Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 We too had genetic counseling after a clubfoot diagnosis. It was very helpful, especially because we were told our son may multiple other genetic disorders (thank God that he is perfectly healthy otherwise). The longest days of my life were waiting for the amnio results. I am glad the genetic counselors were there. and Cole At 10:03 AM 10/11/2004 -0400, you wrote: >I think I am the only person who had Genetic Counseling after my son was >diagnosed with clubfoot at 18 weeks. For anyone interested in knowing, it's >a counselor who you usually see at the hospital who goes over your family >history and helps you to figure out how the baby's condition came to be. I >think a lot of it is research based as no one really knows the what causes >Clubfoot ( i.e. genetic, environmental, positional). But there is a link to >some nuerotube (sp?) defects and MS as well as other things. They explained >why and how and amnio would be done. After the doctor told me Christian had >clubfoot, I had so many questions and no one to ask. She was very helpful >to us and I am thankful it was offered. > > > > > >Mommy to 12/17/98 > >and Christian 1/30/04 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 We too had genetic counseling after a clubfoot diagnosis. It was very helpful, especially because we were told our son may multiple other genetic disorders (thank God that he is perfectly healthy otherwise). The longest days of my life were waiting for the amnio results. I am glad the genetic counselors were there. and Cole At 10:03 AM 10/11/2004 -0400, you wrote: >I think I am the only person who had Genetic Counseling after my son was >diagnosed with clubfoot at 18 weeks. For anyone interested in knowing, it's >a counselor who you usually see at the hospital who goes over your family >history and helps you to figure out how the baby's condition came to be. I >think a lot of it is research based as no one really knows the what causes >Clubfoot ( i.e. genetic, environmental, positional). But there is a link to >some nuerotube (sp?) defects and MS as well as other things. They explained >why and how and amnio would be done. After the doctor told me Christian had >clubfoot, I had so many questions and no one to ask. She was very helpful >to us and I am thankful it was offered. > > > > > >Mommy to 12/17/98 > >and Christian 1/30/04 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 My husband and I had genetic counciling TO diagnose Brittle Bone disorder AFTER my first child was born.Both my daughter and my husband were diagnosed with the disorder that day. I have always been against the amnio procedure personally. I was told after my first daughter that we should have the procedure at the next pregnancy (and every one preceeding). I refused. The only purpose for the procedure in my case would have been to give me the choice to abort all my babies. All four of our children have been born with the same brittle bone disorder. I could not imagine life without them, hospital stays and emergancy trips and all! About the " cause " of club foot, I was told it was linked to the cleftlip/palet. That some kids are born with one or the other and some are born with both feet and palet affected. Well, the genetic effects of CF anyway. There is also a positional cause which is not usually as sever and I was told will correct itself pretty well on its own, or with stretching and pulling. Anyone have the TRUE info on the causes, medical data that is up to date? " L. Zezzo " sxc168@...> wrote: We too had genetic counseling after a clubfoot diagnosis. It was very helpful, especially because we were told our son may multiple other genetic disorders (thank God that he is perfectly healthy otherwise). The longest days of my life were waiting for the amnio results. I am glad the genetic counselors were there. and Cole At 10:03 AM 10/11/2004 -0400, you wrote: >I think I am the only person who had Genetic Counseling after my son was >diagnosed with clubfoot at 18 weeks. For anyone interested in knowing, it's >a counselor who you usually see at the hospital who goes over your family >history and helps you to figure out how the baby's condition came to be. I >think a lot of it is research based as no one really knows the what causes >Clubfoot ( i.e. genetic, environmental, positional). But there is a link to >some nuerotube (sp?) defects and MS as well as other things. They explained >why and how and amnio would be done. After the doctor told me Christian had >clubfoot, I had so many questions and no one to ask. She was very helpful >to us and I am thankful it was offered. > > > > > >Mommy to 12/17/98 > >and Christian 1/30/04 > > > > > > Quote Link to comment Share on other sites More sharing options...
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