out of hospital//need suggestions

[Guest guest]

Hi All,

I got really sick on Tuesday night and was admitted to the hospital on

Wednesday. My CPK and WBC is very high although we have no idea why. This has

happened before. Every ounce of my body is sore and exhausted. They have been

flushing my kidneys with IVs to prevent renal failure and have been somewhat

successful until now. They sent me home last night with the plan that a home

health care nurse would be here in the morning to give me more IV solution and

draw stat labs. She finally showed up at 1:30 but couldn't get any blood or

start an IV. My veins are apparently shot. She stuck me several times with no

luck. They were having problems at the hospital too but at least had a good

port (?) in for the IV. She gave up and is sending another nurse over to try

later. I know by the way I'm feeling and the way my kidneys hurt that I really

need that IV. Does anyone have any suggestions on what works for them. Does

anyone have these high CPK levels? I do not want to go back to the hospital.

That was not a good experience. Any suggestions would be appreciated.

S

[Guest guest]

,

I have no suggestions, but wanted to let you know that I am

thinking of you. I am sorry you have to go through all of this.

Smiles and hugs,

a

On Sat, 23 Oct 2004 14:29:14 EDT JSchwartzo@... writes:

Hi All,

I got really sick on Tuesday night and was admitted to the hospital on

Wednesday. My CPK and WBC is very high although we have no idea why.

This has

happened before. Every ounce of my body is sore and exhausted. They

have been

flushing my kidneys with IVs to prevent renal failure and have been

somewhat

successful until now. They sent me home last night with the plan that a

home

health care nurse would be here in the morning to give me more IV

solution and

draw stat labs. She finally showed up at 1:30 but couldn't get any blood

or

start an IV. My veins are apparently shot. She stuck me several times

with no

luck. They were having problems at the hospital too but at least had a

good

port (?) in for the IV. She gave up and is sending another nurse over to

try

later. I know by the way I'm feeling and the way my kidneys hurt that I

really

need that IV. Does anyone have any suggestions on what works for them.

Does

anyone have these high CPK levels? I do not want to go back to the

hospital.

That was not a good experience. Any suggestions would be appreciated.

S

[Guest guest]

I'm so sorry you are not doing well at this time.

I know that when my mother's CPK was high, she could not move and we could

not touch her without extreme pain.

Try to drink as much fluid (water would probably be best) until you can get

an IV in.

My neighbor had some bad seizures lasting a long time, several years ago

which raised his CPK very high. It clogged the kidney's and he had to have a

couple of days of dialysis along with IVs to start him on the right path. I

don't know if this might be your problem or not.

I'm thinking of you and send lots of positive thoughts your way. Please keep

us posted when you feel up to it. How is handling this?

Hugs,

laurie

> From: JSchwartzo@...

> Reply-To:

> Date: Sat, 23 Oct 2004 14:29:14 EDT

> To:

> Subject: out of hospital//need suggestions

>

> Hi All,

>

> I got really sick on Tuesday night and was admitted to the hospital on

> Wednesday. My CPK and WBC is very high although we have no idea why. This

> has

> happened before. Every ounce of my body is sore and exhausted. They have

> been

> flushing my kidneys with IVs to prevent renal failure and have been somewhat

> successful until now. They sent me home last night with the plan that a home

> health care nurse would be here in the morning to give me more IV solution and

> draw stat labs. She finally showed up at 1:30 but couldn't get any blood or

> start an IV. My veins are apparently shot. She stuck me several times with

> no

> luck. They were having problems at the hospital too but at least had a good

> port (?) in for the IV. She gave up and is sending another nurse over to try

> later. I know by the way I'm feeling and the way my kidneys hurt that I

> really

> need that IV. Does anyone have any suggestions on what works for them. Does

> anyone have these high CPK levels? I do not want to go back to the hospital.

> That was not a good experience. Any suggestions would be appreciated.

>

> S

>

>

>

[Guest guest]

Can you call the home health place and have them send someone else out

right away? If not, can you get ahold of your PCP's service and ask

your PCP to call you with suggestions?

I don't know what else to suggest, but I sure hope you can get this

resolved quickly.

Hugs,

JSchwartzo@... wrote:

>Hi All,

>

>I got really sick on Tuesday night and was admitted to the hospital on

>Wednesday. My CPK and WBC is very high although we have no idea why. This has

>happened before. Every ounce of my body is sore and exhausted. They have been

>flushing my kidneys with IVs to prevent renal failure and have been somewhat

>successful until now. They sent me home last night with the plan that a home

>health care nurse would be here in the morning to give me more IV solution and

>draw stat labs. She finally showed up at 1:30 but couldn't get any blood or

>start an IV. My veins are apparently shot. She stuck me several times with no

>luck. They were having problems at the hospital too but at least had a good

>port (?) in for the IV. She gave up and is sending another nurse over to try

>later. I know by the way I'm feeling and the way my kidneys hurt that I really

>need that IV. Does anyone have any suggestions on what works for them. Does

>anyone have these high CPK levels? I do not want to go back to the hospital.

>That was not a good experience. Any suggestions would be appreciated.

>

> S

>

>

>

[Guest guest]

,

I don't have any answers for you but I wanted to let you know that I am so sorry

you are going thru this episode and hope that you can get the answers you need.

Please take care and let us know when you can how you are doing.

Alice

[Guest guest]

,

Did you do anything physical on Monday or Tuesday? Dewayne always gets

episodes of rhabdomyolosis whenever he stresses his body. (or when he

could) His CPK's elevated, HORRIBLE pain along with muscle spasms and

kidney pain. His urine will get the myoglobulin (not sure if that is

right)...anyway it turns coke color. Hospitalized IV stays are the only

cure for him. It usually takes 3 to 4 days in the hospital and then he

stays down longer at home. He says it's like I beat him with a baseball bat

which makes me wonder how he would know that:) He never fully recovers back

to the original after one of these episodes. Sure hope you are feeling

better. Love and Prayers, Lynda R.

out of hospital//need suggestions

>

> Hi All,

>

> I got really sick on Tuesday night and was admitted to the hospital on

> Wednesday. My CPK and WBC is very high although we have no idea why.

This has

> happened before. Every ounce of my body is sore and exhausted. They have

been

> flushing my kidneys with IVs to prevent renal failure and have been

somewhat

> successful until now. They sent me home last night with the plan that a

home

> health care nurse would be here in the morning to give me more IV solution

and

> draw stat labs. She finally showed up at 1:30 but couldn't get any blood

or

> start an IV. My veins are apparently shot. She stuck me several times

with no

> luck. They were having problems at the hospital too but at least had a

good

> port (?) in for the IV. She gave up and is sending another nurse over to

try

> later. I know by the way I'm feeling and the way my kidneys hurt that I

really

> need that IV. Does anyone have any suggestions on what works for them.

Does

> anyone have these high CPK levels? I do not want to go back to the

hospital.

> That was not a good experience. Any suggestions would be appreciated.

>

> S

>

>

>