include T-3 is: " Effects of Thyroxine as Compared with Thyroxine plus Triiodothyronine in Patients with Hypothyroidism " . It's in the New England Journal of Medicine at http://content.nejm.org/cgi/content/full/340/6/424 Let me know if you have trouble getting it. Bertta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Hi Sharon, > are you a subscriber? can't get in Yes, you can subscribe free to get access to articles over 6 months old. Or if you want, I can email it over to you. Bertta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 bertta, are you a subscriber? can't get in sharon Re: Need links for educating a doctor > My doctor has become increasingly fixated on TSH levels > for managing my Synthroid dosage. Hi , The best study I've seen thus far supporting the need to include T-3 is: " Effects of Thyroxine as Compared with Thyroxine plus Triiodothyronine in Patients with Hypothyroidism " . It's in the New England Journal of Medicine at http://content.nejm.org/cgi/content/full/340/6/424 Let me know if you have trouble getting it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 lisa- if docs SHOULD be dosing on TSI but dose instead on FRee T levels, and one in low and the other high, then do they dose on the one not in normal range, despite what's happening to the other? or do they just dose on the Free T 3? i am almost understanding all this, and that's when i can ask my doc about which test she needs to approve and do from now on. thanks! sharon Re: Need links for educating a doctor Hi , It really is important for you to share this FT3/FT4 testing info with your doctor. If the doctor won't budge, time for a new doc. I got rid of endo #2 for this very reason. He was an older gent and would not test anything but TSH. My current endo tested TSH and FT4 on my first visit, and easily agreed to test TSI at my request. I then asked her to test FT3 each visit and she easily agreed to this also. And the FT3 results saved me from a Synthroid dosage decrease! My TSH was .707 (normal .35-5.5). My FT4 was 2.0 (normal .61-1.76). But my FT3 was 3.4 (normal 2.3-4.2). Her comment was, " Your TSH is in normal range, so let's keep your dosage. " (I guess some docs are bothered by a patient being right.) I guarantee that my dose would have been lowered without the T3 being in normal range as my FT4 was high and TSH low end normal! Next quest...getting my endo to let me try Jody's BRT for my TED! I am working on it! Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 yes, i did see the 6 mo. deal- email for me, por favor? Re: Need links for educating a doctor Hi Sharon, > are you a subscriber? can't get in Yes, you can subscribe free to get access to articles over 6 months old. Or if you want, I can email it over to you. Bertta Quote Link to comment Share on other sites More sharing options...
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