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Re : lungs

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Laurie,

I'm really glad you have a good neuro who likes puzzles, and whom you have a

lot of trust in. Why does it always seem we leave with more issues and

questions than when we arrived at the appointment? You will have to let me

know what happens. My testing is the 8th and 9th of November. I'll let you

know when I find out more.

Kristie

Message: 10

Date: Thu, 28 Oct 2004 21:29:18 -0400

Subject: Re: Re : lungs

Kristie

I hope the spot is nothing to be concerned about.

I had an hour and a half appointment with my neurologist today and left with

pages of labs to get. He wants me to see another pulmonologist since he was

concerned that the reason for the fibrosis had not been determined and this

is someone he knows is interested in neuromuscular diseases. Since the

connective tissue issues were not addressed he ordered some initial labs for

that. He ordered another 24 hour urine to check my kidney spilling as I am

having more cramping. He also ordered some initial labs for the lipomas.

That will be on hold until I see my orthopod and the new pulmonologist. He

keep telling me about different diseases that presented in different ways

and had to be checked. He even talked about Jerry 's pulmonary fibrosis

and the things they had ruled out before calling it idiopathic. At another

point he said " I don't why I know all this stuff as a neurologist " . He is a

very good diagnostician and loves puzzles. I'm glad to give him this puzzle.

I'll keep you posted when I finally get some feedback from the labs, etc.

laurie

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