Re: i read an article - Att KK

[Guest guest]

Hi Sharon,

Yes, I had BLCF. Unfortunatly I had surgery to correct them. 2 on the

R and 3 on the L. After the 3rd one I just didn't want anymore. I

still have a staple in the L, I wouldn't let them take it out. Just

pretty much fed up. I didn't have the tendon transfer that I have

read discussed on the board. Dr. P told me the name of the surgery

it's call Arthro????something I can't remember how to spell it but it

was all bone surgery. They are painful and stiff alot. It's amazing

how it affects your whole leg. Knees and hips. I could never be a

runner. I wore orthopaedic shoes until 8th grade and I said I am not

wearing these anymore. They were brown high top boots that looked

like I had them on the wrong feet. Uugghh! Talk about ruinning your

social status. LOL I went to Catholic school so it's not like I could

hide them with pants. When I do go to the doctors for any type of

pain I am having they just want to do more surgery. Eliminate my ROM.

I am just not up for anymore. That is why I was so insistant on Ava

not having to experience any of that. People would say well you had

it and your fine. There definition of fine is being able to walk. My

definition of fine is being able to walk,run,jump,without pain or

swelling. It's funny I never asked why I was born this way but after

having Ava, I know the answer to that question. Oh, one last thing, I

love shoes. I would have a closet full if I could wear them. Thanks.

KK

Livi

Ava BL Atypical CF/s 21/7

> > > > > Hmm.. We found out at 15 weeks.... I'm sure there was

plenty

> > of

> > > > room..LOL

> > > > > i read an article

> > > > >

> > > > >

> > > > > My friend emailed this article to me. Seems medically

> > > inaccurate

> > > > to me

> > > > > because Christian was diagnosed at my 18 week u/s and no-

> one

> > > > mentioned any

> > > > > problems with my fluid at that point but I did develop

> > > > oligohydramnios

> > > > > during my pregnancy and delivered a month early because

of

> it.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > In the rare event that your level of amniotic fluid

remains

> > > very

> > > > low for

> > > > > much of the second trimester, your baby's lungs may not

be

> > able

> > > > to develop

> > > > > properly (this is called pulmonary hypoplasia) and he may

> not

> > > be

> > > > able to

> > > > > live outside the uterus. Severe oligohydramnios can also

> lead

> > > to

> > > > limited

> > > > > range of motion in the arms and legs or deformities (such

> as

> > > > clubfoot)

> > > > > caused by not having enough space to move around in the

> womb.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Mommy to (12-17-98) and

> > > > >

> > > > > Christian (1-30-04) LCF - DBB 23/7

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >