Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Adele, If you go to the " files " section on this group's website and click on the folder called " grace's photos " , you can see pictures of Grace's foot. I would suggest that you take pictures of Connie's foot from different angles (preferably with her standing) and send them to an experienced doctor for review. I am assuming that you're in the UK, I would suggest contacting Dr. Naomie , Dr. Gavin DeKiewiet (sp), or Dr. Short off of Dr. Ponseti's list just for example. Those 3 doctors have the most Ponseti experience in the UK. Rockerbottom is a breakdown of the mid-foot... in a simplistic explanation: the bones of the foot, viewed from the side, would be in an elongated " u " shape, like a rocker on a chair. You can read lots of posts about this topic by typing " rockerbottom " into the search archived messages box and click " next " to scroll through the old posts section by section looking for threads on this topic. It's definitely worth your time to seek out a second opinion as it seems like your " mommy instincts " are telling you that something isn't quite right. You can also look through the photos and files sections here to see lots of pictures of different baby feet to see if your daughter's foot looks similar/different to the others. There are also a bunch of personal websites that can be accessed through the links section, or if you go here: http://pages.ivillage.com/ponseti_links and go to the personal websites section. I think looking at lots of pictures is the best way to compare since there isn't really a " standard " way that a clubfoot will look after it's corrected. Hope this helps! & (3-16-00) left clubfoot > > Hi there, I have been reading mail about Grace and her needing to > have surgery due to something called rockerbottom. > > Will somebody please explain to me what this is. > > I am concerned my daughter may have something that could possibly be > this. > > Connie is 17 weeks old and has been in the DBB since 5th November, > this follows 7 casts. The position of the foot is now fine but her > foot looks very odd. The middle of her foot is very flat and seems > to be lower than her heel so when I stand her up the middle of her > foot is on the ground and her heel isn't. > > Has anybody else come across this? My consultant agrees that it is > flat but thinks it could be baby fat which will go in time. Is he > giving me false hope? > > Regards Adele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Adele Are you in the UK? I am too - in Woldingham in Surrey. We are seeing Naomi for our son's clubfeet after he was treated elsewhere without success. Let me know if you need any more info about Naomi - phone numbers etc. she is absolutely brilliant. Stella > > Hi there, I have been reading mail about Grace and her needing to > have surgery due to something called rockerbottom. > > Will somebody please explain to me what this is. > > I am concerned my daughter may have something that could possibly be > this. > > Connie is 17 weeks old and has been in the DBB since 5th November, > this follows 7 casts. The position of the foot is now fine but her > foot looks very odd. The middle of her foot is very flat and seems > to be lower than her heel so when I stand her up the middle of her > foot is on the ground and her heel isn't. > > Has anybody else come across this? My consultant agrees that it is > flat but thinks it could be baby fat which will go in time. Is he > giving me false hope? > > Regards Adele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 > > > > Hi there, I have been reading mail about Grace and her needing to > > have surgery due to something called rockerbottom. > > > > Will somebody please explain to me what this is. > > > > I am concerned my daughter may have something that could possibly > be > > this. > > > > Connie is 17 weeks old and has been in the DBB since 5th November, > > this follows 7 casts. The position of the foot is now fine but > her > > foot looks very odd. The middle of her foot is very flat and > seems > > to be lower than her heel so when I stand her up the middle of her > > foot is on the ground and her heel isn't. > > > > Has anybody else come across this? My consultant agrees that it > is > > flat but thinks it could be baby fat which will go in time. Is he > > giving me false hope? > > > > Regards Adele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi Adele Yes, Naomi is in Booth Hall. We were being treated at a local hospital by a consultant who said he was following the Ponseti method -he appeared very knowledgeable and at first we were confident he knew what he was doing. After a couple of casts we started to worry though because the casts were not looking like the pictures we had seen on the internet and reading Ponseti publications. We spoke to our consultant about this and he was quite arrogant and told us to trust him. Thankfully we went with our instincts and emailed Dr Ponseti with photos. When he replied he said that our son had atypical clubfeet and strongly advised to ask Naomi to treat . Thank God he did! had been through 1 tenotomy but his feet were nowhere near corrected. We more or less had to start from scratch, and 's now in the mitchell sandals. We have had at least 1 500mile round trip each week to Manchester for plaster cast changes since then (except for a break when he had his 2nd tenotomy), but it has been absolutely worth it. With regards to referrals, we do have private healthcare for but have not invoked it. I just went to my GP armed with the email from Dr Ponseti and told him I needed an immediate referral. to be honest I think I knew much more about clubfeet treatment than he did, so he was not really able to question what I needed. He was very kind- he knew that if we needed to travel to America we would have. He gave us an NHS referral no problem. I didn't actually think to say to him that I could go private if necessary. Anyway, when we got to Manchester, Naomi was extremely pleased that we had got an NHS referral - she said we had set a precedent and that this would help other parents who wanted to be referred to her. (ie if one PCT can do it, why can't another?). I have heard stories of parents who have tried to get referrals and their doctor/pct have said no. I think you need to be strong and insist. (It's all to do with cross charging I think). Apparently we do have the right to decide where we want treatment. I cannot recommend Naomi Davies too strongly. She is amazing and cares so much about her Ponseti children. If you can, it might be worth trying to see her, just to put your mind at rest if nothing else. you can phone 0 and ask to be put through to her secretary for an appointment.(although they will insist on a referral, nhs or private) She has a Ponseti clinic on Wednesday afternoon's - It's always great to see other children at various stages of treatment at htis clinic - helps to believe that there is light at the end of what seems like a never ending tunnel at times! hope this helps Stella > > > > > > Hi there, I have been reading mail about Grace and her needing > to > > > have surgery due to something called rockerbottom. > > > > > > Will somebody please explain to me what this is. > > > > > > I am concerned my daughter may have something that could > possibly > > be > > > this. > > > > > > Connie is 17 weeks old and has been in the DBB since 5th > November, > > > this follows 7 casts. The position of the foot is now fine but > > her > > > foot looks very odd. The middle of her foot is very flat and > > seems > > > to be lower than her heel so when I stand her up the middle of > her > > > foot is on the ground and her heel isn't. > > > > > > Has anybody else come across this? My consultant agrees that it > > is > > > flat but thinks it could be baby fat which will go in time. Is > he > > > giving me false hope? > > > > > > Regards Adele Quote Link to comment Share on other sites More sharing options...
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