Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Carol, I am so very sorry to hear of your loss. Please know that we will continue to be here for you if we can do anything at all for you and your family. Hugs, Rev. E. lin wrote: >Hi everyone >On Monday night, my husband, Rev. E. lin went to be with >the Lord. He battled his mito for 6 plus years. We appreciate all the >information that we have learned from reading your posts. When we could >not travel, it kept us in touch with the new informtion that was being >discovered. My daughter and I have requested that gifts be made to UMDF >in lieu of flowers if people chose. Maybe we will be help someone else >who is fighting this crazy disease or help with a cure. >Thank you again for all of your support >Sincerely >Carol A. lin, wife of E. lin > >PS. Please drop my husband's name from the email list for a while. >Trying to get everything squared away will take much of my emotional >energy and time. I will still lift up prayers for those who struggle >with this disease. Carol lin > >ohgminion wrote: > > > >>I've had some success faxing doctors, but it depends on the >>situation. If it is not *extremely* urgent, even regular mail might >>be an idea. Sometimes something written makes more of an impression >>than a phone call (and gives the other person time to respond, not >>just off the cuff). This also depends on how confidential your >>issues are, I think I lost all expectation of confidentiality after I >>gave birth to my first kid, lol. >> >>Take care, >>RH >> >> >> >>>> >>>> >>>>> >>>>> >>>>>I'm sorry your life has been so filled with medical stuff, along >>>>> >>>>> >>>>with the >>>> >>>> >>>>>hurricanes. >>>>> >>>>>I had the same thing happen when I e-mailed Dr. Cohen. I know he >>>>> >>>>> >>>>use to do >>>> >>>> >>>>>his e-mail from home and now that he has a family, probably would >>>>> >>>>> >>>>like some >>>> >>>> >>>>>time with them. >>>>> >>>>>laurie >>>>> >>>>> >>>>> >>>>>>From: " mitomomtoo " >>>>>>Reply-To: >>>>>>Date: Tue, 21 Dec 2004 12:50:29 -0000 >>>>>>To: >>>>>>Subject: Quick Update >>>>>> >>>>>> >>>>>>Hello Friends! >>>>>> >>>>>>I am trying to catch up on posts and check in on how you are all >>>>>>doing. >>>>>>I have had a few bad months here in Melbourne, Florida. It >>>>>> >>>>>> >>started >> >> >>>>>>with 3 Hurricanes plowing thru in September! Our house had some >>>>>>damage, but compared to others we can't complain. Pool cage and >>>>>>screen totalled and water damage to the ceiling in the dining >>>>>> >>>>>> >>>>room. >>>> >>>> >>>>>>I was hopsitalized in October for emergency surgery when my >>>>>>Infuse-a-port became septic with Serratia ( a bacterial >>>>>> >>>>>> >>>>infection). >>>> >>>> >>>>>>I had it removed and spent 5 days in the hospital. Then 3 weeks >>>>>> >>>>>> >>>>later >>>> >>>> >>>>>>I had another bout of Respiratory trouble and was back in the >>>>>>hospital for another 5 days. I had 2 more surgeries while I was >>>>>>admitted the second time. The surgeon tried to place a new port >>>>>> >>>>>> >>>>but >>>> >>>> >>>>>>couldn't get it placed properly without a fluroscopy machine >>>>>> >>>>>> >>>>(special >>>> >>>> >>>>>>x-ray machine), so after the first failed surgery, I had the >>>>>> >>>>>> >>port >> >> >>>>>>placed in the Radiology Dept...........while I was AWAKE!!! The >>>>>>Radiologists can't use genral anesthesia so the use local meds >>>>>> >>>>>> >>>>like >>>> >>>> >>>>>>novicaine. I am sitting here at the computer typing while I am >>>>>>hooked up to the IV thru my port. I am recieving Fliuds and >>>>>>Potassium. I have been fighting another Resp infection and as >>>>>> >>>>>> >>>>usual >>>> >>>> >>>>>>decompensated and began the cycylic vomiting routing once again! >>>>>> >>>>>> >>>>I >>>> >>>> >>>>>>am really getting sick of this.......but what choice do we have >>>>>> >>>>>> >>>>but >>>> >>>> >>>>>>to deal with the situtation we were given? Right? >>>>>> >>>>>>I have a question for you. Dr Cohen emailed me a week or so back >>>>>>while I was in the hosptial. When I tried to reply, I got >>>>>> >>>>>> >>>>an " invalid >>>> >>>> >>>>>>emailed " and it bounced back to me. Does anyone have the new >>>>>> >>>>>> >>>>email? >>>> >>>> >>>>>>Should I call CCF and see if they will give it to me? I imagine >>>>>> >>>>>> >>>>that >>>> >>>> >>>>>>they just don't go giving out his email to everyone or he would >>>>>> >>>>>> >>>>spend >>>> >>>> >>>>>>his whole day replying to emails and never seeing patients. >>>>>>If any of you have it and don't want to post it, you can email >>>>>> >>>>>> >>me >> >> >>>>at >>>> >>>> >>>>>>Goldenfamily5@a... >>>>>> >>>>>>Thanks, >>>>>>Happy Holidays to all my Mitoldie Friends :-) >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>Medical advice, information, opinions, data and statements >>>>>> >>>>>> >>>>contained herein >>>> >>>> >>>>>>are not necessarily those of the list moderators. The author of >>>>>> >>>>>> >>>>this e mail is >>>> >>>> >>>>>>entirely responsible for its content. List members are reminded >>>>>> >>>>>> >>>>of their >>>> >>>> >>>>>>responsibility to evaluate the content of the postings and >>>>>> >>>>>> >>>>consult with their >>>> >>>> >>>>>>physicians regarding changes in their own treatment. >>>>>> >>>>>>Personal attacks are not permitted on the list and anyone who >>>>>> >>>>>> >>>>sends one is >>>> >>>> >>>>>>automatically moderated or removed depending on the severity of >>>>>> >>>>>> >>>>the attack. >>>> >>>> >>>>>> >>>>>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.