Re: Hi everyone.... I'm new to the group and I have a question!

[Guest guest]

Jay

G-d Bless Prednisone

my disease is responsive to prednisone and last week they put me on the inactive transplant list

i'm down to 15 mgs prednisone, but 2000 mgs cellcept

side effects are a pain, but you have to decide what is best for you

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: Hi everyone.... I'm new to the group and I have a question!To: Breathe-Support Date: Tuesday, April 14, 2009, 7:11 PM

Jay, Welcome to the "air family". On the subject of Prednisone.. ..boy do you have loads to read!!!!There are as many opinions here as there are members!!!!. Look through the databases linked at the bottom of the messages.We have listed pros and cons and side effects. Read all you can about the drug...I've personally been one of a few here who have been stable because of Prednisone.. .but I have one of 200 forms of the diseaseNSIP (fibriotic) that happens to sometimes respond positively to prednisone. I do not have IPF.Again...welcome.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

senseichef@rocketma il.com wrote:

How does everyone feel about Prednisone? My Doctors are all so wishy-washy when it comes to the subject. One say "You should be on it". One says "it's side effects outweigh it's benefits" and yet a 3rd says "If you read up on it it says it has no help for IPF". It all gets very confusing! Since last week I've been sitting here with a prescription for it and I just can't decide... take it or no. Then I end out in emergency with fluid building up and pain in my side. They put me on a short course of Prednisone. LOL I am diabetic but so far the highest my sugar has been is 185, and that is controllable I think, so it's not really beating me up in that direction but still.... I'm at that take it or no point.Anyway, just thought I'd ask. I know we're not all Doctors here but I'd say many of us are Smee's (subject matter experts), and sometimes another voice is a nice thing.I'd better check on my wife. She's in the kitchen making a

home made Hummingbird cake for my Mom's 83rd birthday. Thanks,JayIPF 11/08The spirit of a man will sustain his infirmity; but a wounded spirit who can bear? ~Proverbs 18:14