Laurie...Re: Ann-Marie....why Dr. Simpson put me on coQ10

[Guest guest]

Laurie,

Dr. Simpson said that he will put me on carnitor when the biopsy results come

in. I go for my echo cardiogram tomorrow, and then I go for the consult on my

sleep study on December 17th.

Thanks,

Laureta Fitzgerald lfitzger@...> wrote:

Hang in there. I know it is frustrating. You may have to do things

differently, but you will most likely see those boys of yours doing the boys

do. I raised my two sons myself (starting when they were 4 &6) and I make

myself worse in some cases by pushing too hard, but I have those memories

with me and it was worth it.

Did Dr. Simpson also put you on Carnitor? He usually does.

laurie

>

> Reply-To:

> Date: Thu, 2 Dec 2004 10:43:23 -0800 (PST)

> To:

> Subject: Ann-Marie....why Dr. Simpson put me on coQ10

>

> Ann-Marie,

>

>> From what I gathered at Dr. Simpson office, I think he is pretty sure that I

>> have the mito disease. And for me I already know it because it affects me so

>> bad sometimes. Right now I am sick also and that makes my body go even more

>> South.

>

> I have little or no energy most of the time. There are days that I am okay

> but then 4 or 5 that my body just doesn't cooperate with me. But you know

> that because you are going through it.

>

> Anyway, it is going to be a few months before I get into Cleveland Clinic for

> the biopsy so he wanted me to start it now to see if it would help me.

>

> My cousin Joni, who has 1 confirmed child, Collin, with mito, and they suspect

> that his twin sister has it also, she told me a few weeks ago to try it

> out also. It is looking more and more that this is a defect in my family.

> Joni's mom (my dad's sister) was diagnose with ALS and she lived for almost 20

> years with it. But it is a concensus that we believe that she was

> misdiagnosed as ALS and really had a mito disease. But she passed away last

> May, so we probably will never know for sure because Dr. Mendell will not

> budge on his diagnoses of her. And my Aunt Janette in Texas, who was Donna's

> sister has almost identical symptoms as I do, except she has had seizures.

>

> But Dr. Simpson will help us piece together the puzzle.

>

> Anyway, I am yearning so much for energy because I have trouble with doing

> anything like playing with my 6 and 2 year old boys because in 5 minutes I am

> exhausted. And then my wife gets upset because she is working and trying to

> go to college but she is having trouble with those because she is worried how

> I am doing taking care of the boys. And I will be honest, I sometimes just

> have to sit them down watching a movie so I can just sleep for 15 or 20

> minutes to get a burst of more energy. I am hoping that we can get me on

> disability soon so I can get her into school more so she can get done quicker

> so that I know she has a decent job if something does happen to me.

>

> Well my arms are hurting from typing so I am going to get off of here.

>

> I am sorry that I went on and on but I just needed to vent for a minute.

>

> Thanks for your thoughts and prayers and also for everyone else's also.

>

>

>

>

> McCombs

> 2 Cor 1:3-4

>

>