Re: [Attn: Dawn-Marie]Last call for Markell shoes and Fillauer bar up for grabs

[Guest guest]

Dawn-Marie,

Something to consider about having a shoe that doesn't fit right:

When they put Devlin in the DBB, they gave us the 00 so she " had room

to grow " (I think the guy was trying to help us out because we had to

pay for it all ourselves). However, it turned out to be a disaster.

Her heels were always lifting up in the shoe and I kept having to try

to make it tighter and tighter (she ended up with all kinds of red

marks on her ankles and feet---and the heels were still lifting

out). When we went back to the orthotist he gave us the 000 for free-

--he seemed to feel badly that his idea wasn't working AT ALL for

us. She was only in that smaller shoe for a few days. By then her

feet had regressed already and she went back into casts (in Iowa---

that's when we gave up on finding decent treatment in Philadelphia).

Now, Devlin's condition IS a rare form of atypical clubfoot---she

mostly has only had the equinous deformity and that made the " pull "

of the heel to straighten very pronounced. So, you may not have that

problem but it's something to consider. The $55 the orthotist was

trying to save us contributed to our having to spend a LOT more later.

I'll send the shoes to . It sounds like she'll be able to use

them for a bit anyway.

I'm glad your little one does so well with the nursing! Devlin

gained no weight at all until I started supplementing with formula at

6 weeks. She still nursed until 8 months, but I always gave her some

formula too. Sometimes I wonder if it was the extra calories she was

burning moving those casts around all day long! I guess we'll never

know...

-- In nosurgery4clubfoot , Dawn-Marie

wrote:

> He has only been in these shoes since 10/18 but he is growing like

a weed. Breastmilk really agrees with him. He will be 4 months at

the end of the week and is almost grown out of 6 to 9 months

clothing, he was only 7.5 at birth and at his 2 month check up was

already 14.5 pounds. I am going to ask for the shoes to be 1 size

too big because I think he will out grow them too fast and I have to

pay out of pocket and get reimbursed. I swear that veternarian

insurance would be better than the plan that I have.

>

> Dawn

>

>

> frogabog wrote:

> how long has he been in the 00's? Darbi grows through a half size

every 3

> months. So (each size in the markells is a half size larger, so a

0 is

> half size larger than a 00, and a full size larger than the 000,

etc.) she

> needs a full size larger every 6 months. I will never again get a

half

> size larger, she went through those too fast. But Darbs has larger

feet

> (as compared to most CF babies) and seems to grow faster too.

She's 19mo

> old, wearing size 5's in regular shoes and 4's in Markells. I

still think

> whole sizes larger are best though, especially if you have to pay

for them

> yourself. Unless they're just swimming in them, they can wear them

large

> without any problems. It's not like they're walking in them and

they're

> too long for their feet and they trip.

>

> Kori

>

>

>

>

>

> At 04:38 PM 11/15/2004, you wrote:

>

> >I should say how do I know what size he needs. I just checked his

shoes

> >and we are in 00, Is a 0 next or 000?

> >

> >Dawn-Marie wrote:

> >I would love them. How do you know what size he needs?

> >

> > Seel wrote:

> >I posted this before and got no response, but maybe now someone

has a

> >baby coming out of their casts soon. We have a barely used set of

> >000 and 00 Markell shoes and a red Fillauer bar (#6) that I would

> >love to pass on to anyone who can use them. It would add insult to

> >injury to see this stuff go to no use whatsoever after we had to

pay

> >so much for it!

> >

> >Just let me know if you want them---you cover the postage and

they're

> >yours. Or, do you know of anyone in Iowa that gathers this stuff

for

> >families who can't pay? We'll be there again in December and I can

> >drop it off there.

>

>

>

>