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thanks sher,

thats a good idea to take them along to the doctors although my mom is dementia loaded and won't remember much.

I just got some stuff in the mail from my pulmon guy.

HAVE YOU or anyone every heard of a Dr. Newman from Fairfax Va.????? Is that a hospital with a IPF dapartment ???

Thanks againKay R.52.ipf.09,PA

To: Breathe-Support Sent: Thursday, March 26, 2009 12:48:31 PMSubject: Re: first visit to pulmo guy (Newby)

ok, thanks Kay.

I guess I got confused between the Beverly and the Kay and thought we had two Kays.

Good Grief...I'll catch up.... lol

I think I remembered to greet and welcome you already.

Get some brochures for Leanne (post her name in the subject line) and request she mail you some. Pass them out to your family.

It's hard for families. I'm sure yours is scared like many of ours. Give them time and keep talking to them...maybe get your mom or someone to go to the dr. with you.

Reassure them you are not going to die next week! Peggy says we have no expiration date stamped on our fannies...

Keep on keepin' on.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

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Kay... Is there only your mother in your family? What about husband, friends?

I have not heard of Dr. Newman but I'm clear out here in Oregon.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

first visit to pulmo guy (Newby)

Hi everyone , I went to see my pulmon guy ( first visit ) he showed me the ct scan of my lungs and said I have that crushed glass haze , and honeycombing in the lower part of my lungs.

He had my ct scan that was done 5 years ago. And said it doesn't show anything on that ct scan. So this is probably occured in the last five years. He did a complete exam and must have talked to me for a hour. I was so afraid.

He ordered a high resolution cat scan and PFT's with blood gases, also a noctural o2 for overnight study. He also sent me for blood work to check for rumatoid arthritis and lupus.

Does anyone on this board have lupus???

He also talked about a lung biopsy. Has anyone every hears of a Dr... Neuman at Fairfax, hospital??? He said this guy is good and he sends alot of patient to see him for a second opnion.

I thank god for all of you to talk to..My family thinks this is something a pill can cure. Please write back

Kay R.52.ipf.09, PA

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