Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Though I don't know the answers tp your question. You and your husband are in my thoughts and prayers. ShaulPSC UC Sent via BlackBerry by AT&TFrom: "tbtravia" Date: Thu, 08 Jan 2009 20:41:42 -0000To: < >Subject: Blood work Hi everyone, My name is . I joined this forum awhile ago but have never posted anything. I pretty much just read a glean what good information you all have to offer. I was diagnosed with disease when I was 18, I am now 23. I have been on the Transplant List for about 2 years now. I am now expirencing brain fog immensely, and my hands and feet are extremely sensitive and hurt a lot of the time. I have cholesterol deposits on my hands also.The fatigue is getting greater and more frequent. I have had cholangitis attacks in the past. I am also extremely jaundice. My husband affectionately calls me his little lego person. I just had my labs drawn about 2 days ago, and I know my Meld score is 19 as of the moment without any added points. I was just curious as to what you all think of it and how soon do you think a transplant could get here based on these labs. These are all the Lab results that are out of range Bilirubin, Direct 8.2 Range < or = to .2 Bilirubin, Total 18.8 Range < or = to .2-1.2 Alkaline Phosphatase 1999 Range < or = to 33-115 AST 232 Range < or = to 10-30 ALT 243 Range < or = to 6-40 Thanks for your imput. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 , Welcome to the group, I'm sorry for your diagnosis but glad you found us. Your numbers are very high and unless the doctors can get them down I would expect you to be transplanted this year. I had high number in 1999, but a month of Cipro and starting URSO brought them down to just above normal and continuing URSO has kept them there. On the good news side many in this group have had very successful transplants and have the symptoms go away after a transplant. We will be praying for you and your family. Ian (52) PSC 89. Hi everyone,My name is . I joined this forum awhile ago but have never posted anything. I pretty much just read a glean what good information you all have to offer. I was diagnosed with disease when I was 18, I am now 23. I have been on the Transplant List for about 2 years now. I am now expirencing brain fog immensely, and my hands and feet are extremely sensitive and hurt a lot of the time. I have cholesterol deposits on my hands also.The fatigue is getting greater and more frequent. I have had cholangitis attacks in the past. I am also extremely jaundice. My husband affectionately calls me his little lego person.I just had my labs drawn about 2 days ago, and I know my Meld score is 19 as of the moment without any added points. I was just curious as to what you all think of it and how soon do you think a transplant could get here based on these labs. These are all the Lab results that are out of rangeBilirubin, Direct 8.2 Range < or = to .2 Bilirubin, Total 18.8 Range < or = to .2-1.2 Alkaline Phosphatase 1999 Range < or = to 33-115AST 232 Range < or = to 10-30ALT 243 Range < or = to 6-40Thanks for your imput. -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 , I can appreciate the brain fog, fatigue and jaundice. Whenever my biliruben (total) was over 14.0 I really noticed them. My liver numbers were close to what yours are when I was transplanted in 10/2007; however, I had a high INR and a high Creatinine. Those put my MELD at 29. I do know that high levels of biliruben affect INR and Creatinine over time. My thoughts and prayers are with your and your family. Joe From: [mailto: ] On Behalf Of tbtravia Sent: Thursday, January 08, 2009 2:42 PM To: Subject: Blood work Hi everyone, My name is . I joined this forum awhile ago but have never posted anything. I pretty much just read a glean what good information you all have to offer. I was diagnosed with disease when I was 18, I am now 23. I have been on the Transplant List for about 2 years now. I am now expirencing brain fog immensely, and my hands and feet are extremely sensitive and hurt a lot of the time. I have cholesterol deposits on my hands also.The fatigue is getting greater and more frequent. I have had cholangitis attacks in the past. I am also extremely jaundice. My husband affectionately calls me his little lego person. I just had my labs drawn about 2 days ago, and I know my Meld score is 19 as of the moment without any added points. I was just curious as to what you all think of it and how soon do you think a transplant could get here based on these labs. These are all the Lab results that are out of range Bilirubin, Direct 8.2 Range < or = to .2 Bilirubin, Total 18.8 Range < or = to .2-1.2 Alkaline Phosphatase 1999 Range < or = to 33-115 AST 232 Range < or = to 10-30 ALT 243 Range < or = to 6-40 Thanks for your imput. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi shaul, As of right now i am am on 500mg of cipro 2x daily 500mg of bactrim 1x daily 500mg of flagly 1x daily 200mg of Xifaxan 3x daily plus folic acid, iron, calcium, and a multivitamin. I am really just curious as to where other people are stage wise in comparison to thier bloodwork. I had read on another post awhile back someone had put they were in stage four and their bloodwork was wayyyyyy less than what mine is and it scared me a little. I just have to keep reminded myself that we may all have the same disease but it presents it self differently in all of us. ~ > > > Though I don't know the answers tp your question. You and your husband are in my thoughts and prayers. > Shaul > PSC UC > Sent via BlackBerry by AT&T > > Blood work > > > Hi everyone, > > My name is . I joined this forum awhile ago but have never > posted anything. I pretty much just read a glean what good > information you all have to offer. > > I was diagnosed with disease when I was 18, I am now 23. I have been > on the Transplant List for about 2 years now. I am now expirencing > brain fog immensely, and my hands and feet are extremely sensitive > and hurt a lot of the time. I have cholesterol deposits on my hands > also.The fatigue is getting greater and more frequent. I have had > cholangitis attacks in the past. I am also extremely jaundice. My > husband affectionately calls me his little lego person. > > I just had my labs drawn about 2 days ago, and I know my Meld score > is 19 as of the moment without any added points. I was just curious > as to what you all think of it and how soon do you think a transplant > could get here based on these labs. > > These are all the Lab results that are out of range > > Bilirubin, Direct 8.2 Range < or = to .2 > Bilirubin, Total 18.8 Range < or = to .2-1.2 > Alkaline Phosphatase 1999 Range < or = to 33-115 > AST 232 Range < or = to 10-30 > ALT 243 Range < or = to 6-40 > > Thanks for your imput. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi shaul, As of right now i am am on 500mg of cipro 2x daily 500mg of bactrim 1x daily 500mg of flagly 1x daily 200mg of Xifaxan 3x daily plus folic acid, iron, calcium, and a multivitamin. I am really just curious as to where other people are stage wise in comparison to thier bloodwork. I had read on another post awhile back someone had put they were in stage four and their bloodwork was wayyyyyy less than what mine is and it scared me a little. I just have to keep reminded myself that we may all have the same disease but it presents it self differently in all of us. ~ > > > Though I don't know the answers tp your question. You and your husband are in my thoughts and prayers. > Shaul > PSC UC > Sent via BlackBerry by AT&T > > Blood work > > > Hi everyone, > > My name is . I joined this forum awhile ago but have never > posted anything. I pretty much just read a glean what good > information you all have to offer. > > I was diagnosed with disease when I was 18, I am now 23. I have been > on the Transplant List for about 2 years now. I am now expirencing > brain fog immensely, and my hands and feet are extremely sensitive > and hurt a lot of the time. I have cholesterol deposits on my hands > also.The fatigue is getting greater and more frequent. I have had > cholangitis attacks in the past. I am also extremely jaundice. My > husband affectionately calls me his little lego person. > > I just had my labs drawn about 2 days ago, and I know my Meld score > is 19 as of the moment without any added points. I was just curious > as to what you all think of it and how soon do you think a transplant > could get here based on these labs. > > These are all the Lab results that are out of range > > Bilirubin, Direct 8.2 Range < or = to .2 > Bilirubin, Total 18.8 Range < or = to .2-1.2 > Alkaline Phosphatase 1999 Range < or = to 33-115 > AST 232 Range < or = to 10-30 > ALT 243 Range < or = to 6-40 > > Thanks for your imput. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 I have both of those results. My Albumin was 4.1 and it is supposed to be between 3.6-5.1 and the INR was 29 and suppose to be between 22-34. ~ > > , from what I know, your Meld score is high but probably not high > enough for a really quick transplant. There will be others with MUCH more > knowledge of this along shortly I'm sure. You might want to find out > whether you'll qualify for extra points. That might be what you need to get > up to the top. Your transplant coordinators should also be able to give you > an idea of how many people are in front of you. > > > > Do you have any of your other lab results such as Albumin and Pro- Time? > > > > Rick > > > > From: [mailto:psc- support ] On > Behalf Of tbtravia > Sent: Thursday, January 08, 2009 3:42 PM > To: > Subject: Blood work > > > > Hi everyone, > > My name is . I joined this forum awhile ago but have never > posted anything. I pretty much just read a glean what good > information you all have to offer. > > I was diagnosed with disease when I was 18, I am now 23. I have been > on the Transplant List for about 2 years now. I am now expirencing > brain fog immensely, and my hands and feet are extremely sensitive > and hurt a lot of the time. I have cholesterol deposits on my hands > also.The fatigue is getting greater and more frequent. I have had > cholangitis attacks in the past. I am also extremely jaundice. My > husband affectionately calls me his little lego person. > > I just had my labs drawn about 2 days ago, and I know my Meld score > is 19 as of the moment without any added points. I was just curious > as to what you all think of it and how soon do you think a transplant > could get here based on these labs. > > These are all the Lab results that are out of range > > Bilirubin, Direct 8.2 Range < or = to .2 > Bilirubin, Total 18.8 Range < or = to .2-1.2 > Alkaline Phosphatase 1999 Range < or = to 33-115 > AST 232 Range < or = to 10-30 > ALT 243 Range < or = to 6-40 > > Thanks for your imput. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Are any of these cholesterol binders like questran or (as I am typing I forgot the name). I know that many members that suffered similoar symptoms got some relief from those above meds. I am sure you heard about them but just in case I am repeatong it. ShaulPSC UCSent via BlackBerry by AT&TFrom: "tbtravia" Date: Fri, 09 Jan 2009 03:49:02 -0000To: < >Subject: Re: Blood work Hi shaul, As of right now i am am on 500mg of cipro 2x daily 500mg of bactrim 1x daily 500mg of flagly 1x daily 200mg of Xifaxan 3x daily plus folic acid, iron, calcium, and a multivitamin. I am really just curious as to where other people are stage wise in comparison to thier bloodwork. I had read on another post awhile back someone had put they were in stage four and their bloodwork was wayyyyyy less than what mine is and it scared me a little. I just have to keep reminded myself that we may all have the same disease but it presents it self differently in all of us. ~ > > > Though I don't know the answers tp your question. You and your husband are in my thoughts and prayers. > Shaul > PSC UC > Sent via BlackBerry by AT & T > > Blood work > > > Hi everyone, > > My name is . I joined this forum awhile ago but have never > posted anything. I pretty much just read a glean what good > information you all have to offer. > > I was diagnosed with disease when I was 18, I am now 23. I have been > on the Transplant List for about 2 years now. I am now expirencing > brain fog immensely, and my hands and feet are extremely sensitive > and hurt a lot of the time. I have cholesterol deposits on my hands > also.The fatigue is getting greater and more frequent. I have had > cholangitis attacks in the past. I am also extremely jaundice. My > husband affectionately calls me his little lego person. > > I just had my labs drawn about 2 days ago, and I know my Meld score > is 19 as of the moment without any added points. I was just curious > as to what you all think of it and how soon do you think a transplant > could get here based on these labs. > > These are all the Lab results that are out of range > > Bilirubin, Direct 8.2 Range < or = to .2 > Bilirubin, Total 18.8 Range < or = to .2-1.2 > Alkaline Phosphatase 1999 Range < or = to 33-115 > AST 232 Range < or = to 10-30 > ALT 243 Range < or = to 6-40 > > Thanks for your imput. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Are any of these cholesterol binders like questran or (as I am typing I forgot the name). I know that many members that suffered similoar symptoms got some relief from those above meds. I am sure you heard about them but just in case I am repeatong it. ShaulPSC UCSent via BlackBerry by AT&TFrom: "tbtravia" Date: Fri, 09 Jan 2009 03:49:02 -0000To: < >Subject: Re: Blood work Hi shaul, As of right now i am am on 500mg of cipro 2x daily 500mg of bactrim 1x daily 500mg of flagly 1x daily 200mg of Xifaxan 3x daily plus folic acid, iron, calcium, and a multivitamin. I am really just curious as to where other people are stage wise in comparison to thier bloodwork. I had read on another post awhile back someone had put they were in stage four and their bloodwork was wayyyyyy less than what mine is and it scared me a little. I just have to keep reminded myself that we may all have the same disease but it presents it self differently in all of us. ~ > > > Though I don't know the answers tp your question. You and your husband are in my thoughts and prayers. > Shaul > PSC UC > Sent via BlackBerry by AT & T > > Blood work > > > Hi everyone, > > My name is . I joined this forum awhile ago but have never > posted anything. I pretty much just read a glean what good > information you all have to offer. > > I was diagnosed with disease when I was 18, I am now 23. I have been > on the Transplant List for about 2 years now. I am now expirencing > brain fog immensely, and my hands and feet are extremely sensitive > and hurt a lot of the time. I have cholesterol deposits on my hands > also.The fatigue is getting greater and more frequent. I have had > cholangitis attacks in the past. I am also extremely jaundice. My > husband affectionately calls me his little lego person. > > I just had my labs drawn about 2 days ago, and I know my Meld score > is 19 as of the moment without any added points. I was just curious > as to what you all think of it and how soon do you think a transplant > could get here based on these labs. > > These are all the Lab results that are out of range > > Bilirubin, Direct 8.2 Range < or = to .2 > Bilirubin, Total 18.8 Range < or = to .2-1.2 > Alkaline Phosphatase 1999 Range < or = to 33-115 > AST 232 Range < or = to 10-30 > ALT 243 Range < or = to 6-40 > > Thanks for your imput. > > Quote Link to comment Share on other sites More sharing options...
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