Re: Lou

[Guest guest]



ML, Peggy.... I think I talked to both of you but can't seem to remember...it's foggy. I know I talked to you this am ML and I guess you yesterday Peggy.

I know you "get it" so I won't keep apologizing. If I stay weird You'll have to figure out Is she still weird or is she well now?

I think of all of us daily too.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Lou

Lou, I am so happy to hear you are going to get into your spiritual life. I do not know how anyone gets through a day without Faith and knowing upon our death where we will instantly be. I know My Jesus lives and is our comforter. I will be praying for you.

I love you pretty lady and think of you each and every day.�

Love & Prayers, Peggy

Florida, �IPF/UIP 2004

"I believe that friends are quiet angels�who lift us to our feet,�

when our wings�have trouble remembering how to fly."�

THIS GROUP IS VERY IMPORTANT TO ME. I WANT YOU ALL TO KNOW OR TELL ME WHAT TO DO TO KEEP IT IN MY LIFE. I NEED HELP. MY NURSE SET UP A MEETING THURSDAY IN AFTRNOON FOR AN HOUR TO HELP ME WITH [sPIRITUAL] GUIDENCE. TO KEEP IN TOUCH WITH YOU EACH DAY IS A SPIRITUAL JOURNEY FOR ALL OF US TO USE TOGETHER AND TO KEEP IN TOUCH.I can not write any more tonight, don't know what is wrong, but trying get the rest I need.I LOVE YOU EACH THIS DAY�I WISH I WERE FEEING BETTERBYE FOR NOWMARY LOU - IPF - 02

[Guest guest]

Thank you, Earl. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Sunday, May 31, 2009 12:17:04 AMSubject: Lou

Hi gang this is Earl I just want you all to know that Lou and I Love you this day. Thank you each and everyone for all your prayers andsupport. I have loved this persistant fighter for 30 years. There is no doubt in my mind that she is in GOD's arms. Garrentee you she is watching over all of us right now and forever more. Once again WE LOVE YOU THIS DAYML/EP

[Guest guest]

Thank you, Earl. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Sunday, May 31, 2009 12:17:04 AMSubject: Lou

Hi gang this is Earl I just want you all to know that Lou and I Love you this day. Thank you each and everyone for all your prayers andsupport. I have loved this persistant fighter for 30 years. There is no doubt in my mind that she is in GOD's arms. Garrentee you she is watching over all of us right now and forever more. Once again WE LOVE YOU THIS DAYML/EP

[Guest guest]

BarbaraFunny you mentioned that name and coming in not knowing its meaning. I had to look back and she came up with it last December it seems. It actually came from some of her battles regarding cataract surgery and dealing with insurance and those things. I can't remember the exact details of what possessed us to go on the nicknaming binge at that time, but glad she picked that one for herself. It described her but also helped her. I think , otherwise known as GIO and otherwise known as SGIO was probably behind some of the naming. She should now publish a list of all the nicknames as I know Peggy and Zena and our previous Queen Joyce and I think Gwynne have or had them. The names are both playful and serious at the same time. Well, except mine which is BWBB. beautifully integrates humor with seriousness and I think the nickname for Lou combined light heartedness with the real battler she was. I'm copying here the original post with the name as it shows all sides of Lou so beautifully.I decided last 2 days trying to think of something that would match

PF initials, so I thought "Persistant Fighter" is my new nickname.

When anyone asks me what's wrong with me I will just say; Persistant Fighter. How does that sound to you guys.

You haven't heard much from me yesterday or today. A lot of

complications arose yesterday afternoon at the eye surgeon's

office, THE VA. EYE INSTITUTE, nevertheless, yeah right!!!! It is all

straightened out now so that's what counts. They really put the

screws to me knowing of my PF progressive terminal disease by telling me I have to have a check in their office on the Surgery Director's desk no later than 3 days prior to the surgery or 'no go'. She explained why. The amount would be $1100.00. Earl and I almost fainted. What's this???????? ? > He had planned to perform the 'TORIC PREMIUM' surgical implant to correct my stigmatism so I would never have to wear glasses. Well, come to find out the $500. was for the surgeon, $600. for the Institute. Bulla crappa,..... ...... no less. As U say, NOT ME!!! > Well, yesterday morning I called the Surgical Director and talked with

her AFTER I HAD TALKED WITH EARL'S INSURANCE COMPANY UNITED HEALTH, Optimum Choice. The INS> com. said I don't need to pay a thing because I went from the Toric Premium surgery to the Standard lens operation. > That would cost me nothing. I told the Surgical Director that I had decided not to have the toric premium surgery, I could never afford that in a million years with my present PF condition that would be crazy. Director told me the Standard Lens would also help to correct the stigmatism pretty good. So I agreed. Today I should get a letter from her and a change of procedures under the knife. Director yesterday went into Dr. Sakowski's office to tell him of my change in procedures and he knew I couldn't afford it then, so he told her my stigmatism was pretty bad, so TOLD HER HE WOULDN'T CHARGE ME FOR > THAT. YYYYYAYYYYYYYYYYYYY YYYYYYYYYYAYAYAY AYAYYAYAYYAAAAAA AAAA!

So life is good, God is Good and I am Good. heeeee Earl is good too.

brought me my new knit black slacks from w/mart yesterday

afternoon and also a dozen pink roses with baby breath. I just

cried > when I got them. That's how thoughtful and considerate she is all the > time. I wrote her a check for the slacks and snuck in a few extra bucks for everything she continually does for Mom. She was between gigs too so I gave her some fresh baked meatloaf I had just made. It is amazing how little she can eat at one time. Like 3 tablespoons and she is full.

I don't think it is right that the Dr. tried to get the money I

don't have but I know too that he is a great surgeon, and he will do all he > can for me. So I thanked the Director for her service to me too.

End of the line for now. 'persistant fighter'.

See, that is a good name for me. Never give up!!!

I LOVE YOU THIS DAY >> When I first joined this forum - about 9 months ago - I was puzzled to see Lou refer to herself as "Persistent Fighter". It didn't take long before I realized just what a fighter she was. Always joyful, always looking out for her "air family", always referring to her husband, Earl, with deep love, always worrying more about others than herself--all this in spite of her deteriorating health. By allowing us to read her frequent writings, we all learned as much about ourselves and our own disease as we learned about Lou. In the end, Lou has triumphed over this terrible disease by returning to the arms of our Lord. > > God bless you, Lou, as your life has blessed those of us privileged to know you. And may your family continue to be blessed by your spirit, which is with us still.> > B>

[Guest guest]

Hi Earl, I want to be sure we all know she loved you with all her being.I can hear her describing the wonderful meals you made for her. AND thenthere was the side of ML that would just crack us up laughing. Alwaysgood things to bring to us. We did love her and you because you are whoyou are. Thanks for being such a wonderful caretaker for Lou.God be with you and your family.Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. Hi gang this is Earl I just want you all to know that Lou and I Love you this day. Thank you each and everyone for all your prayers andsupport. I have loved this persistant fighter for 30 years. There is no doubt in my mind that she is in GOD's arms. Garrentee you she is watching over all of us right now and forever more. Once again WE LOVE YOU THIS DAYML/EP

[Guest guest]

Thanks for posting that, Bruce. I guess at the time Lou wrote it, I was still very new to the people on the board.

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Sunday, May 31, 2009 1:28:16 PMSubject: Re: Lou

BarbaraFunny you mentioned that name and coming in not knowing its meaning. I had to look back and she came up with it last December it seems. It actually came from some of her battles regarding cataract surgery and dealing with insurance and those things. I can't remember the exact details of what possessed us to go on the nicknaming binge at that time, but glad she picked that one for herself. It described her but also helped her. I think , otherwise known as GIO and otherwise known as SGIO was probably behind some of the naming. She should now publish a list of all the nicknames as I know Peggy and Zena and our previous Queen Joyce and I think Gwynne have or had them. The names are both playful and serious at the same time. Well, except mine which is BWBB. beautifully integrates humor with seriousness and I think the nickname for Lou combined light heartedness with the real battler she was. I'm copying here the

original post with the name as it shows all sides of Lou so beautifully.I decided last 2 days trying to think of something that would matchPF initials, so I thought "Persistant Fighter" is my new nickname.When anyone asks me what's wrong with me I will just say; Persistant Fighter. How does that sound to you guys.You haven't heard much from me yesterday or today. A lot of complications arose yesterday afternoon at the eye surgeon'soffice, THE VA. EYE INSTITUTE, nevertheless, yeah right!!!! It is all straightened out now so that's what counts. They really put thescrews to me knowing of my PF progressive terminal disease by telling me I have to have a check in their office on the Surgery Director's desk no later than 3 days prior to the surgery or 'no go'. She explained why. The amount would be $1100.00. Earl and I almost fainted. What's

this???????? ? > He had planned to perform the 'TORIC PREMIUM' surgical implant to correct my stigmatism so I would never have to wear glasses. Well, come to find out the $500. was for the surgeon, $600. for the Institute. Bulla crappa,..... ...... no less. As U say, NOT ME!!! > Well, yesterday morning I called the Surgical Director and talked with her AFTER I HAD TALKED WITH EARL'S INSURANCE COMPANY UNITED HEALTH, Optimum Choice. The INS> com. said I don't need to pay a thing because I went from the Toric Premium surgery to the Standard lens operation. > That would cost me nothing. I told the Surgical Director that I had decided not to have the toric premium surgery, I could never afford that in a million years with my present PF condition that would be crazy. Director told me the Standard Lens would also help to correct the stigmatism pretty good. So I agreed. Today I

should get a letter from her and a change of procedures under the knife. Director yesterday went into Dr. Sakowski's office to tell him of my change in procedures and he knew I couldn't afford it then, so he told her my stigmatism was pretty bad, so TOLD HER HE WOULDN'T CHARGE ME FOR > THAT. YYYYYAYYYYYYYYYYYYY YYYYYYYYYYAYAYAY AYAYYAYAYYAAAAAA AAAA!So life is good, God is Good and I am Good. heeeee Earl is good too. brought me my new knit black slacks from w/mart yesterday afternoon and also a dozen pink roses with baby breath. I justcried > when I got them. That's how thoughtful and considerate she is all the > time. I wrote her a check for the slacks and snuck in a few extra bucks for everything she continually does for Mom. She was between gigs too so I gave her some fresh baked meatloaf I had just made. It is amazing how little she can eat at one time. Like 3

tablespoons and she is full. I don't think it is right that the Dr. tried to get the money Idon't have but I know too that he is a great surgeon, and he will do all he > can for me. So I thanked the Director for her service to me too. End of the line for now. 'persistant fighter'. See, that is a good name for me. Never give up!!! I LOVE YOU THIS DAY >> When I first joined this forum - about 9 months ago - I was puzzled to see Lou refer to herself as "Persistent Fighter". It didn't take long before I realized just what a fighter she was. Always joyful, always looking out for her "air family", always referring to her husband, Earl, with deep love, always worrying more about others than herself--all this in spite of her deteriorating health. By allowing us to read her

frequent writings, we all learned as much about ourselves and our own disease as we learned about Lou. In the end, Lou has triumphed over this terrible disease by returning to the arms of our Lord. > > God bless you, Lou, as your life has blessed those of us privileged to know you. And may your family continue to be blessed by your spirit, which is with us still.> > B>

[Guest guest]

Barbara

Well, I think that post of hers sort of reflects the entirety of the

board. We have diseases, we get angry, we fight insurance and doctors,

but we move forward and make the most of our lives and we mix humor in

with all of it. You read and go from horrified to smiling to laughing.

I'm picturing her daughter measuring out three tablespoons of meatloaf

for her meal.

> >

> > When I first joined this forum - about 9 months ago - I was puzzled

to see Lou refer to herself as " Persistent Fighter " . It didn't take

long before I realized just what a fighter she was. Always joyful,

always looking out for her " air family " , always referring to her

husband, Earl, with deep love, always worrying more about others than

herself--all this in spite of her deteriorating health. By allowing us

to read her frequent writings, we all learned as much about ourselves

and our own disease as we learned about Lou. In the end, Lou

has triumphed over this terrible disease by returning to the arms of our

Lord.

> >

> > God bless you, Lou, as your life has blessed those of us

privileged to know you. And may your family continue to be blessed by

your spirit, which is with us still.

> >

> > B

> >

>

[Guest guest]

I was deeply saddened to read of Lou's passing. Between this support group

and the Lung Transplant group, we have experience too many losses these past few

weeks! Too many voices from our " Air Family " have been quieted here on Earth,

but are now performing in the Heavenly Choir!

ML's posts were always " must read " and I will miss them, and her persistent

fighting!!!!! She was a great source of information and inspiration - an

incredible role model for all of us with IPF.

Steve IPF 9/07 confirmed via VATS 12/07

57 Plymouth, New Hampshire

>

>

>

>

>

> Hi gang this is Earl I just want you all to know that Lou and I

> Love you this day. Thank you each and everyone for all your prayers and

> support. I have loved this persistant fighter for 30 years. There is no

> doubt in my mind that she is in GOD's arms. Garrentee you she is

> watching over all of us right now and forever more. Once again

> WE LOVE YOU THIS DAY

> ML/EP

>

[Guest guest]

Dear Earl and family,

I'm a newbie. I teared up when I heard the news of Lou.

I quess because we're all in this together. God bless you and peace to

you all.

Patti Shelton

>

> Hi gang this is Earl I just want you all to know that Lou and I

Love you this day. Thank you each and everyone for all your prayers and

> support. I have loved this persistant fighter for 30 years. There is

no

> doubt in my mind that she is in GOD's arms. Garrentee you she is

watching over all of us right now and forever more. Once again

> WE LOVE YOU THIS DAY

> ML/EP

>