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RH-Laurie and everyone else

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I can make a list of things we need to teach young doctors and at the top it

should read M.D. does NOT mean I am God! I would guess that 50% of the posters

on MO know more than 98% of new physicians about mito and that is a generous

boost for the docs. New residents know enough to take an exam and be dangerous

and the rest of their careers learn something new every week, at least.

My daughter took a class about special populations, which included visits from

afflicted people, deaf, blind, CP, spina bifida and she said without a doubt

THOSE lectures were wonderful because the insight shared from a victim was much

more real and enlightening than that from a prof spewing learned facts. The

focus was mainstreaming children into regular classes and one mother refused to

allow her son to be in regular classes, he could not keep up and the other

children should not be held back. How much better it would be to relax the med

school rules and allow electives such as mito so future doc could get a sample

of its complexity. Over and over I have heard REAL DOCTORS, say if a mito

patient (Alice ) told me I needed to be tested then I probably should since

they know more about it than the doctors!

All too many physicians are afraid of mitochondrial disease because they know

only enough to be scared and not enough to give safe treatment. A teaching

hospital needs victims to teach in every rotation because that would make a

difference!

Debra

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