Re: Re: disabled kids and deaf child

[Guest guest]

I have had a hard time even looking at the subject line that says " Disabled

Kids " Our kids are NOT disabled! Thank God we have all found Drs who can

preform miracles and correct the mal-formation of our childrens feet. Most of

our children will never know the pain, and dis-abling of a true disablilty.

Granted, many kids in this world born with clubfeet will never know the pleasure

of walking normaly. That is a sad thing.

Having had to deal with an invisable disablilty in all four of my children has

made this topic a hard one for me to express. I apologize now if I come across

badly.

I have had to deal with lots of Doctors. Many who know little but pretend much

and make bold statements about disorders and causality they really know nothing

about. For instance, my favorite is a Dr who, during an ultrasound told me my

daughters clubfeet were caused by the brittle bone disorder she has. He decided

that she was too cramped and her feet broke causing clubfeet. He could not have

been more wrong. Her feet had not broken at all and I told him that the bone

disorder and clubfeet have nothing to do with each other. After birth it was

confirmed that not one bone was broken. Educate yourselves and then tell the Drs

what they need to know (in most cases this works but not all).

To the Mom who has learned her baby is not hearing. First, there is nothing

wrong with your baby. Not hearing, to a hearing person is considered a diability

but it is not to a Deaf person. In fact two Deaf parents would rather have a

deaf child then a hearing child. Get out there and learn sign language! Find

other Deaf people who have been deaf since birth, find the ones who have been

taught Sign Language and those who lip read. Teach them both Sign and English.

Your child can be part of " normal " society without hearing. And most of all, do

not let a Dr tell you why this happened, they can not tell you anymore them a

cat could tell you why or how. Do not let them tell you what you have to do.

There are always alternatives that they do not know about. Get on the web and

research. One place to check out would be the Deaf University Galladet (sp?). It

is in Wash, D.C. I also know of a program that is helping deaf children in

grammar and reading. I saw a PBS show about it just recently.

I have been schooled in Sign Language and Deaf culture. If you have any

questions or want help looking for more info let me know. I'd be happy to help.

E-mail me off the site.

and Shalom

akhushtal_svn akhushtal_svn@...> wrote:

I'm sooooo glad I read this today. We just found out last week that

our daughter can't hear and her club feet are the least of her

issues. Honestly I've been feeling sorry for myself and for her.

Which is a shame because she's the most happy baby in the world and

for all that she can't hear she loves to laugh about everything and

smiles all the time. I guess part of my problem has been that all

her health care providers are quick to blame me because I'm diabetic

and my blood sugars were out of control the first weeks of my

pregnancy. So I'm feeling guiltly on a regular basis and have been

feeling that way since I found out I was pregnant. Doctors are not

always kind at least not in my experience. So maybe now I'll be able

to look at this differently. Thanks for sharing it's helped already!

> That was beautifully stated.

>

>

>

>