Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 So glad you are home and things are starting to look up for you. Stay well. > > Hi Everyone, > > I hope this finds you all having a pain free day. I am home. Slept much of the day away, but am feeling a little more alert now. I think that I should just stay home from now on when I have these flares. Especially since none of my family even looked in on the kids. My house is trashed, there is no food left, and I can only imagine the phone bills I am going to have. My son left the computer signed on overnight so he could download music. (It doesn't cost us that much but overnight?? Geesh!) > > I called my case worker to see if we could get some help, but so far I haven't heard anything back from her yet.... My foreclosure got taken care of thanks to the generosity of a few very special people in my life and my pinching pennies. I still have a few bills to get caught up on the first, but nothing like last month.... no more hospital for me. > > The surgery, well I still don't have a date, or even the knowledge that it will happen for that matter. I am praying that the insurance won't give me a hassle about it though. I just want it over. > > Thank you to everyone that sent prayers and words of encouragement... it means a lot to me. (even though I couldn't read all of them at the hospital, couldn't keep my eyes open that long) I really appreciate everything you all do here... you are all so very special to me. > > I see while I was away there was a lot of talk about pancreatic cancer(s) I have many websites that I have been meaning to get listed in the database on the yahoo groups page, I haven't been able to yet but if anyone would like the information I would be glad to send it a long to you. I have several sites that are very informative. > > Welcome to any and all newcomers... I'm sorry you have to deal with this terrible disease, but I am glad you have found the PAI and all of its wonderful members... you will feel right at home here I am sure! If you are in need of information... please do not hesitate to ask, there is much to be shared here. > > To everyone that has had trials and tribulations this week, I'm sorry I haven'tposted to you directly, yet...but know that my thoughts and prayers are with you. > > Much Love and Many., Many {{{HUGZ}}} > > (In Michigan) > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 So glad you are home and things are starting to look up for you. Stay well. > > Hi Everyone, > > I hope this finds you all having a pain free day. I am home. Slept much of the day away, but am feeling a little more alert now. I think that I should just stay home from now on when I have these flares. Especially since none of my family even looked in on the kids. My house is trashed, there is no food left, and I can only imagine the phone bills I am going to have. My son left the computer signed on overnight so he could download music. (It doesn't cost us that much but overnight?? Geesh!) > > I called my case worker to see if we could get some help, but so far I haven't heard anything back from her yet.... My foreclosure got taken care of thanks to the generosity of a few very special people in my life and my pinching pennies. I still have a few bills to get caught up on the first, but nothing like last month.... no more hospital for me. > > The surgery, well I still don't have a date, or even the knowledge that it will happen for that matter. I am praying that the insurance won't give me a hassle about it though. I just want it over. > > Thank you to everyone that sent prayers and words of encouragement... it means a lot to me. (even though I couldn't read all of them at the hospital, couldn't keep my eyes open that long) I really appreciate everything you all do here... you are all so very special to me. > > I see while I was away there was a lot of talk about pancreatic cancer(s) I have many websites that I have been meaning to get listed in the database on the yahoo groups page, I haven't been able to yet but if anyone would like the information I would be glad to send it a long to you. I have several sites that are very informative. > > Welcome to any and all newcomers... I'm sorry you have to deal with this terrible disease, but I am glad you have found the PAI and all of its wonderful members... you will feel right at home here I am sure! If you are in need of information... please do not hesitate to ask, there is much to be shared here. > > To everyone that has had trials and tribulations this week, I'm sorry I haven'tposted to you directly, yet...but know that my thoughts and prayers are with you. > > Much Love and Many., Many {{{HUGZ}}} > > (In Michigan) > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Thank you so much !! {{{HUGZ}}} susanr6726 wrote: So glad you are home and things are starting to look up for you. Stay well. > > Hi Everyone, > > I hope this finds you all having a pain free day. I am home. Slept much of the day away, but am feeling a little more alert now. I think that I should just stay home from now on when I have these flares. Especially since none of my family even looked in on the kids. My house is trashed, there is no food left, and I can only imagine the phone bills I am going to have. My son left the computer signed on overnight so he could download music. (It doesn't cost us that much but overnight?? Geesh!) > > I called my case worker to see if we could get some help, but so far I haven't heard anything back from her yet.... My foreclosure got taken care of thanks to the generosity of a few very special people in my life and my pinching pennies. I still have a few bills to get caught up on the first, but nothing like last month.... no more hospital for me. > > The surgery, well I still don't have a date, or even the knowledge that it will happen for that matter. I am praying that the insurance won't give me a hassle about it though. I just want it over. > > Thank you to everyone that sent prayers and words of encouragement... it means a lot to me. (even though I couldn't read all of them at the hospital, couldn't keep my eyes open that long) I really appreciate everything you all do here... you are all so very special to me. > > I see while I was away there was a lot of talk about pancreatic cancer(s) I have many websites that I have been meaning to get listed in the database on the yahoo groups page, I haven't been able to yet but if anyone would like the information I would be glad to send it a long to you. I have several sites that are very informative. > > Welcome to any and all newcomers... I'm sorry you have to deal with this terrible disease, but I am glad you have found the PAI and all of its wonderful members... you will feel right at home here I am sure! If you are in need of information... please do not hesitate to ask, there is much to be shared here. > > To everyone that has had trials and tribulations this week, I'm sorry I haven'tposted to you directly, yet...but know that my thoughts and prayers are with you. > > Much Love and Many., Many {{{HUGZ}}} > > (In Michigan) > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Mom and I flew home commercial today after waiting several days and couldn't get an Angel Flight. It was quite the ordeal with the security search, wait and chaos. I'm really exhausted! I wasn't able to sleep much being away from home and the tests were terrible. I will have to return for the upper manometry testing as the doc. felt I couldn't handle anymore stress on my body at this time. I had an upper endoscopy with biopsies, colonoscopy with biopsy and colonic manometry. My colon looked " funny " it was dark and wet looking. It has some big scary name but the pathology report was benign. The colonic manometry showed some probs. but before a surgical consult is obtained I will have to have the upper manometry. As of now I'm to stay on my current meds and can take a stimulant as needed. I had my eyes checked by the neuro optho. and the mito hasn't affected my eyes so that was a praise. I do however have dry eye syndrome and am VERY nearsighted with poor tear ducts so he put me on gel med. for that. I met with my mito doc. and he is sending some muscle to Columbia for further testing. He is also going to treat my low glutathione with IV NAC. My gene test should be done anytime in Atlanta. This was by far one of my harder and more painful trips but I still feel that I did make some progress and hope that the leads will develp into something helpful in the end. Thank you so much for your prayers! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , I'm sorry the trip was so stressful and that you have to go back for the other test, but it sounds like it would have been too much for you if you had. It does sounds like you got some answers and I hope that after the other test, the docs can offer something to make you for comfortable. Hugs, LILQT4U1984@... wrote: >Mom and I flew home commercial today after waiting several days and couldn't >get an Angel Flight. It was quite the ordeal with the security search, wait >and chaos. I'm really exhausted! I wasn't able to sleep much being away from >home and the tests were terrible. I will have to return for the upper >manometry testing as the doc. felt I couldn't handle anymore stress on my body at >this time. I had an upper endoscopy with biopsies, colonoscopy with biopsy and >colonic manometry. My colon looked " funny " it was dark and wet looking. It >has some big scary name but the pathology report was benign. The colonic >manometry showed some probs. but before a surgical consult is obtained I will have >to have the upper manometry. As of now I'm to stay on my current meds and can >take a stimulant as needed. I had my eyes checked by the neuro optho. and >the mito hasn't affected my eyes so that was a praise. I do however have dry eye > syndrome and am VERY nearsighted with poor tear ducts so he put me on gel >med. for that. I met with my mito doc. and he is sending some muscle to >Columbia for further testing. He is also going to treat my low glutathione with IV >NAC. My gene test should be done anytime in Atlanta. This was by far one of my >harder and more painful trips but I still feel that I did make some progress >and hope that the leads will develp into something helpful in the end. Thank >you so much for your prayers! > > > Quote Link to comment Share on other sites More sharing options...
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