Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 - not really an answer but a shared experience. During pulmo rehab about a year and a half ago, I knew something was in my lungs. I could feel it. I had a CRT and a RRT listen to my lungs and they said they were clear. I had walked a mile, bicycled 3 miles and used the recline bike 20 minutes that day with plenty of good air. But I knew something was wrong. The next day I was in the hospital with a flareup of my pneumonitis. I still get fluid in there but some of that fluid is around my heart. Pay really close attention to how you feel. It matters even more than what the docs tell you. BTW, I visited Windsor in the summer of 74. Went to a public garden or something. That's been a really long time ago but it was spectacular. It struck me that the first thing I saw driving across the bridge into Windsor was a KFC. Wow. Canada is not that different really. Take care of yourself, S, Lubbock, TX NSIP w/PF 12/2006 > > I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am " filling up " again. The fluid was in the lung sac. Please advise. Thank-you. > > > > Windsor, Ontario Canada > Dx 03/08 IPF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 , The person to pose this question to is the surgeon who did the biopsy. He/she is probably a different person than your pulmonologist. Obviously I can't say precisely why you had so much drainage after your biopsy but I can give you some basic things that typically happen after any surgery. When the body has any type of wound, whether it's accidental or surgical in nature, the body does something automatically. It sends fluid to that area. It sends blood, it sends lymph, it just sends all the fluid it can to the injured area. By doing this it's sending oxygen, white blood cells to fight off bacteria, antibodies and all the vitamins and minerals that aid in healing. The fluid is the carrier for all these things. Some of this fluid is reabsorbed into the body and some of it drains from the wound. Usually post surgical drainage starts out looking very bloody and gradually becomes clear to yellowish. Normal post surgical drainage would not be visible on a pre-operative x-ray or exam because it wasn't there. It arises post-operatively in response to the surgery. Now all this happens under normal circumstances. Whether you had an unusual situation or something very different going on is impossible for me to say. As I said starting out the person in the best position to clear this up for you is the surgeon who did the biopsy. Hope that helps some. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 31, 2009 3:11:19 PMSubject: Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 , The person to pose this question to is the surgeon who did the biopsy. He/she is probably a different person than your pulmonologist. Obviously I can't say precisely why you had so much drainage after your biopsy but I can give you some basic things that typically happen after any surgery. When the body has any type of wound, whether it's accidental or surgical in nature, the body does something automatically. It sends fluid to that area. It sends blood, it sends lymph, it just sends all the fluid it can to the injured area. By doing this it's sending oxygen, white blood cells to fight off bacteria, antibodies and all the vitamins and minerals that aid in healing. The fluid is the carrier for all these things. Some of this fluid is reabsorbed into the body and some of it drains from the wound. Usually post surgical drainage starts out looking very bloody and gradually becomes clear to yellowish. Normal post surgical drainage would not be visible on a pre-operative x-ray or exam because it wasn't there. It arises post-operatively in response to the surgery. Now all this happens under normal circumstances. Whether you had an unusual situation or something very different going on is impossible for me to say. As I said starting out the person in the best position to clear this up for you is the surgeon who did the biopsy. Hope that helps some. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 31, 2009 3:11:19 PMSubject: Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 There was no pain. The only pain there was because my doctor tied the stitches too tight.Sent on the TELUS Mobility network with BlackBerryFrom: "JOYCE RUDY" Date: Tue, 31 Mar 2009 16:25:11 -0700To: <Breathe-Support >Subject: Re: Question my Pulmo could not answer I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Joyce, I think you will probably get alot of different answers to that question. There has been a wide range of experiences here. I had an open lung biopsy and had considerable pain until they removed the chest tube. Once that was out my pain subsided dramatically. By the time I was discharged from the hospital the pain was minimal and I wasn't taking anything more than Tylenol. Whether I would have been capable of a 200 mile drive is questionable but that's me and not you. Is there no one who can help you? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 31, 2009 7:25:11 PMSubject: Re: Question my Pulmo could not answer I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Joyce This may be a technicality that you're not able to answer, but are they planning a VATS (Video assisted thorascopic surgery) or a regular open lung biopsy? The range of pain and experiences we've had are very wide. I had some pain and complication but overall everything worked out fine. As to driving home, I wouldn't put anything past you. However, you may still be on a quantity of pain killer that would make it inadvisable to drive. As to biopsy also there are two questions I'd ask the doctors and want to know. First, what do they hope to learn, expect they may find out? Two, based on the most likely answers to the first question, how will that information influence your treatment? > > Joyce, > I think you will probably get alot of different answers to that question. There has been a wide range of experiences here. I had an open lung biopsy and had considerable pain until they removed the chest tube. Once that was out my pain subsided dramatically. By the time I was discharged from the hospital the pain was minimal and I wasn't taking anything more than Tylenol. > Whether I would have been capable of a 200 mile drive is questionable but that's me and not you. Is there no one who can help you? > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: JOYCE RUDY greycharlie@... > To: Breathe-Support > Sent: Tuesday, March 31, 2009 7:25:11 PM > Subject: Re: Question my Pulmo could not answer > > > I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ > Question my Pulmo could not answer > > > I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am " filling up " again. The fluid was in the lung sac. Please advise. Thank-you. > > > Windsor, Ontario Canada > Dx 03/08 IPF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Joyce, With my Open Lung Biopsy I was not allowed to drive until 3 weeks after being discharged. I typically have a high tollerance for pain. I was certainly in no condition to drive myself home from the hospital. I would guess that you would not be in the condition to drive home either. FL PF 1/06 -Support , Beth wrote: > > Joyce, > I think you will probably get alot of different answers to that question. There has been a wide range of experiences here. I had an open lung biopsy and had considerable pain until they removed the chest tube. Once that was out my pain subsided dramatically. By the time I was discharged from the hospital the pain was minimal and I wasn't taking anything more than Tylenol. > Whether I would have been capable of a 200 mile drive is questionable but that's me and not you. Is there no one who can help you? > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: JOYCE RUDY > To: Breathe-Support > Sent: Tuesday, March 31, 2009 7:25:11 PM > Subject: Re: Question my Pulmo could not answer > > > I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ > Question my Pulmo could not answer > > > I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am " filling up " again. The fluid was in the lung sac. Please advise. Thank-you. > > > Windsor, Ontario Canada > Dx 03/08 IPF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Bruce- I don't know if it will be a Vats or not and what they hope to see is to rule out scleroderma. Joyce Rudy Question my Pulmo could not answer>>> I went to see my Pulmo and posed a question that he could not answer.The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungsdrained for 20 days before this slowed down enough that the drainage wasno longer an issue and I could be discharged from the Hospital. After Iwas discharged this is the best that I could breathe. This "fluid" wasnot detected on any x-ray or Hi-res CAT Scan. Does anyone else no whythis happened? I am wondering if I am "filling up" again. The fluid wasin the lung sac. Please advise. Thank-you.>> > Windsor, Ontario Canada> Dx 03/08 IPF> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Beth- everyone I know who can drive works and cannot take off work. I will hunt around and there may be a way for me to take a shuttle though I haven't heard of that. I'l certainly check into that. Joyce Rudy, AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Joyce Rudy There may be some other possibilities too. I'm sure given time to explore you'll find them. One, I'd suggest thinking of is that most hospitals now have inexpensive hotels on their properties or very near by. It might be that for at least the first night and maybe a couple of nights after dismissal, this would be a good option. Keeps you close until you're confident of no problems, off pain killers, feeling better and ready to roll. Talk to the doctors. They will base release on what your circumstances upon leaving are. A patient going home to a house alone may be kept a day longer than one with someone young and healthy to take care of them after. There may be medical facilities from rehab facilities to short term nursing or other combinations to stay at for a few days until driving home is safe and you feel more confident there will be no complications. Now is a time to look into local groups and services. You might be surprised to find volunteers in so many areas. Even if not something that will apply here, something that will come in valuable in the future. This could be through social services, churches, or senior centers and groups. Asking and calling around may turn up something we haven't even thought of. Just remind yourself. After what I just did, I can solve and overcome anything. I, the Blue Flyer, will not be held back. > > Beth- everyone I know who can drive works and cannot take off work. I will hunt around and there may be a way for me to take a shuttle though I haven't heard of that. I'l certainly check into that. Joyce Rudy, AZ > Question my Pulmo could not answer > > > I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am " filling up " again. The fluid was in the lung sac. Please advise. Thank-you. > > > Windsor, Ontario Canada > Dx 03/08 IPF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Joyce There are companies nationwide and locally that specialize in non-emergency medical transport. I haven't ever talked to them so no little about them. There are also the options of what we would refer to as limousine services but they may use regular sedans to transport you and are less expensive than you might think. In business we used them in lieu of taxis. There are also persons including many retirees who make extra income driving and shuttling people. My uncle did it for the trains before his death. Last there are ads on places like craigslist where one can seek someone to do such or places like Care.com. I know some of these may have no potential but throwing as many ideas as I can out there for you to pursue and find the one that works best. I don't know when you are planning the surgery, but students, especially college students, are always looking for ways to pick up extra money. Or there may be a service organization at a college which does such on a volunteer or expense only basis. > > > > Beth- everyone I know who can drive works and cannot take off > work. I will hunt around and there may be a way for me to take a shuttle > though I haven't heard of that. I'l certainly check into that. Joyce > Rudy, AZ > > Question my Pulmo could not answer > > > > > > I went to see my Pulmo and posed a question that he could not > answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, > my lungs drained for 20 days before this slowed down enough that the > drainage was no longer an issue and I could be discharged from the > Hospital. After I was discharged this is the best that I could breathe. > This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does > anyone else no why this happened? I am wondering if I am " filling up " > again. The fluid was in the lung sac. Please advise. Thank-you. > > > > > > Windsor, Ontario Canada > > Dx 03/08 IPF > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Everyone An excellent resource for seeking assistance finding solutions to many of our local problems is this Eldercare Locator. http://www.eldercare.gov/Eldercare.NET/Public/Home.aspx There is almost always some form of local council on aging and they can at least give you some ideas or point you in some directions. Most of the obstacles we think we face, we're not alone. Transportation is a problem for many and so much we might not know. For instance, I didn't know until today that while Medicare generally doesn't cover non-emergency transportation (that part I did know), Medicaid quite often does. > > > > > > Beth- everyone I know who can drive works and cannot take off > > work. I will hunt around and there may be a way for me to take a > shuttle > > though I haven't heard of that. I'l certainly check into that. Joyce > > Rudy, AZ > > > Question my Pulmo could not answer > > > > > > > > > I went to see my Pulmo and posed a question that he could not > > answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, > > my lungs drained for 20 days before this slowed down enough that the > > drainage was no longer an issue and I could be discharged from the > > Hospital. After I was discharged this is the best that I could > breathe. > > This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does > > anyone else no why this happened? I am wondering if I am " filling up " > > again. The fluid was in the lung sac. Please advise. Thank-you. > > > > > > > > > Windsor, Ontario Canada > > > Dx 03/08 IPF > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Bruce, what is the difference between bikes in respiratory rehab and health clubs? I have neither so I cannot answer the questions. Thanks sharon p ph asthma 2008 Subject: Re: Question my Pulmo could not answerTo: Breathe-Support Date: Thursday, April 2, 2009, 9:39 AM EveryoneAn excellent resource for seeking assistance finding solutions to manyof our local problems is this Eldercare Locator.http://www.eldercar e.gov/Eldercare. NET/Public/ Home.aspxThere is almost always some form of local council on aging and they canat least give you some ideas or point you in some directions. Most ofthe obstacles we think we face, we're not alone. Transportation is aproblem for many and so much we might not know. For instance, I didn'tknow until today that while Medicare generally doesn't covernon-emergency transportation (that part I did know), Medicaid quiteoften does.> > >> > > Beth- everyone I know who can drive works and cannot take off> > work. I will hunt around and there may be a way for me to take a> shuttle> > though I haven't heard of that. I'l certainly check into that. Joyce> > Rudy, AZ> > > Question my Pulmo could not answer> > >> > >> > > I went to see my Pulmo and posed a question that he could not> > answer. The question was, when I had my Lung Biopsy tocinfirm theIPF,> > my lungs drained for 20 days before this slowed down enough that the> > drainage was no longer an issue and I could be discharged from the> > Hospital. After I was discharged this is the best that I could> breathe.> > This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does> > anyone else no why this happened? I am wondering if I am "fillingup"> > again. The fluid was in the lung sac. Please advise. Thank-you.> > >> > > > > > Windsor, Ontario Canada> > > Dx 03/08 IPF> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Sharon They may have very similar equipment. The difference is being taught what is appropriate for your condition and disease and being monitored, especially your saturation and pulse. Now, once you've been through rehab you should be able to use one safely anywhere. Many of us use treadmills regularly at home or at centers. But, we do know the appropriate levels of use for ourselves. > > > > > > > > Beth- everyone I know who can drive works and cannot take off > > > work. I will hunt around and there may be a way for me to take a > > shuttle > > > though I haven't heard of that. I'l certainly check into that. Joyce > > > Rudy, AZ > > > > Question my Pulmo could not answer > > > > > > > > > > > > I went to see my Pulmo and posed a question that he could not > > > answer. The question was, when I had my Lung Biopsy tocinfirm the > IPF, > > > my lungs drained for 20 days before this slowed down enough that the > > > drainage was no longer an issue and I could be discharged from the > > > Hospital. After I was discharged this is the best that I could > > breathe. > > > This " fluid " was not detected on any x-ray or Hi-res CAT Scan. Does > > > anyone else no why this happened? I am wondering if I am " filling > up " > > > again. The fluid was in the lung sac. Please advise. Thank-you. > > > > > > > > > > > > Windsor, Ontario Canada > > > > Dx 03/08 IPF > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 mary beth thanks for a great explanation about post op drainage Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Question my Pulmo could not answerTo: Breathe-Support Date: Tuesday, March 31, 2009, 3:43 PM , The person to pose this question to is the surgeon who did the biopsy. He/she is probably a different person than your pulmonologist. Obviously I can't say precisely why you had so much drainage after your biopsy but I can give you some basic things that typically happen after any surgery. When the body has any type of wound, whether it's accidental or surgical in nature, the body does something automatically. It sends fluid to that area. It sends blood, it sends lymph, it just sends all the fluid it can to the injured area. By doing this it's sending oxygen, white blood cells to fight off bacteria, antibodies and all the vitamins and minerals that aid in healing. The fluid is the carrier for all these things. Some of this fluid is reabsorbed into the body and some of it drains from the wound. Usually post surgical drainage starts out looking very bloody and gradually becomes clear to yellowish. Normal post surgical drainage would not be visible on a pre-operative x-ray or exam because it wasn't there. It arises post-operatively in response to the surgery. Now all this happens under normal circumstances. Whether you had an unusual situation or something very different going on is impossible for me to say. As I said starting out the person in the best position to clear this up for you is the surgeon who did the biopsy. Hope that helps some. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: oppm00 <oppm00 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, March 31, 2009 3:11:19 PMSubject: Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Joyce, I had a lot of discomfort, worse when the drainage tube was in, significant relief when the tube was removed. I was more weak from being in the hospital for several days.. No sleep, fear and anxiety played a huge part in it for me. I was too exhausted to drive home.... To: Breathe-Support Sent: Tuesday, March 31, 2009 7:25:11 PMSubject: Re: Question my Pulmo could not answer I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Joyce, I had a lot of discomfort, worse when the drainage tube was in, significant relief when the tube was removed. I was more weak from being in the hospital for several days.. No sleep, fear and anxiety played a huge part in it for me. I was too exhausted to drive home.... To: Breathe-Support Sent: Tuesday, March 31, 2009 7:25:11 PMSubject: Re: Question my Pulmo could not answer I have a question about open biopsy. How much pain is involved when you are discharged from the hospital? I will have to drive about 200 miles home. Do you think that would be a problem? Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 I think I will try to find someone who can drive me there and back even if I have tp pay for it. Of course I have heard nothing further about getting a biopsy. Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 I think I will try to find someone who can drive me there and back even if I have tp pay for it. Of course I have heard nothing further about getting a biopsy. Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 I think I will try to find someone who can drive me there and back even if I have tp pay for it. Of course I have heard nothing further about getting a biopsy. Joyce Rudy AZ Question my Pulmo could not answer I went to see my Pulmo and posed a question that he could not answer. The question was, when I had my Lung Biopsy tocinfirm the IPF, my lungs drained for 20 days before this slowed down enough that the drainage was no longer an issue and I could be discharged from the Hospital. After I was discharged this is the best that I could breathe. This "fluid" was not detected on any x-ray or Hi-res CAT Scan. Does anyone else no why this happened? I am wondering if I am "filling up" again. The fluid was in the lung sac. Please advise. Thank-you.Windsor, Ontario CanadaDx 03/08 IPF Quote Link to comment Share on other sites More sharing options...
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