Bob..make sure..Re: Muscle Biopsy

[Guest guest]

Bob,

Make sure that they do the fresh biopsy because I was told by my neuro and the

neuro at OSU here in Ohio that they were doing a fresh biopsy, but in turn I

found out that it was really frozen before they test it.

Cleveland Clinic here in Ohio does exclusively fresh biopsies and there are only

1 or 2 other places in the US that do them fresh.

javaruck bob.rucker@...> wrote:

I was lucky enough to get slotted in quickly at UCLA for my muscle

biopsy. I go in tomorrow morning so hopefully I will have some

answers as to whether I'm dealing with a mito condition.

We just had a fire drill at work and my legs feel like rubber after

walking down 6 flights of stairs. Some of the symtoms seem

consistent with mito but the peripheral neuropathy continues to get

worse.

Luckily I don't have pain unless I overdo it and get muscle spasms.

Otherwise just dealing with fatigue and altered sensations with the

arms, legs, face and abdomen.

I'm very lucky that I've not been dealt any significant disability as

yet but the continued progression of symtoms is disconcerting.

Starting to have problems with minor stumbling/trip easily when

walking.

Sounds like UCLA uses the fresh tissue method rather than freezing so

I hope to get a clear answer and figure out what the next steps are.

Bob

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